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Sensation Of Chill


Dyang

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Dyang Apprentice

Do many celiac disease sufferers feel great sensation to cold and get chilled easily?

I have to wear a sweater when most everyone is comfortable with short sleeve. I'd would get sick if I don't wear extra clothing. Docters cannot find thyroid problem.


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ravenwoodglass Mentor
Do many celiac disease sufferers feel great sensation to cold and get chilled easily?

I have to wear a sweater when most everyone is comfortable with short sleeve. I'd would get sick if I don't wear extra clothing. Docters cannot find thyroid problem.

I know I did. I would even have a sweater in summer and lots of blankets on the bed. This did stop after I had been gluten-free a while.

aprilh Apprentice
Do many celiac disease sufferers feel great sensation to cold and get chilled easily?

I have to wear a sweater when most everyone is comfortable with short sleeve. I'd would get sick if I don't wear extra clothing. Docters cannot find thyroid problem.

Yes, thats me right now. Especially when I have eaten something, I get so cold like I have a fever. Its very wierd.

  • 1 month later...
lurven71 Newbie

Being cold all the time is a symptom of thyroid malfunction, and people with celiac disease are more at risk for thyroid problems.

My coldness went away after I went gluten free and my thyroid function improved.

queenofhearts Explorer

I do get the chills big time! Both after meals & at night. I actually warm my side of the bed with a heating pad, because otherwise I lie there & shiver--sometimes my teeth chatter!-- while my husband is perfectly comfortable. My thyroid tests normal but I have a hunch there might be a sub-clinical deficiency, because I have some other symptoms too. But it may also be related to anemia, which I definitely have had for years.

After nearly 3 months gluten-free, I'm just beginning to feel some improvement, so be patient!

IrishKelly Contributor
Do many celiac disease sufferers feel great sensation to cold and get chilled easily?

I have to wear a sweater when most everyone is comfortable with short sleeve. I'd would get sick if I don't wear extra clothing. Docters cannot find thyroid problem.

Oh Yes!! This didn't get better until i was gluten free for at least one month. Hang in there!!

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    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
    • MogwaiStripe
      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
    • Butch68
      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
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