New Here With Some Questions (infant With Possible Celiac?)

[MeganMichelle]

Hi. I'm Megan, I've got a 4 month old daughter whose having a tough time-- trying to keep this short but we're going to see a ped GI next month (soonest they had available) because we have hit a wall -- my daugheter went from breastmilk to milk based formula, to lactose free and then to soy-- and then to Nutramigen (hypoallergenic)-- her spitting up (profuse amounts), gagging, coughing, painful gas and rock hard belly got a bit better but then got worse so we added Prevacid and it seemed to make things worse (she was on the solutabs which have lactose)-- so we went to the packets, again a bit better then abck to worse.

She screams, she writhes crunches up her body, she's gassy, she spits up constantly, her diapers are a gross mucousy green and sludgy.

The only catch is that she is thriving and gaining weight . Would that indicate thatr it's not celiac?

I'd love any advice or experience. THanks.

[Fiddle-Faddle]

Hi, MeganMichelle, welcome aboard! Our resident expert on your subject is right now with her 15-month-old daughter 2 days after open-heart surgery. If you can hang in there another week or two, I bet she'd get back to you soon. In the meantime, try a search on this site for all posts by "TCA"--she's started some threads that will give you a lot of info for starters.

Is there any way you can go back to breastmilk? Even if you have to give it to her in a bottle? TCA discovered (after an enormous amount of experimenting and unbelievable record-keeping!) that what worked for her baby was to use pumped breastmilk--and for HER (TCA) to go on a gluten-free and casein-free diet.

There were also some other very interesting suggestions.

Good luck--sorry I'm not more helpful . Keep us updated, okay?

[AndreaB]

Hi Megan and welcome.

It is possible that your daughter is having a reaction to gluten. Soy and milk can cause problems too. You can't cut out the gluten yet (if any is in her forumulas), and if it is possible to relactate, you can't cut out your gluten yet if you are having blood work and scopes done. At the very least she is having an allergic reaction but it could also be that an intolerance has built up. Does anyone in your family have a gluten intolerance or celiac that you know of? Failure to thrive is often one of the more dramatic clues that a child has celiac or gluten intolerance. My son is at least gluten and soy allergic as he broke out with eczema that didn't clear up until I went totally gluten and soy free. He didn't experience anything else though. We are going to have him tested through enterolab, hopefully later this year. Myself and my two older children are gluten intolerant. I don't know if we are celiac since we didn't go through the doctor but enterolab, which catches the intolerance at a much sooner level due to testing the stool. There is a lot of information on this site and I'm sure many others will jump on and post. There are a lot of babies that seem to be developing celiac or gluten intolerance.