Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

No Villi........no Dairy :(


Lily

Recommended Posts

Lily Rookie

My doctor says that if you have flattened villi you are lactose intolerant. I guess the end of those villi produce the needed enzyme to digest dairy. Does anyone know if the villi grow back?

I like cheese so will miss it. I've heard there is rice cheese and soy cheese, anyone tried it?

:blink: I'm still trying to get adjusted to the gluten-free diet, I could be doing better but coming here really helps.

Lily


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



seeking-wholeness Explorer

Lily, the villi do grow back, so you may be able to tolerate dairy products again once you heal. This may take several months, though! It's also possible that you are sensitive to casein, a milk protein that looks enough like gluten that many celiacs cross-react to it--in which case, the dairy would need to stay out of your diet for good. I hope you are just lactose-intolerant and that your villi heal quickly, so you can enjoy your favorite cheeses again!

erica Rookie

There are plenty of dairy free yummy cheeses out there. Go to your local health food store and try some. Also, try cheese made out of goats milk- they can be milder on the stomach and easier to tolerate. Good luck!

Lily Rookie

Thanks for the information! Sarah, I appreciate the breakdown between lactose and casein, I thought they were the same thing.

Lily

Connie R-E Apprentice

Lily,

It only took us 1 month for being dairy-free before we could go back to eating dairy!

I hope you heal quickly!

Good luck!

Connie

Guest shar4

Here's where coming to this site is so helpful. No one told me that I should avoid dairy, when I was diagnosed. :o I have now been gluten-free since Halloween. I have not had any problems with diary, and I have yogurt for lunch nearly every day. Should I still try to avoid dairy for a while, even though I don't have any problems from it??

Thanks for the help.

Sharon

seeking-wholeness Explorer

Sharon, I don't think it's automatically necessary to avoid dairy, though it certainly wouldn't hurt to try it. If the damage to your intestines is only patchy, you may still be able to produce enough lactase in the intact areas to digest dairy with no problem. I hope that's the case for you!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guest shar4

Thanks, Sarah, I often feel like a moron, but it is so helpful to know that I can come here and get answers. Again, learn as we go.... <_<

I have noticed, too, that although I didn't seem to suffer a lot of gasto symptoms before diagnosis, (I was mind numbingly tired, and very pale, and had lots of gas) now I find that if I make a boo-boo, I am much more sensitive, with headaches, some diarrhea, and abdominal bloating.

Thanks again.

Sharon :)

seeking-wholeness Explorer

Sharon,

You're not a moron! You're here and you're trying to heal and learning as you go, which all speak well for your wisdom! I've just been insatiably curious about medical things ever since I was a child, so I tend to soak up medical knowledge like a sponge. My friends tease me by saying that if I'm down in the dumps, all they need to do is start a conversation about death and disease to cheer me up! :lol:

I've also gotten a lot more sensitive since I went gluten-free. It seems to be fairly common. I'm so glad I finally figured out what was wrong with me! It's wonderful to feel like I might actually be truly healthy one day.

I hope you are doing well!

Guest shar4

Sarah-- Thanks for the encouragement. I feel so much better than I did a year ago, that it amazes me. When I feel good, I feel REALLY good!!! It's the coolest thing!!! :D

But anyway, like I said, its great to come here and get questions answered. I work full time, and I like to come here, because no one is condescending or makes anybody feel bad for having questions. I could write non stop for a month and still have questions.

Sharon

PS can't wait til we get a chat feature, so I can talk at everybody!!!

Lily Rookie

Hi there,

I tried Silk brand soy yogurt the other day and it was very good. I tried the blueberry, but will definitely buy it again. Yum, all is not lost. Thanks you guys!

Lily

Liz Newbie

I'm new to the forum. My son (28) was diagnosed a celiac in Nov. - right before he came home for Thanksgiving dinner. He is on a gluten-free diet but is feeling only "slightly better." He was eating salads for lunch and can no longer eat them due to bloating, etc. He consumes lots of dairy as he was also diagnosed with "bone-thinning." He notices that corn also causes him problems. He is getting very discouraged.

Lily Rookie

Liz,

Hopefully your son can come here for some support. I too have problems with raw vegetables, I'm too sensitive at this time. I also can't handle dairy for now. I find I feel much better if I'm not eating any pre-fab foods. I personally can't eat at a salad bar because of the stuff they spray to keep it fresh, makes me very ill. It's very frustrating to go into a normal grocery store and note that you can't eat the majority of the things they sell. Has he tried finding a good health food store? I've found quite a few alternatives there. I too was complaining about not feeling better yet, my nutritionist says it'll take a couple of months to feel a little better and about 6 months to feel a lot better. I'm at the beginning of my special diet and not feeling so well either.

Blessings to your son and hope he feels well soon.

Lily

  • 2 weeks later...
stella Newbie

Hi. I'm very new to all this. It's my first time on this site and I'm feeling comforted already. I've been on the gluten-free diet for six weeks and although I was not having tummy troubles before (other things led to the diagnosis) I am now. Just in the last week I have been having uncomfortable tummy aches with bloating and burping for a two hours after I eat (this doesn't happen after every meal). Does this sound like a dairy problem? I've never had a problem before but something is causing this. I would love to hear any info you might have about this. Thank you.

Lily Rookie

Dairy could definitely be a problem. I thought I was doing so well being gluten free but I was still sick! I never knew about the dairy until then. Once everything heals up, I'm hoping to add dairy back into my diet.

Good luck!

Lily

flagbabyds Collaborator

I was Dairy-free for the first year and then I was able to tolerate all the dairy foods for the last 10 years and have been fine. So just wait a year and then try slowly reintroducing dairy, if you get sick from it then stop.

molly d-s

  • 2 weeks later...
EmilyP2004 Newbie
My doctor says that if you have flattened villi you are lactose intolerant.  I guess the end of those villi produce the needed enzyme to digest dairy.  Does anyone know if the villi grow back? 

I like cheese so will miss it.  I've heard there is rice cheese and soy cheese, anyone tried it?

:blink: I'm still trying to get adjusted to the gluten-free diet, I could be doing better but coming here really helps.

Lily

You should be tested for lactose intolerance before giving up milk & milk products.

If you have damaged villi due to celiac disease the microvilli (on the tips of those villi) which normally deal with lactose may be temporarily damaged, too.

When you cut out or cut down on lactose the microvilli re-grow & can work again.

The condition can be resolved by cutting out lactose- containing items for a few months or weeks if you are lactose (milk sugar) intolerant.

I had L I for several months after being diagnosed with celiac disease but was still able to digest hard cheese, gluten-free yogurt and goat's milk & cheese OK since these are very low in lactose.

I can now drink some ordinary milk each day without any reaction but have soy milk or lactose-reduced milk as my main milk.

tammy Community Regular

Hi Flagbabyds,

Were you lactose intolerant or allergic to dairy?

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,544
    • Most Online (within 30 mins)
      7,748

    Jem68
    Newest Member
    Jem68
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Beverage
      I had a very rough month after diagnosis. No exaggeration, lost so much inflammatory weight, I looked like a bag of bones, underneath i had been literally starving to death. I did start feeling noticeably better after a month of very strict control of my kitchen and home. What are you eating for breakfast and lunch? I ignored my doc and ate oats, yes they were gluten free, but some brands are at the higher end of gluten free. Lots of celics can eat Bob's Red Mill gluten-free oats, but not me. I can now eat them, but they have to be grown and processed according to the "purity protocol" methods. I mail order them, Montana Gluten-Free brand. A food and symptoms and activities log can be helpful in tracking down issues. You might be totally aware, but I have to mention about the risk of airborne gluten. As the doc that diagnosed me warned . . Remember eyes, ears, nose, and mouth all lead to your stomach and intestines.  Are you getting any cross contamination? Airborne gluten? Any pets eating gluten (they eat it, lick themselves, you pet them...)? Any house remodeling? We live in an older home, always fixing something. I've gotten glutened from the dust from cutting into plaster walls, possibly also plywood (glues). The suggestions by many here on vitamin supplements also really helped me. I had some lingering allergies and asthma, which are now 99% gone. I was taking Albuterol inhaler every hour just to breathe, but thiamine in form of benfotiamine kicked that down to 1-2 times a day within a few days of starting it. Also, since cutting out inflammatory seed oils (canola, sunflower, grapeseed, etc) and cooking with real olive oil, avocado oil, ghee, and coconut oil, I have noticed even greater improvement overall and haven't used the inhaler in months! It takes time to weed out everything in your life that contains gluten, and it takes awhile to heal and rebuild your health. At first it's mentally exhausting, overwhelming, even obsessive, but it gets better and second nature.
    • Jsingh
      Hi,  I care for my seven year old daughter with Celiac. After watching her for months, I have figured out that she has problem with two kinds of fats- animal fat and cooking oils. It basically makes her intestine sore enough that she feels spasms when she is upset. It only happens on days when she has eaten more fat than her usual every day diet. (Her usual diet has chia seeds, flaxseeds, and avocado/ pumpkin seeds for fat and an occasional chicken breast.) I stopped using cooking oils last year, and when I reintroduced eggs and dairy, both of which I had held off for a few months thinking it was an issue of the protein like some Celiac patients habe mentioned to be the case, she has reacted in the same fashion as she does with excess fats. So now I wonder if her reaction to dairy and eggs is not really because of protein but fat.   I don't really have a question, just wondering if anyone finds this familiar and if it gets better with time.  Thank you. 
    • Chanda Richard
      Hello, My name is Chanda and you are not the only one that gose through the same things. I have found that what's easiest for me is finding a few meals each week that last. I have such severe reactions to gluten that it shuts my entire body down. I struggle everyday with i can't eat enough it feels like, when I eat more I lose more weight. Make sure that you look at medication, vitamins and shampoo and conditioner also. They have different things that are less expensive at Walmart. 
    • petitojou
      Thank you so much! I saw some tips around the forum to make a food diary and now that I know that the community also struggles with corn, egg and soy, the puzzle pieces came together! Just yesterday I tried eating eggs and yes, he’s guilty and charged. Those there are my 3 combo nausea troublemakers. I’m going to adjust my diet ☺️ Also thank you for the information about MCAS! I’m from South America and little it’s talked about it in here. It’s honestly such a game changer now for treatment and recovery. I know I’m free from SIBO and Candida since I’ve been tested for it, but I’m still going to make a endoscopy to test for H. Pylori and Eosinophilic esophagitis (EoE). Thank you again!! Have a blessed weekend 🤍
    • knitty kitty
      Yes, I, too, have osteoporosis from years of malabsorption, too.  Thiamine and magnesium are what keep the calcium in place in the bones.  If one is low in magnesium, boron, selenium, zinc, copper, and other trace minerals, ones bone heath can suffer.  We need more than just calcium and Vitamin D for strong bones.  Riboflavin B 2, Folate B 9 and Pyridoxine B 6 also contribute to bone formation and strength.   Have you had your thyroid checked?  The thyroid is important to bone health as well.  The thyroid uses lots of thiamine, so a poorly functioning thyroid will affect bone heath.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.