Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Questions


tigger61

Recommended Posts

tigger61 Newbie

Hi Everybody,

I am sitting here feeling kind of strange and hoping someone can help with this...I am having some trouble with my stomach in the upper area of the left side abs, it feels like something is trying to pass thru the area and can't. Has anybody else ever had this happen to them before and what can you do about it? I have only been gluten free since Jan 06 for the most part it has been pretty good but I also have IBS to make things ever more fun...I am not sure if I should try to eat something to maybe help or will that make it worse?

Also has anyone lost weight? I am down 23lbs so far and by DH is getting worried about the weight lose,he has been great throughout all of the problems that I have had trying to cope with everything but one thing he does is he is always saying your not eating enough and I eat what I can. I am very lucky to have him and my son they also have gone gluten free with me to help. I'm sorry I am just carrying on.

Any suggestions would be of a great help.

Thank-You,

Tigger61


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



BRUMI1968 Collaborator

Hi. I don't know what to say about the stomach problems...my stomach problems usually are more like feeling green, or feeling like my stomach is full of air...I don't relate right away to your description.

The weight loss thing, on the other hand, is something I'm struggling with. Okay, it's fun to a point, but when is it going to stop? I'm 5 foot 8-1/2 and was weighing about 130 pounds, which is about 10 pounds less than I weighed when I ate wheat two years ago. Now I weigh 125. What's freaky is that I lose about 1/8-1/4 pound every day for a few days...so I've become obsessed about weighing myself every morning. The days I don't poop (they still happen now and again), I stay the same. But if I poop, I lose the weight.

So I started trying to see how much I was eating. Yesterday I felt like I ate a lot, but it was all low cal stuff. I don't eat grains, dairy, beans, soy, or sugar...so basically I eat some meats (new after 15 years of veggie-ism), veggies, some fruits (low on glycemic index - trying to fight off yeast), nuts and seeds, oil, and eggs. It's hard to get a lot of calories this way. I feel awesome most of the time - full of energy like never before - but I just bought a size 26 pair of jeans. I'm 37 years old - size 26 is CRAZY!!!! Well, at least for me. (Admittedly, it was fun jeans shopping for the first time since high school.)

I am going to have to sit down and do some math and try to come up with some ways to manage this. Especially since I want to start exercising more and I don't dare lose more weight if I do that. Maybe when I start exercising, my appetite will get better (it's fine now) and it'll work itself out.

Good luck with your tummy. I know my tummy is loads better w/o the gluten, but we all have to work out the kinks as we go along I guess.

dionnek Enthusiast

yes, I have these pains (feels like someone is stabbing a knife in my left side) all the time. I've only been gluten-free for 2 months now, and they had gone away initially but today they came back. Don't know if it is a symptom of being "glutened" or not, since I still don't feel "normal" yet and don't know when I am accidentaly glutened. I've mentioned this to my dr(s) (I have gone through 9 dr's to finally get diagnosed with celiac) and none of them seem concerned, so I just live with it. Sorry this doesn't help - I had read on here that some people have gall bladder pains, which sounds similar, but that is on the right side, and my pains are always on the left.

lorka150 Collaborator

tigger - from the day of diagnosis i went gluten-free. for about 4.5 months, one product slipped into my diet daily (i didn't know), and i lost about 45lbs. I was extremely tiny, and in the hospital - two doctors had told me I was going to die. I was on the toilet about seventeen times a day. No exaggeration.

One day, i checked a food and realized there it was - sneaky little devil! I removed it immediately, gained 10lbs in two weeks (and kept going up), and realized my mistake. Please check your products.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    2. - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    3. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    4. 0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

    5. - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,334
    • Most Online (within 30 mins)
      7,748

    johnfreirefr
    Newest Member
    johnfreirefr
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.