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New To This Topic....questions

tboss

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tboss Newbie
tboss
Posted

After many years of thinking this was just IBS and it getting worse the last year, I was tested today for Celiac. Will know next week something, hopefully. I have a lot of constipation, but then followed by couple days of diarreah (mostly in the morning). Lots of cramping and bad pain. I also have had depression for a few years and I bruise unbelievably easy. Serious reflux for years. Trouble sleeping. Bloated my whole life. Lost at least 10 pounds this year and not trying at all (though that has been nice). My mother is not alive but always had lots of similar problems too.

What are your thoughts? Guess it could be either IBS or Celiac, right?

Those who have gone gluten free, do you end up gaining or losing weight?

What's the biggest differences you see? Do you intestinal symptoms completely

go away? What about reflux?

Thanks for any insight.

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samking72 Rookie
samking72
Posted

Sounds like Celiac. I went gluten free 2 months ago and have lost weigth to my surprise. I went from 135 to 125. I still feel like poop, it hasn't been that long. Don't get me wrong, I feel so so so much better, just not as good as I would like to feel. I went through (still) depression and anxiety attacks. Still very tired, sleep apnea adds to that though. Really bad joints, aside from the artritis. I've always thought of Celiac as party mix... You get a little of everything. It's so much fun. I get heartburn, ALOT. I'm also lactose intolerant, which sucks all in itself. The syptoms haven't gone away completely, just diluted a bit. Celiac is heretitary (sp?) and if you have it's likely that your mother did as well. For me, my sister has it and we're pretty sure our Father and younger sister do too. Hope I answered some of you questions. Keep in touch.

queenofhearts Explorer
queenofhearts
Posted

It definitely sounds like Celiac is a possibility. Are you anemic? (The bruising would be a tip-off.) I had recurrant diarrhea, anemia, arthritis, & migraines for years but not until I developed liver damage did the docs figure out it was Celiac. All the pieces of the puzzle just fell together... I'll bet the same thing happens with you! Good luck, let us know about your diagnosis!

Leah

tboss Newbie
tboss
Posted
  • Author

Thanks. I've had a really bad morning with diarreah, so I'll be glad to find out

what's going on so I can adjust accordingly.

SarMar1026 Newbie
SarMar1026
Posted

Im very new to all of this, and honestly have only been gluten free for a few days, but the results are amazing! my blood sugar seems to be stablized much much better; im not nauseous all day long, its amazing how eliminating certain foods can clear up so much.

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    • catnapt
      how much gluten do I need to eat before blood tests?

      By catnapt · Posted

      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
    • trents
      IBS-D vs Celiac

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      how much gluten do I need to eat before blood tests?

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    • SilkieFairy
      IBS-D vs Celiac

      By SilkieFairy · Posted

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    • catnapt
      anyone here diagnosed with a PARAthyroid disorder? (NOT the thyroid) the calcium controlling glands

      By catnapt · Posted

      learned I had a high PTH level in 2022 suspected to be due to low vit D  got my vit D level up a bit but still have high PTH   I am 70 yrs old (today in fact) I am looking for someone who also has hyperparathyroidism that might be caused by malabsorption    
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