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ramsfan1

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ramsfan1 Rookie

To make a long story short, i was diagnosed with IBS a few years ago. About a year ago i started to get red itchy skin on my face and was diagnosed with a form of eczema. The eczema has never truly gone away and i had no idea about allergies cause my doctor, dermatologist, GI specialist never mentioned it whatsoever. I got a flare up with my stomach like 7 months ago and it sucked. I couldn't leave the house. Well it eventually got better, but fast forward to a few weeks ago and its even worse now. Excess gas, bloating, constipation, heart burn that i've never even had before. At this point, my Eczema is almost as bad as its ever been. Now that i've discovered food allergies i am very suspicous that i could have celiacs disease or an allergy. I am almost positive i am allergic to wheat, soy, or milk. Either that or i have celiacs. Let me sum this up:

My symptoms:

Constipation

Heart Burn

Eczema(seborreac dermatitis)

Excess gas

Bloating

Canker Sores

Runny nose(may be unrelated)

Bad memory

Anxiety

What I think i might have:

Celiacs

Milk Allergy

Soy Allergy

Wheat Allergy

So i really really think all of these symptoms are related to each other and its taken me 5 years to figure this out and doctors are worthless. Where do i begin? Do i get a blood test for Celiacs, or take the stool test from enterolab? I'm also a poor college kid and very impatient, and i know this could take weeks or months to diagnose and its killing me. I'm afraid i'm gonna spend all that money to take a test and it could be negative, and be right back where i started. Also, the elimination diet will be extremely hard cause everything in my house has wheat in it practically and i can't really cook. Any suggestions on where to start first? My mind is saying just take the test and find out for sure. EDIT- i meant to put this in pre-diagnosis.


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eKatherine Apprentice
So i really really think all of these symptoms are related to each other and its taken me 5 years to figure this out and doctors are worthless. Where do i begin? Do i get a blood test for Celiacs, or take the stool test from enterolab? I'm also a poor college kid and very impatient, and i know this could take weeks or months to diagnose and its killing me. I'm afraid i'm gonna spend all that money to take a test and it could be negative, and be right back where i started. Also, the elimination diet will be extremely hard cause everything in my house has wheat in it practically and i can't really cook. Any suggestions on where to start first? My mind is saying just take the test and find out for sure. EDIT- i meant to put this in pre-diagnosis.

It looks like it is highly probable that you've got it. Testing is not necessary. You can test yourself with the diet...BUT...

As you say, your house is full of gluten and you don't cook. These things will both need to change. You need to sit down and figure out what you can eat and plan your diet around that. Rice is good and really cheap. Get yourself a sack of plain rice and a rice cooker - much cheaper than a blood test - then learn how to use it. With the internet as a research source, you can figure out how to prepare just about anything. Set yourself a goal of learning to fix something new on a regular basis.

You know what you need to do.

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    • trents
      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen1Nc7EtAlJyJbU8EhB89ElCGFPRavEQkTFHv9V2Zh1EMAPRno7UajBpLCQ-1JfC5jKUyzfgsf7jN5L6yfZSgjhnwEbg6KKwWrKeghga8W_CAhEEw9N0.eDBrhYWsjgEFud6ZE03iun0-AEaGfNS1q4ILLjZz7Fs&dib_tag=se&keywords=buckwheat%2Bgroats&qid=1769980587&s=grocery&sprefix=buchwheat%2Bgroats%2Cgrocery%2C249&sr=1-4&th=1 Takes about 10 minutes to cook. Incidentally, I don't like quinoa either. Reminds me and smells to me like wet grass seed. When its not washed before cooking it makes me ill because of saponins in the seed coat. Yes, it can be difficult to get much dietary calcium without dairy. But in many cases, it's not the amount of calcium in the diet that is the problem but the poor uptake of it. And too much calcium supplementation can interfere with the absorption of vitamins and minerals in general because it raises gut pH.
    • Scott Adams
      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
    • Scott Adams
      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
    • catnapt
      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
    • trents
      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
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