Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

No Villi........no Dairy :(

Lily

Recommended Posts

Lily Rookie
Lily
Posted

My doctor says that if you have flattened villi you are lactose intolerant. I guess the end of those villi produce the needed enzyme to digest dairy. Does anyone know if the villi grow back?

I like cheese so will miss it. I've heard there is rice cheese and soy cheese, anyone tried it?

:blink: I'm still trying to get adjusted to the gluten-free diet, I could be doing better but coming here really helps.

Lily

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


seeking-wholeness Explorer
seeking-wholeness
Posted

Lily, the villi do grow back, so you may be able to tolerate dairy products again once you heal. This may take several months, though! It's also possible that you are sensitive to casein, a milk protein that looks enough like gluten that many celiacs cross-react to it--in which case, the dairy would need to stay out of your diet for good. I hope you are just lactose-intolerant and that your villi heal quickly, so you can enjoy your favorite cheeses again!

erica Rookie
erica
Posted

There are plenty of dairy free yummy cheeses out there. Go to your local health food store and try some. Also, try cheese made out of goats milk- they can be milder on the stomach and easier to tolerate. Good luck!

Lily Rookie
Lily
Posted
  • Author

Thanks for the information! Sarah, I appreciate the breakdown between lactose and casein, I thought they were the same thing.

Lily

Connie R-E Apprentice
Connie R-E
Posted

Lily,

It only took us 1 month for being dairy-free before we could go back to eating dairy!

I hope you heal quickly!

Good luck!

Connie

Guest shar4
Guest shar4
Posted

Here's where coming to this site is so helpful. No one told me that I should avoid dairy, when I was diagnosed. :o I have now been gluten-free since Halloween. I have not had any problems with diary, and I have yogurt for lunch nearly every day. Should I still try to avoid dairy for a while, even though I don't have any problems from it??

Thanks for the help.

Sharon

seeking-wholeness Explorer
seeking-wholeness
Posted

Sharon, I don't think it's automatically necessary to avoid dairy, though it certainly wouldn't hurt to try it. If the damage to your intestines is only patchy, you may still be able to produce enough lactase in the intact areas to digest dairy with no problem. I hope that's the case for you!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Guest shar4
Guest shar4
Posted

Thanks, Sarah, I often feel like a moron, but it is so helpful to know that I can come here and get answers. Again, learn as we go.... <_<

I have noticed, too, that although I didn't seem to suffer a lot of gasto symptoms before diagnosis, (I was mind numbingly tired, and very pale, and had lots of gas) now I find that if I make a boo-boo, I am much more sensitive, with headaches, some diarrhea, and abdominal bloating.

Thanks again.

Sharon :)

seeking-wholeness Explorer
seeking-wholeness
Posted

Sharon,

You're not a moron! You're here and you're trying to heal and learning as you go, which all speak well for your wisdom! I've just been insatiably curious about medical things ever since I was a child, so I tend to soak up medical knowledge like a sponge. My friends tease me by saying that if I'm down in the dumps, all they need to do is start a conversation about death and disease to cheer me up! :lol:

I've also gotten a lot more sensitive since I went gluten-free. It seems to be fairly common. I'm so glad I finally figured out what was wrong with me! It's wonderful to feel like I might actually be truly healthy one day.

I hope you are doing well!

Guest shar4
Guest shar4
Posted

Sarah-- Thanks for the encouragement. I feel so much better than I did a year ago, that it amazes me. When I feel good, I feel REALLY good!!! It's the coolest thing!!! :D

But anyway, like I said, its great to come here and get questions answered. I work full time, and I like to come here, because no one is condescending or makes anybody feel bad for having questions. I could write non stop for a month and still have questions.

Sharon

PS can't wait til we get a chat feature, so I can talk at everybody!!!

Lily Rookie
Lily
Posted
  • Author

Hi there,

I tried Silk brand soy yogurt the other day and it was very good. I tried the blueberry, but will definitely buy it again. Yum, all is not lost. Thanks you guys!

Lily

Liz Newbie
Liz
Posted

I'm new to the forum. My son (28) was diagnosed a celiac in Nov. - right before he came home for Thanksgiving dinner. He is on a gluten-free diet but is feeling only "slightly better." He was eating salads for lunch and can no longer eat them due to bloating, etc. He consumes lots of dairy as he was also diagnosed with "bone-thinning." He notices that corn also causes him problems. He is getting very discouraged.

Lily Rookie
Lily
Posted
  • Author

Liz,

Hopefully your son can come here for some support. I too have problems with raw vegetables, I'm too sensitive at this time. I also can't handle dairy for now. I find I feel much better if I'm not eating any pre-fab foods. I personally can't eat at a salad bar because of the stuff they spray to keep it fresh, makes me very ill. It's very frustrating to go into a normal grocery store and note that you can't eat the majority of the things they sell. Has he tried finding a good health food store? I've found quite a few alternatives there. I too was complaining about not feeling better yet, my nutritionist says it'll take a couple of months to feel a little better and about 6 months to feel a lot better. I'm at the beginning of my special diet and not feeling so well either.

Blessings to your son and hope he feels well soon.

Lily

  • 2 weeks later...
stella Newbie
stella
Posted

Hi. I'm very new to all this. It's my first time on this site and I'm feeling comforted already. I've been on the gluten-free diet for six weeks and although I was not having tummy troubles before (other things led to the diagnosis) I am now. Just in the last week I have been having uncomfortable tummy aches with bloating and burping for a two hours after I eat (this doesn't happen after every meal). Does this sound like a dairy problem? I've never had a problem before but something is causing this. I would love to hear any info you might have about this. Thank you.

Lily Rookie
Lily
Posted
  • Author

Dairy could definitely be a problem. I thought I was doing so well being gluten free but I was still sick! I never knew about the dairy until then. Once everything heals up, I'm hoping to add dairy back into my diet.

Good luck!

Lily

flagbabyds Collaborator
flagbabyds
Posted

I was Dairy-free for the first year and then I was able to tolerate all the dairy foods for the last 10 years and have been fine. So just wait a year and then try slowly reintroducing dairy, if you get sick from it then stop.

molly d-s

  • 2 weeks later...
EmilyP2004 Newbie
EmilyP2004
Posted
My doctor says that if you have flattened villi you are lactose intolerant.  I guess the end of those villi produce the needed enzyme to digest dairy.  Does anyone know if the villi grow back? 

I like cheese so will miss it.  I've heard there is rice cheese and soy cheese, anyone tried it?

:blink: I'm still trying to get adjusted to the gluten-free diet, I could be doing better but coming here really helps.

Lily

You should be tested for lactose intolerance before giving up milk & milk products.

If you have damaged villi due to celiac disease the microvilli (on the tips of those villi) which normally deal with lactose may be temporarily damaged, too.

When you cut out or cut down on lactose the microvilli re-grow & can work again.

The condition can be resolved by cutting out lactose- containing items for a few months or weeks if you are lactose (milk sugar) intolerant.

I had L I for several months after being diagnosed with celiac disease but was still able to digest hard cheese, gluten-free yogurt and goat's milk & cheese OK since these are very low in lactose.

I can now drink some ordinary milk each day without any reaction but have soy milk or lactose-reduced milk as my main milk.

tammy Community Regular
tammy
Posted

Hi Flagbabyds,

Were you lactose intolerant or allergic to dairy?

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. trents
      - trents replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      IBS-D vs Celiac

      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
    2. trents
      - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      how much gluten do I need to eat before blood tests?

      Under the circumstances, your decision to have the testing done on day 14 sounds very reasonable. But I think by now you know for certain that you either have celiac disease or NCGS and either way you absolutely need to eliminate gluten from your diet. I don't think you have to have an official diagnosis of celiac disease to leverage gluten free service in...
    3. SilkieFairy
      - SilkieFairy posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      IBS-D vs Celiac

      After the birth of my daughter nearly 6 years ago, my stools changed. They became thin if they happened to be solid (which was rare) but most of the time it was Bristol #6 (very loose and 6-8x a day). I was on various medications and put it down to that. A few years later I went on this strict "fruit and meat" diet where I just ate meat, fruit, and squash...
    4. catnapt
      - catnapt posted a topic in Related Issues & Disorders
      0

      anyone here diagnosed with a PARAthyroid disorder? (NOT the thyroid) the calcium controlling glands

      learned I had a high PTH level in 2022 suspected to be due to low vit D got my vit D level up a bit but still have high PTH I am 70 yrs old (today in fact) I am looking for someone who also has hyperparathyroidism that might be caused by malabsorption
    5. catnapt
      - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      how much gluten do I need to eat before blood tests?

      I am on day 13 of eating gluten and have decided to have the celiac panel done tomorrow instead of Wed. (and instead of extending it a few more weeks) because I am SO incredibly sick. I have almost no appetite and am not able to consume the required daily intake of calcium to try to keep up with the loss of calcium from the high parathyroid hormone...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,323
    • Most Online (within 30 mins)
      7,748
    James Minton
    Newest Member
    James Minton
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • trents
      IBS-D vs Celiac

      By trents · Posted

      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
    • trents
      how much gluten do I need to eat before blood tests?

      By trents · Posted

      Under the circumstances, your decision to have the testing done on day 14 sounds very reasonable. But I think by now you know for certain that you either have celiac disease or NCGS and either way you absolutely need to eliminate gluten from your diet. I don't think you have to have an official diagnosis of celiac disease to leverage gluten free service in hospitals or institutional care and I'm guessing your physician would be willing to grant you a diagnosis of gluten sensitivity (NCGS) even if your celiac testing comes up negative. Also, you need to be aware that oats (even gluten free oats) is a common cross reactor in the celiac community. Oat protein (avenin) is similar to gluten. You might want to look at some other gluten free hot  breakfast cereal alternatives.
    • SilkieFairy
      IBS-D vs Celiac

      By SilkieFairy · Posted

      After the birth of my daughter nearly 6 years ago, my stools changed. They became thin if they happened to be solid (which was rare) but most of the time it was Bristol #6 (very loose and 6-8x a day). I was on various medications and put it down to that. A few years later I went on this strict "fruit and meat" diet where I just ate meat, fruit, and squash vegetables. I noticed my stools were suddenly formed, if a bit narrow. I knew then that the diarrhea was probably food related not medication related. I tried following the fodmap diet but honestly it was just too complicated, I just lived with pooping 8x a day and wondering how I'd ever get and keep a job once my children were in school.  This past December I got my yearly bloodwork and my triglycerides were high. I looked into Dr. William Davis (wheat belly author) and he recommended going off wheat and other grains. This is the first time in my life I was reading labels to make sure there was no wheat. Within 2 weeks, not only were my stools formed and firm but I was only pooping twice a day, beautiful formed Bristol #4.  Dr. Davis allows some legumes, so I went ahead and added red lentils and beans. Nervous that the diarrhea would come back if I had IBS-D. Not only did it not come back, it just made my stools even bigger and beautiful. Still formed just with a lot more width and bulk. I've also been eating a lot of plant food like tofu, mushrooms, bell peppers, hummus etc which I thought was the cause of my diarrhea before and still, my stools are formed. In January I ran a genetics test because I knew you had to have the genes for celiac. The report came back with  DQ 2.2 plus other markers that I guess are necessary in order for it to be possible to have celiac. Apparently DQ 2.2 is the "rarer" kind but based on my report it's genetically possible for me to have celiac.  I know the next step is to bring gluten back so I can get testing but I am just not wanting to do that. After suffering with diarrhea for years I can't bring myself to do it right now. So that is where I am!   
    • catnapt
      anyone here diagnosed with a PARAthyroid disorder? (NOT the thyroid) the calcium controlling glands

      By catnapt · Posted

      learned I had a high PTH level in 2022 suspected to be due to low vit D  got my vit D level up a bit but still have high PTH   I am 70 yrs old (today in fact) I am looking for someone who also has hyperparathyroidism that might be caused by malabsorption    
    • catnapt
      how much gluten do I need to eat before blood tests?

      By catnapt · Posted

      I am on day 13 of eating gluten  and have decided to have the celiac panel done tomorrow instead of Wed. (and instead of extending it a few more weeks) because I am SO incredibly sick. I have almost no appetite and am not able to consume the required daily intake of calcium to try to keep up with the loss of calcium from the high parathyroid hormone and/or the renal calcium leak.    I have spent the past 15 years working hard to improve my health. I lost 50lbs, got off handfuls of medications, lowered my cholesterol to enviable levels, and in spite of having end stage osteoarthritis in both knees, with a good diet and keeping active I have NO pain in those joints- til now.  Almost all of my joints hurt now I feel like someone has repeatedly punched me all over my torso- even my ribs hurt- I have nausea, gas, bloating, headache, mood swings, irritability, horrid flatulence (afraid to leave the house or be in any enclosed spaces with other people- the smell would knock them off their feet) I was so sure that I wanted a firm diagnosis but now- I'm asking myself is THIS worth it? esp over the past 2 yrs I have been feeling better and better the more I adjusted my diet to exclude highly refined grains and processed foods. I didn't purposely avoid gluten, but it just happened that not eating gluten has made me feel better.   I don't know what I would have to gain by getting a definitive diagnosis. I think possibly the only advantage to a DX would be that I could insist on gluten-free foods in settings where I am unable to have access to foods of my choice (hospital, rehab, nursing home)  and maybe having a medical reason to see a dietician?   please let me know if it's reasonable to just go back to the way I was eating.  Actually I do plan to buy certified gluten-free oats as that is the only grain I consume (and really like) so there will be some minor tweaks I hope and pray that I heal quickly from any possible damage that may have been done from 13 days of eating gluten.    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.