Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Help! Where Do I Begin Figuring Out Other Intolerances?


I'dratherbecycling

Recommended Posts

I'dratherbecycling Rookie

I'm new at this - just diagnosed celiac about 2 1/2 months ago. I definitely feel better without the gluten, when I can actually manage to go a few days without accidentally glutening myself (I keep finding the hard way the gluten in the hidden places like shampoo, and cross-constamined "gluten-free" products) And when I've ingested gluten I usually DEFINITELY know it within about 20 minutes. Takes about 3 days to feel better.

My problem is, I'm still not feeling that great in general - better - but still having stomach pains, gas, fatigue, and that fuzzy head feeling off and on. I'm guessing I'm intolerant to something else? How the heck does one tackle the huge list of all the things that could be causing problems? How long does it take to heal and really feel better after cutting out gluten, especially when I've been glutened several times by accident? Do reactions to foods always happen quickly after ingesting them, or could there be a delay in how long it takes to feel the effects? I've started keeping a food diary, but it's not making things much clearer for me - I'm completely overwhelmed by the task of untangling this.

And to be honest, I'm completely miserable about the idea of having to give up more of the foods I love, and afraid there's going to be nothing left to eat when I'm done!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



covsooze Enthusiast

Hi there. I reckon it's probably too early for you to begin to worry that you might have other intolerances. Even if you weren't still being glutened, you will probably still be feeling the effects of eating gluten for years - it does take quite a while to heal. Others might have a different view, but I'd say concentrate on getting the gluten out of your life - that's hard enough and the most important.

(((hugs)))

AndreaB Contributor

Keeping a food diary is a great idea. I have read of many people doing that and being able to pinpoint other foods that could be causing problems. Do you feel noticeable better gluten free? Did you have testing done? Was there a lot of damage to the villi? If you had damage done casein could be causing you additional problems. Enterolab does test for casein as well as gluten if you really want to pursue that one. They also test for soy/egg/yeast if interested. I had allergy testing done and found out I was allergic to a lot of different foods, most minimally, and then had enterolab done and found out what I was intolerant to. Dairy and Soy tend to be the other two main culprits that cause problems although others have problems with different things. If you want to look into enterolab Open Original Shared Link.

Also, from what I've read, some people bounce back quickly from a gluten attack, others take longer. The same goes for recovery. Although with it being 2 1/2 months I would also tend to think something else is going on. If it is dairy it may not always be a problem, it may just be until the villi heal more. I read somewhere else that the body takes 3 weeks to get over a glutening which is kind of depressing. If you can, give up all dairy for 2-4 weeks and note whether you feel any better, then reintroduce it and see if there is any difference in how you feel.

kabowman Explorer

I went with the food diary route while on a simple, plain diet and was able to pinpoint most of mine but it took a few months. Now, when I start to have an issue, I can usually figure it out within a couple of months without the diary.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,017
    • Most Online (within 30 mins)
      7,748

    Sjcucinotta
    Newest Member
    Sjcucinotta
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • sleuth
      He is not just a psychiatrist.  He is also a neuroscientist.  And yes, I have already read those studies.   I agree with benfotiamine.  This is short term while glutened/inflammation occurs.  As I had already mentioned, these symptoms no longer exist when this phase passes.  And yes, I know that celiac is a disease of malnutrition.  We are working with a naturopath.
    • knitty kitty
      Please do more research before you settle on nicotine. Dr. Paul New house is a psychiatrist.  His latest study involves the effect of nicotine patches on Late Life Depression which has reached no long term conclusions about the benefits.   Effects of open-label transdermal nicotine antidepressant augmentation on affective symptoms and executive function in late-life depression https://pubmed.ncbi.nlm.nih.gov/39009312/   I'm approaching the subject from the Microbiologist's point of view which shows nicotine blocks Thiamine B1 uptake and usage:   Chronic Nicotine Exposure In Vivo and In Vitro Inhibits Vitamin B1 (Thiamin) Uptake by Pancreatic Acinar Cells https://pubmed.ncbi.nlm.nih.gov/26633299/   While supplementation with thiamine in the form Benfotiamine can protect from damage done by  nicotine: Benfotiamine attenuates nicotine and uric acid-induced vascular endothelial dysfunction in the rat https://pubmed.ncbi.nlm.nih.gov/18951979/   I suggest you study the beneficial effects of Thiamine (Benfotiamine and TTFD) on the body and mental health done by Dr. Derrick Lonsdale and Dr. Chandler Marrs.  Dr. Lonsdale had studied thiamine over fifty years.   Hiding in Plain Sight: Modern Thiamine Deficiency https://pmc.ncbi.nlm.nih.gov/articles/PMC8533683/ I suggest you read their book Thiamine Deficiency Disease, Dysautonomia, and High Calorie Malnutrition.     Celiac Disease is a disease of malabsorption causing malnutrition.  Thiamine and benfotiamine: Focus on their therapeutic potential https://pmc.ncbi.nlm.nih.gov/articles/PMC10682628/
    • sleuth
      Thanks for your response.  Everything you mentioned he is and has been doing.  Tobacco is not the same as nicotine.  Nicotine, in the form of a patch, does not cause gastrointestinal irritation.  Smoking does. He is not smoking.  Please do your research before stating false information. Dr. Paul Newhouse has been doing research on nicotine the last 40 years at Vanderbilt University Medical Center.  
    • Jmartes71
      Im so frustrated and still getting the run around trying to reprove my celiac disease which my past primary ignored for 25 years.I understand that theres a ray of medical that doctors are limited too but not listening and telling the patient ( me) that im not as sensitive as I think and NOT celiac!Correction Mr white coat its not what I think but for cause and affect and past test that are not sticking in my medical records.I get sick violently with foods consumed, not eating the foods will show Im fabulous. After many blood draws and going through doctors I have the HLA- DQ2 positive which I read in a study that Iran conducted that the severity in celiac is in that gene.Im glutenfree and dealing with related issues which core issue of celiac isn't addressed. My skin, right eye, left leg diagestive issues affected. I have high blood pressure because im in pain.Im waisting my time on trying to reprove that Im celiac which is not a disease I want, but unfortunately have.It  has taken over my life personally and professionally. How do I stop getting medically gaslight and get the help needed to bounce back if I ever do bounce back to normal? I thought I was in good care with " celiac specialist " but in her eyes Im good.Im NOT.Sibo positive, IBS, Chronic Fatigue just to name a few and its all related to what I like to call a ghost disease ( celiac) since doctors don't seem to take it seriously. 
    • trents
      @Martha Mitchell, your reaction to the lens implant with gluten sounds like it could be an allergic reaction rather than a celiac reaction. It is possible for a celiac to be also allergic to gluten as it is a protein component in wheat, barley and rye.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.