Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Frustrated And Feeling Dumb


chgomom

Recommended Posts

chgomom Enthusiast

I have totally had to scale down everything to totally all natural, non-packaged, from scartch cooking and eating. The only thing not from scratch are some gluten free cookies, breyers ice cream, and rice bread.

I feel like such a whiny baby...ya know....I look in the fridge and whine to myself (I'm a newbie) and then for a while now as I have been learning how to eat, I would try things I thought were gluten free, or thought would be ok...and I learned....if you aren't sure don't try it. You know...try something and then see if your tummy starts its rumbling....

Anyway.....how stupid am I...I have my answer now to all the crap that had been happening. It just really scary for me, all around. I worry about getting glutened....just stinks....

:((


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



eleep Enthusiast

It gets better with time and you'll adjust to the new habits. I had the same whinyness myself and it's subsided a whole lot -- although it pops up in spurts now and again -- like the other weekend when, determined to eat dinner out, I took my dining cards and a friend and we ended up trying four restaurants before there was one that could comfortably serve me anything (comfortably for me _and_ them, that is).

I've found that it's helpful to have a bunch of failsafe yummy, easy food things around to help me get over the hump when the stress gets too high. I kind of have to swap this around every so often so there's something I can look forward to that I'm not sick of. For instance, after hearing me complain about my low weight and the lactose issues I've been having (dairy is my favorite high fat thing), my therapist -- who'd just returned from Israel -- told me that I needed to go out and make a meal of stuffed grape leaves, olives, avocado-cashew salad, salami and other antipasti treats that were gluten-free and DF -- new inspiration! All things I love -- so I've been eating this stuff joyously for a couple of days now and feeling much more smug than whiny.

tarnalberry Community Regular

Wait until you start having guests over and they start looking in your fridge and are envious of how healthy you are.

It *does* get easier. I know that doesn't help now. But one thing that will help now is to make larger portions and have stuff in the fridge AND freezer at all times as leftovers, so you never *have* to cook.

Ursa Major Collaborator

You're NOT stupid, it's not easy to learn all this stuff, it takes quite a while. I have been at this for nine months now, and still make careless mistakes at times. I think it happens to all of us. And the whiny thing.......well, let's just say I am sure you're not the only one who sees all this food that you can't eat, when you didn't think to buy any easy treats for yourself. Sometimes I open the fridge and just close it again in frustration, because I so totally don't feel like cooking from scratch (I am an excellent cook, but for some reason have always hated cooking). And then I just don't eat for a whole day and grumble instead of how unfair it is!

But eventually I have to decide to just 'get with it' and cook, because I will start feeling really sick if I don't. A few times I finally made myself do it after midnight! Now, that is probably dumb! :huh: I hope that one of these days (maybe when I turn sixty :rolleyes: ) I'll smarten up and get over it. (Right, there goes my image of being so perfect, giving all this great advice and following it, too, ha ha :blink: )

sspitzer5 Apprentice
I have totally had to scale down everything to totally all natural, non-packaged, from scartch cooking and eating. The only thing not from scratch are some gluten free cookies, breyers ice cream, and rice bread.

I feel like such a whiny baby...ya know....I look in the fridge and whine to myself (I'm a newbie) and then for a while now as I have been learning how to eat, I would try things I thought were gluten free, or thought would be ok...and I learned....if you aren't sure don't try it. You know...try something and then see if your tummy starts its rumbling....

Anyway.....how stupid am I...I have my answer now to all the crap that had been happening. It just really scary for me, all around. I worry about getting glutened....just stinks....

:((

I agree. It stinks. I usually deal with it pretty well (after 1.5 years), but I definitely have times when I am whiny and feeling sorry for myself. I think that's ok, it's not an easy thing to deal with. Only people who have had to do it know how hard it is and not just from a food perspective but also in the form of social isolation and a fear of getting sick. Anyway, just know that you aren't alone in feeling that way.

marciab Enthusiast

I get whiny too. And I have to agree with whoever said to add something new to your diet when you get that way. Thinking back, I have done this sooo many times. :D

Ruth52 Newbie

The time I find myself getting really whiny is when we have a social morning tea at my work and everyone turns up with plates of pastries, cakes, and other gluten laden goodies. They all know I can't eat it. But when I turn up with my fruit platter and yogurt dip they demolish it in no time. I wish they would bring something I could eat and then I would know that they had put some thought into the needs of those they work with.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Jhona's topic in Introduce Yourself / Share Stuff
      32

      Does anyone here also have Afib

    2. - knitty kitty replied to lehum's topic in Super Sensitive People
      9

      4.5 years into diagnosis, eating gluten-free and still struggling: would love support, tips, & stories

    3. - Scott Adams replied to Hmart's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Is this celiac?

    4. - Theresa2407 replied to Hmart's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Is this celiac?

    5. - Hmart replied to Hmart's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Is this celiac?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,939
    • Most Online (within 30 mins)
      7,748

    Michelle C.
    Newest Member
    Michelle C.
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • knitty kitty
      @DebJ14, You said "husband has low platelets, bruises easily and gets bloody noses just from Fish Oil  He suggested he take Black Cumin Seed Oil for inflammation.  He discovered that by taking the Black Seed oil, he can eat carbs and not go into A Fib, since it does such a good job of reducing inflammation."   I don't think black seed oil is lowering inflammation.  It's lowering blood glucose levels. Black cumin seed lowers blood glucose levels.  There's a connection between high blood glucose levels and Afib.    Has your husband been checked for diabetes?   Must Read: Associations of high-normal blood pressure and impaired fasting glucose with atrial fibrillation https://pubmed.ncbi.nlm.nih.gov/36750354/  
    • knitty kitty
      Healthy Omega Three fats.  Olive oil or flaxseed oil, oily fish, fatty cuts of meat.   Our bodies run much better on burning fats as fuel.  Diets based on carbohydrates require an increased amount of thiamine to process the carbs into fuel for the body.  Unfortunately, thiamine mononitrate is used to enrich rice.  Thiamine mononitrate is relatively unusable in the body.  So a high carb diet can further decrease thiamine stores in the body.  Insufficient thiamine in the body causes the body to burn body fat and muscle for fuel, so weight loss and muscle wasting occurs.  Those extra carbohydrates can lead to Candida (often confused with mold toxicity) and SIBO (Small Intestinal Bacterial Overgrowth).   Losing weight quickly is a symptom of thiamine insufficiency.  Muscle wasting is a symptom of thiamine insufficiency.  I lost sixty pounds in a month.   Having difficulty putting weight on and keeping it on is a symptom of thiamine insufficiency.   The AIP diet works because it eliminates all grains and grasses, rice, quinoa, all the carbs.  Without the carbs, the Candida and SIBO get starved and die off.  Easy way to change your microbiome is to change what you feed it.  With the rowdy neighbors gone, the intestine can heal and absorb more nutrients.   Supplementing with essential vitamins and minerals is beneficial.  Talk to your doctor and nutritionist.  Benfotiamine is a form of thiamine that promotes intestinal healing.  The eight B vitamins are water soluble, so if you don't need them, they can be gotten rid of easily.   Night shades are excluded on the AIP diet.  Potatoes, tomatoes, peppers and eggplant are not allowed on the AIP diet.  They contain alkaloids that promote "a leaky gut".  Benfotiamine can help here. Sweet potatoes are avoided because they contain thiaminases, chemicals that break thiamine so that the body cannot use it.   The AIP diet has helped me.
    • Scott Adams
      The reaction one gets when they get glutened varies a lot from person to person.  This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):    
    • Theresa2407
      A gluten ingestion can last for many months.  Many years ago there was a celiac conference in Fl.  Everyone there got contaminated with some having difficulty 6 months to recover.  It will hit your Lympatic system and spread  through the body and effect your nevous system as well. Most times when I get glutened it is from a prescription med that wasn't checked close enough.  the Pharmacuticals change vendors all the time.
    • Hmart
      Thank you so much for the responses. Every piece of information helps.  I only knowingly ate gluten once, that was four days ago. I had the reaction about 3-4 hours after consuming it. I’m concerned that after 4 days the symptoms aren’t abating and almost seem worse today than yesterday.  I haven’t had either breath test. I did ask about additional testing but the PA recommended me to a celiac specialist. Unfortunately the first available is mid-December.  As far as diet, I am a pescatarian (have been for 25+ years) and I stopped eating dairy mid-last week as my stomach discomfort continued. Right now, I’m having trouble eating anything. Have mostly been focused on bananas, grapes, nut butters, DF yogurt, eggs, veggie broth.   I ordered some gluten-free meal replacements to help.  But I’ll get all the items (thank goodness for Instacart) and try the diet you recommended to get me past this period of feeling completely awful.  Yes, my doctor diagnosed celiac. I was concerned it wasn’t right based on the negative blood test and my continued symptoms.  Even if you are ‘glutened’ it shouldn’t last forever, right? Is four days too long?   
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.