Dianosis Help?

[sore joints]

Hi everyone!

When I read all of your letters, I feel guilty because I'm not suffering in the same way as most of you and can't imagine what all of you are going through.

For 3 years now I have been suffering from bouts of joint and bone pain. It started following pregnancy. I've been through every test known. Now I also have very low ferriton and fatigue. I recently took a Celiac blood test and it came back as mildly abnormal. Did the doctor bother to tell me what this means...NO. She referred me to a gastro doc but I just found out that it will take 11 months just to get an appointment. What the hell. I'm going through another flare-up of pain and do not want to wait any longer. Apparently my naturalpath can do an allergy test to determine if I am sensitive to gluten. What do you think of this. After the test I'm thinking of going of gluten to see if I feel better. Anyone have any opinions on this?

I would really like to hear from others who have similar bone and joint pain. Any advice would be greatly welcomed. Thanks!

[MNB]

Dear Sore Joints:

Although your symptoms could be caused by Gluten Intolerance (joint pain is common from what I can tell on this site), you may want to consider other possibilites.

I am recently NOT a fan of MD's and it was a Homeopathic Doctor that identified my gluten-allergy symptoms, but the joint-one pain you are describing sounds alot like what I was feeling before I was diagnosed w/ Lupus. Have the doctors tested you for any other auto immune disorders? (Fibromilagia, lupus, MS?). It took the doc's several years to diagnose me with lupus and I assumed when I recently got sick this time it was the lupus but come to find out it wasn't - it was the gluten.

I wouldn't rule out anything and don't believe everthing the MD's tell you - 11 months for an appointment is obnoxious! Get a new Doc or go with the Naturopath to at least get a definitive answer on the allegy.

Good Luck!

[CarlaB]

You can order a test at www.enterolab.com and you will know within two weeks after sending in the sample. Check out their website. I was happy with their service.

[Lymetoo]

Also explore the possibility of lyme disease. The tests are lousy, but if you need information, feel free to contact me!

welcome!

[AndreaB]

I also like enterolab if you want to check for intolerance to gluten. They also include a gene test, ttg and malabsorption in the whole gluten package. I think it still includes dairy at no charge. They also offer testing for soy/egg/yeast.

[sore joints]

Hi! Thanks for the great replies. I've been tested for MS, Lupus, Rheumatoid Arthritis, Bone Cancer, and who knows what else. I will check out enterolab and do my testing through the naturalpath and if all else fails, I guess I try going gluten free to see if I feel better. I have no idea what this type of diet entails. I guess I'll have to spend some time researching products and ingredients. Thanks everyone.