Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Celiac Conference In Stanford, Ca - Sept '06

DingoGirl

Recommended Posts

DingoGirl Enthusiast
DingoGirl
Posted

Hey all,

Just wondering if anyone plans to go to this conference - - it looks like a really great day, lots of good speakers, etc. I definitely plan on going and wonder if anybody else wants to meet me there, in person!

Here's a link - - -

Open Original Shared Link

Anybody want to fly out? I have a really cozy guest room with your own private bath! And two dingos... :)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • Replies 68
  • Created
  • Last Reply
Guest BERNESES
Guest BERNESES
Posted

Hmmm... now you got me thinking girl as I miss San Francisco, have been meaning to go out and would get to chill with you. :D Only problem for me is that school has just sarted then. Hmmmm....I shall ponder.

DingoGirl Enthusiast
DingoGirl
Posted
  • Author
Hmmm... now you got me thinking girl as I miss San Francisco, have been meaning to go out and would get to chill with you. :D Only problem for me is that school has just sarted then. Hmmmm....I shall ponder.

Oh - - -school-schmool! Book your plane ticket girl....

Will I be calling you DOCTOR BEV at that time? ;)

Guest BERNESES
Guest BERNESES
Posted
Oh - - -school-schmool! Book your plane ticket girl....

Will I be calling you DOCTOR BEV at that time? ;)

No- that's few years away. Let me see what I can finagle.

dlp252 Apprentice
dlp252
Posted

I just might go to this. Looks interesting and fun. Now, if I still have a job and don't have to have surgery around that time I'm set. :P

eleep Enthusiast
eleep
Posted

Oooh. A travel possibility that involves a chance to hobnob and eat with people in the know? An opportunity to connect voices and bodies with avatars? Hmmmmmm.

I've got a friend in Berkeley who's been asking me to come out....

tarnalberry Community Regular
tarnalberry
Posted

lol... I'll be in CA at the time, but the other end of the state. :-P (I'll miss my five year anniversary because of my trip too. :-( )

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


DingoGirl Enthusiast
DingoGirl
Posted
  • Author
Oooh. A travel possibility that involves a chance to hobnob and eat with people in the know? An opportunity to connect voices and bodies with avatars? Hmmmmmm.

I've got a friend in Berkeley who's been asking me to come out....

Exactly what I was thinking...and Stanford holds a place very dear in my heart....I can't wait!

Rikki Tikki Explorer
Rikki Tikki
Posted

Hey Susan:

I might be there. I have been 2 previous years. They have a really great lunch and lot's of samples of gluten-free foods.

Maybe those of us that are going can meet up somewhere?

jayhawkmom Enthusiast
jayhawkmom
Posted

I am going!! I'm actually brand new to all this, but I could not miss a chance to see/meet Danna Korn. I've spoken with her online a few times, and just to be around others who "get it" will be nice. Plus... I need a break from my kids. =)

4getgluten Rookie
4getgluten
Posted

Susan - Thanks for posting that. It looks very interesting. My sister is a doctor at Stanford. I could probably get her to come with me, except that she's having a baby at the end of August. Does anyone know if they have a conference every year?

Rikki Tikki Explorer
Rikki Tikki
Posted

Karen:

It is every year. It's great, lot's of food, lot's of people.

4getgluten Rookie
4getgluten
Posted
Karen:

It is every year. It's great, lot's of food, lot's of people.

Thanks Sally! I need to check my work schedule and see if I can get some time off. If not this year, next year for sure - and I'll drag my sis with me. She's suspicious that she may also be gluten intolerant.

DingoGirl Enthusiast
DingoGirl
Posted
  • Author

This is really great, girls! I'm so excited about it. Yes, we must meet each other in person! Karen - maybe the baby will come early - or late - - ;) would be great if she could go. Can she get us discounts? I am so broke.... :huh: My late father went to Stanford, undergrad and graduate school, so I went to all the kooky football games....such memories. So I'm really excited that it's held there.

The more the merrier! Let's all GO! :rolleyes:

jayhawkmom Enthusiast
jayhawkmom
Posted

I've already reserved my hotel, and paid for my registration. Now I just have to get my plane tickets, and rent a car! =)

DingoGirl Enthusiast
DingoGirl
Posted
  • Author
I've already reserved my hotel, and paid for my registration. Now I just have to get my plane tickets, and rent a car! =)

that's awesome, jayhawk!! Where do you live and how far will you travel for this wonderful event?

jayhawkmom Enthusiast
jayhawkmom
Posted
that's awesome, jayhawk!! Where do you live and how far will you travel for this wonderful event?

Unbelieveably, I'm in Kansas.... so it's going to be a big trip! My daughter and I are both newly dx as gluten intolerant. I'm not getting the answers and support that I would like, around here, so when I received the email about the conference, I told my dh that I felt it was my duty, as a parent, to go and educate myself by those who ARE educated on the subject. =)

I'm actually very excited, but nervous about traveling alone - and driving in California! =)

DingoGirl Enthusiast
DingoGirl
Posted
  • Author
I'm actually very excited, but nervous about traveling alone - and driving in California! =)

Well, here's a tip I can give you about travel. See if there is ANY way possible you can fly into the San Jose airport (about a 1/2 hour south of Palo Alto) instead of San FRancisco - - - that place, and driving out of there, is a freaking nightmare!!! And you don't want to start out your trip wtih a nervous breakdown... :blink:

I'm so excited for you, and we'll have to have an area where all of us from this forum meet up!

tarnalberry Community Regular
tarnalberry
Posted
Well, here's a tip I can give you about travel. See if there is ANY way possible you can fly into the San Jose airport (about a 1/2 hour south of Palo Alto) instead of San FRancisco - - - that place, and driving out of there, is a freaking nightmare!!! And you don't want to start out your trip wtih a nervous breakdown... :blink:

I'm so excited for you, and we'll have to have an area where all of us from this forum meet up!

San Jose's the closest airport, but if you can't get a good flight there (don't see why that'd be a problem though), Oakland would probably be easier than San Francisco. I grew up in San Jose and used SFO before, so never really thought of it as a traffic nightmare, more than any other major airport, though. :-P

jayhawkmom Enthusiast
jayhawkmom
Posted

Yep, when I've been getting my quotes, I've been looking at San Jose rather than San Fran!! =)

I've got a decent quote, now I just have to wait for my paycheck at the end of the month!!!!

DingoGirl Enthusiast
DingoGirl
Posted
  • Author

Oh yeah, Tiffany, totally forgot about Oakland.

I grew up in Fresno - and then lived the sleepy tourist burg of Monterey for many years - - driving in San Francisco has always, I believe every single time until the last few years, had me in tears..... :unsure: a total nightmare for the non-native! and jayhawk is from Kansas!!

tarnalberry Community Regular
tarnalberry
Posted
Oh yeah, Tiffany, totally forgot about Oakland.

I grew up in Fresno - and then lived the sleepy tourist burg of Monterey for many years - - driving in San Francisco has always, I believe every single time until the last few years, had me in tears..... :unsure: a total nightmare for the non-native! and jayhawk is from Kansas!!

lol... driving almost anywhere else makes me scream bloody murder at people who can't go over the speed limit, are too chicken to merge at freeway speeds, and let everyone and their brother move over before continuing on. :-) maybe just living in california is it's own "aggresive driving" course. :-P SF, itself, is definitely worse since it's SO dense. definitely avoiding SF (outside of public transportation) is probably a good idea, and doable in that area.

funny, I never think of Montery as sleepy or touristy... I suppose it is, but we'd go there for dinner once or twice a month. good seafood. :-)

dlp252 Apprentice
dlp252
Posted

Cool, all the way from Kansas! How cool! I'm pretty sure I'll be there, so getting together would be great! Besides, I have to meet the keeper of our wonderful dingos. :D I should go ahead and register now so that I will be SURE to go, lol.

lol... driving almost anywhere else makes me scream bloody murder at people who can't go over the speed limit, are too chicken to merge at freeway speeds, and let everyone and their brother move over before continuing on. :-) maybe just living in california is it's own "aggresive driving" course. :-P SF, itself, is definitely worse since it's SO dense. definitely avoiding SF (outside of public transportation) is probably a good idea, and doable in that area.

LOL!!! Yep, I think you're on to something with the "aggressive driving" course. :lol: I will NOT drive in SF! :lol:

DingoGirl Enthusiast
DingoGirl
Posted
  • Author

OH dear....I think I'm one of those (reformed) aggressive drivers.....17 - - that's right - - 17 speeding tickets in my driving history (not one for the last 10 years, though! :rolleyes: )....major tailgater...people hated me... :ph34r:

Yes, Donna, you must come!!! Wish I could bring the dingos....they'll be hanging at my best friend's house, in San Jose.

Oh Tiffany, try living in Monterey for 7 years....pretty sleepy and touristy - you just have to make your own fun and find lots of friends! did so much hiking there....Great places to eat, too, and I ate out many times per week....those were the days..... :)

jayhawkmom Enthusiast
jayhawkmom
Posted

OK, I'm from the KC Metro, so I've got the agressive driving thing down pretty well. Though, I'm sure I still don't rank up there at all with Californians! :blink:;)

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      @Jane02, I hear you about the kale and collard greens. I don't do dairy and must eat green leafies, too, to get sufficient calcium. I must be very careful because some calcium supplements are made from ground up crustacean shells. When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly. This is safe...
    2. Jane02
      - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency. I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently...
    3. knitty kitty
      - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Hello, @Jane02, I take Naturewise D 3. It contains olive oil. Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets. Fractionated coconut oil is not the same as coconut oil used for cooking. Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the...
    4. Scott Adams
      0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

      until
      Hello! Join me and treat yourself to a four-day, three-night restorative gluten-free retreat in a peaceful, private coastal retreat setting near Penobscot Bay in Maine. Dates: April 10-13, 2026 Enjoy engaging classes...
    5. Scott Adams
      - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product.
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,331
    • Most Online (within 30 mins)
      7,748
    Kristy2026
    Newest Member
    Kristy2026
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

    • There are no registered users currently online

  • Upcoming Events

  • Posts

    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Scott Adams · Posted

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By trents · Posted

      Contact them.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.