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Positive Experience At Doctor's Visit

susiek

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susiek Apprentice
susiek
Posted

I went to my doctor's visit on Friday, prepare to be a little demanding. I took the list of tests in the celiac panel, as well as some articles I had found through links here.

All that angst was for nothing since my doctor was pretty knowledgable about gluten intolerance/celiac.

She said that had she known my family history earlier, she would have had me tested before this. Then we went through some of the symptoms, and realized that a lot of these were for things I had talked with her about in the past (feeling dizzy after eating--I thought I was diabetic, but had a recent blood test that said my blood sugars were low; achy hands--I've been x-rayd, tested for lupus and rheumatoid--also a family history).

I did make the comment: "Here I thought I was the healthy one out of the 8 of us."

She stopped writing, looked thoughtful for a moment and said, "You are the lucky one if all you have is celiac. What you have is controlled through diet. What your sisters have with the lupus and rheaumatoid is out of their control. You have an allergy and that's all."

It made me re-think everything and feel better.

So I've been gluten free since Friday afternoon. I already feel different. I actually ate a salad at a local restaurant today (took my own dressing which I am 99% certain is gluten free) and didn't get sick. In the past, it was instantaneous. I did almost cry when I ate a gluten-free cookie it was so awful! lol

Now I wait for the blood test results. Dr. P said if the blood work is borderline, she'll order a biopsy, otherwise I'll get a referral to a dietician right away.

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LKelly8 Rookie
LKelly8
Posted
So I've been gluten free since Friday afternoon. I already feel different. I actually ate a salad at a local restaurant today (took my own dressing which I am 99% certain is gluten free) and didn't get sick. In the past, it was instantaneous. I did almost cry when I ate a gluten-free cookie it was so awful! lol

Now I wait for the blood test results. Dr. P said if the blood work is borderline, she'll order a biopsy, otherwise I'll get a referral to a dietician right away.

Excellent. So nice to hear something positive! :)

What brand of gluten-free cookie did you try? I'm eagerly awaiting my amazon .com order for Mi-Del :wub: Royal Vanilla Sandwich cookies. Their faux Oreos are tasty as well.

debmidge Rising Star
debmidge
Posted

that's a great experience (Dr. knowing what to do/say about celiac). It's good to hear good stuff like that.

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      how much gluten do I need to eat before blood tests?

      By trents · Posted

      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen1Nc7EtAlJyJbU8EhB89ElCGFPRavEQkTFHv9V2Zh1EMAPRno7UajBpLCQ-1JfC5jKUyzfgsf7jN5L6yfZSgjhnwEbg6KKwWrKeghga8W_CAhEEw9N0.eDBrhYWsjgEFud6ZE03iun0-AEaGfNS1q4ILLjZz7Fs&dib_tag=se&keywords=buckwheat%2Bgroats&qid=1769980587&s=grocery&sprefix=buchwheat%2Bgroats%2Cgrocery%2C249&sr=1-4&th=1 Takes about 10 minutes to cook. Incidentally, I don't like quinoa either. Reminds me and smells to me like wet grass seed. When its not washed before cooking it makes me ill because of saponins in the seed coat. Yes, it can be difficult to get much dietary calcium without dairy. But in many cases, it's not the amount of calcium in the diet that is the problem but the poor uptake of it. And too much calcium supplementation can interfere with the absorption of vitamins and minerals in general because it raises gut pH.
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    • catnapt
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