Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

New To Board Have A Few ?

Drip

By Drip
in Coping with Celiac Disease

Recommended Posts

Drip Newbie
Drip
Posted

Hello everyone. I am new to the board and wanted to say hello to everyone. I have a few ??? and I apologize if this post ends up long.

When I was a child ( from when I can remember until I was around 12 or so) I could not eat any wheat products, had to have potato or rice bread, rice cereal, If I did I would get very sick, stomach pains, I would throw up and have diarrhea. All I can remember was that I was a pretty sick little kid. But then I got off the diet, my mother said I grew out of it. For a long time I did not get that sick again. I always felt tired and I have had problem with diarrhea my whole life, but never got really sick like I did when I was a kid. But I am in my 40 now and the last few years I have been really not filling to well.. I have had problems with my stomach and intestines. Very bad gas, blotting, diarrhea, cramping, soreness in my throat, and sores in my mouth. I asked my mom what I had when I was a kid and she said I was cystic, could she have meant CELIAC.

OK, what I am getting to is could they have thought I out grew this sense this would have been in the 60 and 70, it sounds like they know much more today about CELIAC then they did back then and now it is getting worse sense there has been damage done after all these years..

Thanks for any help that anyone can give me.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


lovegrov Collaborator
lovegrov
Posted

It sounds like you most definitely had celiac. Back then, they thought you could "outgrow" because a fair number of people seem to get better when they hit puberty. And then as they get older the symptoms come back. I've seen messages on various boards from a large number of people who went through just this scenario.

Now we know that you're never "cured." Since you're still eating gluten I would go ahead and get tested, but I'm betting you have celiac. Yes, you've been doing damage, but going gluten-free will likely reverse everything (unless you've also developed other autoimmune diseases).

richard

catfish Apprentice
catfish
Posted

Yes, this same thing happened to my sister. I didn't know about it until I was found to have the condition, when my mother suddenly remembered that my older sister had to go wheat-free when she was a child but later "grew out of it". This was just how it was handled back then. :unsure:

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,218
    • Most Online (within 30 mins)
      7,748
    MCAyr
    Newest Member
    MCAyr
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • cristiana
      Hernia symptoms after gluten exposure

      By cristiana · Posted

      Hi there @MCAyr I have a small umbilical hernia which came about during my second pregnancy.   I can just about see it, and feel it, when I stand or sit, but it is far less noticeable when I lie down.  I always know when I am putting on weight because I can get pain and burning near the site, funnily enough not on the hernia itself but either side!  I would imagine bloating could cause the same effect as weight gain. In my case I don't think it is my bowel protruding but a bit of fat  - sorry,  I realise this isn't painting a very pretty picture.  But in truth it is scarcely noticeable.  It has never really got bigger in size. I was rather hoping that it could be operated on but here in the UK they don't seem to operate on every hernia anymore.  My GP isn't remotely worried about it. In a way, I should be thankful - it is like an early warning system that I need to go on a diet! Cristiana
    • Scott Adams
      Hernia symptoms after gluten exposure

      By Scott Adams · Posted

      The hernia description would likely be unrelated to celiac disease, but you'd need to get it checked out by your doctor to be sure it's a hernia.
    • trents
      Hernia symptoms after gluten exposure

      By trents · Posted

      Okay, but the biopsy needs to be done during an active outbreak of dermatitis herpetiformis. So, if you can accomplish that without long term gluten exposure, that should work. How close together does do the dermatitis herpetiformis outbreaks occur in relation to the gluten exposure? It would be helpful to time that out in relation to your dermatology appointment for the biopsy. But one caution I would have about a dermatitis herpetiformis biopsy is that not every dermatologist knows how to do it correctly. The sample needs to be taken from tissue next to the bumps, not from the bumps themselves. But Wheatwacked is correct. A dermatitis herpetiformis diagnosis is definitive proof of celiac disease. However, only about 15% of celiacs develop dermatitis herpetiformis.
    • Wheatwacked
      Hernia symptoms after gluten exposure

      By Wheatwacked · Posted

      That should answer your question about gluten.  Plus a dermatitis herpetiformis diagnosis is definative of celiac disease by itself.  Now you need to decide if you need to to pursue a diagnosis.  For your baby's health, I would assune both you and the baby have Celiac Disease. Eat gluten free and account for the fact that gluten free foods are not fortified.  Make sure to get lots of folate and Choline to prevent neurotube defects.   My son was diagnosed when he was weaned by biopsy in 1976.  Everyone called it just colicky, but his giant abdomen and green and yellow poop said otherwise.  Oh, and dispite general belief, they do not outgrow it.  If you are gluten free then your newborn will be gluten free and testing will not be positive for celiac disease, until the baby starts eating gluten and gets sick.  Why put him through that?  Gluten free household will give him the best health. Just before I started gluten free and one of the reasons I did was that I was lying in bed watching TV when I coughed.  My belly was bloated and I felt sick as a dog.  A bubble, looked like Bazooka bubble gum, popped out of my navel.  I am male, but apparently umbilical hernias are not uncommon in pregnancy.  Mine eventually resolved by itself. Low choline levels in pregnant women raise babies' risk for brain and spinal-cord defects, study shows  "From 180,000 pregnant women screened between 2003 and 2005, the researchers identified 80 whose pregnancies were affected by neural tube defects. Choline, an essential nutrient found in egg yolks, soy, wheat germ and meats, was the only nutrient measured whose blood levels were linked to risk of neural tube defects."  
    • MCAyr
      Hernia symptoms after gluten exposure

      By MCAyr · Posted

      Appreciate the comment thanks yes seems my doc wants to go down the skin biopsy route for dermatitis herpetiformis as don't need to be on gluten-free apparently but we shall see what they say. 
×
×
  • Create New...