Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How Did You Get To A Dx Of Celiac For Your Child?

mythreesuns

Recommended Posts

mythreesuns Contributor
mythreesuns
Posted

I'm in the process of a gluten-free trial myself for my own issues, but now I'm concerned about my son. He's had chronic diarrhea for more than a year, he went through a period of time where he was sick (throwing up) frequently (a couple of times a month without other obvious sickness) and he was tired a lot and his head hurt.

He went through a multitude of tests and through several channels we discovered that his ANAs came up high on his blood tests and he did get dx's of OCD and Tourette's from his developmental pediatrician.

Well, after what I went through/am going through, I decided to get him tested as well, but I wasn't sure how to go about it. For me, the blood tests and the biopsies came up negative. Is there a better way to test for children? This kid HATES bloodwork (almost passes out) and I can't see putting him through an endoscopy.

Any thoughts?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


azmom3 Contributor
azmom3
Posted
  mythreesuns said:
I'm in the process of a gluten-free trial myself for my own issues, but now I'm concerned about my son. He's had chronic diarrhea for more than a year, he went through a period of time where he was sick (throwing up) frequently (a couple of times a month without other obvious sickness) and he was tired a lot and his head hurt.

He went through a multitude of tests and through several channels we discovered that his ANAs came up high on his blood tests and he did get dx's of OCD and Tourette's from his developmental pediatrician.

Well, after what I went through/am going through, I decided to get him tested as well, but I wasn't sure how to go about it. For me, the blood tests and the biopsies came up negative. Is there a better way to test for children? This kid HATES bloodwork (almost passes out) and I can't see putting him through an endoscopy.

Any thoughts?

You might look into Enterolab. They use a stool sample and I believe you don't even have to be eating gluten at the time of the test as you do with both blood and biopsy, so you could get tested this way also. From what I understand they're tests are very sensitive and may pick up something that the other tests can't. The downside? Expensive and not covered by insurance all the time. Someone on this board can probably give you more information as I'm still new myself and haven't used Enterolab as of yet. good luck!

AndreaB Contributor
AndreaB
Posted

I recommend enterolab. They can't give an official dx but they can tell you whether you have an active gluten intolerance. I had my family done and aside from my husband we are gluten intolerant. I didn't even try to run it through insurance. Enterolab gives you the code break down so you can submit it for reimbursement if they'll cover any of it. Open Original Shared Link

mythreesuns Contributor
mythreesuns
Posted
  • Author

Thanks, I did look into Enterolab for myself and it's just too costly for us at this time. I know that sounds trite, but here it is August 16th and I haven't paid this month's mortgage yet, so I really do mean it when I say we don't have the money. :D

Nic Collaborator
Nic
Posted

Plenty of us can understand the not being able to afford it, don't feel bad :) . If you are really avoiding the blood work for your son you can just try a gluten free challenge with him. If you take it away you should start to see improvement within the next few weeks if he has Celiac. At least that is what I have understood from parents of kids who have D as their symptom as well as my father who is a Celiac. My son on the other hand had constipation and therefore took about 3 months to see improvement.

Nicole

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      130,079
    • Most Online (within 30 mins)
      7,748
    Roderick
    Newest Member
    Roderick
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Wheatwacked
      Should I ask for more testing? Celiac vs. Gluten Sensitivity

      By Wheatwacked · Posted

      It seems the "fad" diet is working for you.  
    • Mari
      Upset stomach

      By Mari · Posted

      Hi Vicky'  If you are hesitant to visit your medical provider and if this discomfort persists you may choose to do that. I do have some suggestions and how ai have delt with digestive problems not caused by gluten but likely a result of having the autoimmune reaction in my small intestine for all the years before going gluten free. Before I stopped eating gluten I had a leaky gut. The gluten inflammatory reaction let other food molecules get just far enough into the wall of the small intestine to be recognized as invaders so I began reacting to them at a very low level, not very noticeable.  When you eat a meal it goes into the stomach and is liquified in a highly acid environment. This may...
    • Wheatwacked
      Is it common to develop a wheat allergy in addition to Celiac Disease?

      By Wheatwacked · Posted

      Hi @Stephanie Wakeman, Get your vitamind D blood level checked and supplement to raise to around 80 ng/dl or 200 nmol/L.  This is the natural upper limit and provides the best immune system. Vitamin D plays a role in regulating the immune system, and low levels may impair the immune system's ability to control allergic responses.  Vitamin D deficiency may be linked to an increased risk of developing allergies and experiencing more severe allergic reactions.  Vitamin D is one of many vitamin deficiencies caused by small intestine damage so unless you get enough sunlight or taking large doses of vitamin D, you will be deficient.      
    • RMJ
      Damage after 13 years gluten free

      By RMJ · Posted

      I’m frustrated with celiac disease and my current gastroenterologist (GI). I’ve been gluten free for almost 13 years, with normal antibodies for almost 8 years - except for one excursion of my DGP IgA 5 years ago which returned to normal when I changed brands of gluten free flour. All 4 celiac antibodies were positive 13 years ago but I didn’t have an endoscopy for reasons unrelated to celiac disease.  I did have one 9 years ago. The DGP IgA was still slightly elevated, GI saw some blunted villi visually, biopsy showed “patchy mild increase in intraepithelial lymphocytes” and “focal mild villous blunting” (Marsh 3A). For the past few years I’ve had intermittent trouble with nausea and...
    • Pablohoyasaxa
      Is it common to develop a wheat allergy in addition to Celiac Disease?

      By Pablohoyasaxa · Posted

      I was diagnosed with gluten sensitivity and a wheat allergy as a child in the early 1960s, . which I inherited from my father's DNA. My mom tried the best she could with both of us, but in those times health and allergies were kind of brushed aside.  I grew out of it, or so we thought, but the rashes reared their ugly heads while I was in college. Keg parties (wheat & gluten in beer and youthful reckess eating led to an outbreak. To the point, I am a 65 year old and now living with full blown celiac with dermatitis herpetiformis blisters that are just beginning to receed after being gluten-free for over 2 years at least. The lesions are so unsightly that I need to stay covered. Ive been living in...
×
×
  • Create New...