Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Lab Results Negative For (big Words) But Positive For...

capecodda

Recommended Posts

capecodda Rookie
capecodda
Posted

H. Pylori. Ok..so I do have high H. Pylori but it was multigrain oatmeal that got me to the Drs. and I have many symptoms that really fit with Celiac. The page that uses words like t-Transgutaminase (tTG) IgA...Antigliadin ABS. Amylase, Lipase..etc etc came out negative. My question is, can one still have Celiac with such a shining report? It appears that the Dr knew the correct tests to do. I clearly am responding well and immediate improvement with excluding the bad grains from my diet. Unsure about corn though..as I seem to have a rapid heartbeat after eating that as I did when ingesting the mulrigrain stuff. Could be the H Pylori bacteria is also making digestion harder in general.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


capecodda Rookie
capecodda
Posted
  • Author
H. Pylori. Ok..so I do have high H. Pylori but it was multigrain oatmeal that got me to the Drs. and I have many symptoms that really fit with Celiac. The page that uses words like t-Transgutaminase (tTG) IgA...Antigliadin ABS. Amylase, Lipase..etc etc came out negative. My question is, can one still have Celiac with such a shining report? It appears that the Dr knew the correct tests to do. I clearly am responding well and immediate improvement with excluding the bad grains from my diet. Unsure about corn though..as I seem to have a rapid heartbeat after eating that as I did when ingesting the mulrigrain stuff. Could be the H Pylori bacteria is also making digestion harder in general.

bump. It seems more often than not, from what i read here, that blood work proves negative for celiac though a person may very well have it. Am I correct? TIA.

ravenwoodglass Mentor
ravenwoodglass
Posted
bump. It seems more often than not, from what i read here, that blood work proves negative for celiac though a person may very well have it. Am I correct? TIA.

Yes you are correct. I did not show up in bloodwork and my kids showed a low positive (many doctors would have considered it negative) but we are all clearly and undoubtedly celiac. The best ways to tell are dietary exclusion with no cheating and Enterolab's stool antibody and genetic tests.

plantime Contributor
plantime
Posted

Many times, positive bloodwork only comes around after serious damage is done to the intestines. By paying attention to other symptoms and going gluten-free now, you could very well be preventing very serious illness in the future. An ounce of prevention....

capecodda Rookie
capecodda
Posted
  • Author

Thankyou for the replies! I had a total turn around with eliminating obvious glutens and corn products from my diet. Milk is taking care of the pain from the ulcer so am on the up and up. The GP has referred me to a GI Dr. but not sure how far I will go with that...been through enough at the moment and not interested in endoscopy for the time being!

LonelyWolf307 Rookie
LonelyWolf307
Posted

I've also had problems regarding testing. Because of my symptoms, all of which got progressively worse over a period of about 8 months, and how much a gluten-free diet has helped, I'm certain I'm a Celiac. However my blood test came up negative, and they never bothered to look further into it because it's a "rare" disorder :huh: I think that the only accurate test they can really do is the biopsy, or you could put yourself on the gluten-free diet and see if it improves matters after a month or two. I felt results after only a week or so, and I got worse again when I experimented by reintroducing gluten to my diet (or did so by accident, and found out after the symptoms were present again).

capecodda Rookie
capecodda
Posted
  • Author
I've also had problems regarding testing. Because of my symptoms, all of which got progressively worse over a period of about 8 months, and how much a gluten-free diet has helped, I'm certain I'm a Celiac. However my blood test came up negative, and they never bothered to look further into it because it's a "rare" disorder :huh: I think that the only accurate test they can really do is the biopsy, or you could put yourself on the gluten-free diet and see if it improves matters after a month or two. I felt results after only a week or so, and I got worse again when I experimented by reintroducing gluten to my diet (or did so by accident, and found out after the symptoms were present again).

Months..wow. That's what I am reading here and some folks still have intermittent trouble. My improvements are immediate..from the first baked potato..within 2 weeks the symptoms (aside from the ulcer) have completely calmed.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


bklynceliac Apprentice
bklynceliac
Posted

yes, it's certainly possible to have it and not test positively. You KNOW however that you have h. pylori, so I would treat that first and see where you stand afterwards. I believe that can be kicked with a couple weeks of antibiotics, which is a lot better than a lifetime of no wheat. So I'd wait to see if you're still sick before comitting to gluten free or paying for enterolab.

capecodda Rookie
capecodda
Posted
  • Author
yes, it's certainly possible to have it and not test positively. You KNOW however that you have h. pylori, so I would treat that first and see where you stand afterwards. I believe that can be kicked with a couple weeks of antibiotics, which is a lot better than a lifetime of no wheat. So I'd wait to see if you're still sick before comitting to gluten free or paying for enterolab.

That's true, but I have had food problems for many years and know that malt causes extreme bloat/gas. Years ago I had diarrhea for a month and they said I had IBS..and when I quit the farina and started eating potatos, it was all uphill. Will have to look inot ulcers too..Maybe you cannot digest grains well with an ulcer.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. tiffanygosci
      - tiffanygosci posted a topic in Coping with Celiac Disease
      0

      New Celiac Mama in My 30s

      Hello all! My life in the last five years has been crazy. I got married in 2020 at the age of 27, pregnant with our first child almost two months later, gave birth in 2021. We had another baby in April of 2023 and our last baby this March of 2025. I had some issues after my second but nothing ever made me think, "I should see a doctor about this." After...
    2. knitty kitty
      - knitty kitty replied to klmgarland's topic in Dermatitis Herpetiformis
      8

      Help I’m cross contaminating myself,

      On the AIP diet, all processed foods are eliminated. This includes gluten-free bread. You'll be eating meats and vegetables, mostly. Meats that are processed, like sausages, sandwich meats, bacons, chicken nuggets, etc., are eliminated as well. Veggies should be fresh, or frozen without other ingredients like sauces or seasonings. Nightshade vegetables...
    3. Yaya
      - Yaya replied to Jhona's topic in Introduce Yourself / Share Stuff
      29

      Does anyone here also have Afib

      Thank you for responding and for prayers. So sorry for your struggles, I will keep you in mine. You are so young to have so many struggles, mine are mild by comparison. I didn't have Celiac Disease (celiac disease) until I had my gallbladder removed 13 years ago; at least nothing I was aware of. Following surgery: multiple symptoms/oddities appeared including...
    4. larc
      - larc replied to Jhona's topic in Introduce Yourself / Share Stuff
      29

      Does anyone here also have Afib

      When I accidentally consume gluten it compromises the well-being of my heart and arteries. Last time I had a significant exposure, about six months ago, I had AFib for about ten days. It came on every day around dinner time. After the ten days or so it went away and hasn't come back. My cardiologist offered me a collection of pharmaceuticals at the time...
    5. klmgarland
      - klmgarland replied to klmgarland's topic in Dermatitis Herpetiformis
      8

      Help I’m cross contaminating myself,

      So I should not eat my gluten free bread? I will try the vitamins. Thank you all so very much for your ideas and understanding. I'm feeling better today and have gathered back my composure! Thank you kitty kitty I am going to look this diet up right away. And read the paleo diet and really see if I can make this a better situation then it currently...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,921
    • Most Online (within 30 mins)
      7,748
    Serena Rodriguez
    Newest Member
    Serena Rodriguez
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • tiffanygosci
      New Celiac Mama in My 30s

      By tiffanygosci · Posted

      Hello all! My life in the last five years has been crazy. I got married in 2020 at the age of 27, pregnant with our first child almost two months later, gave birth in 2021. We had another baby in April of 2023 and our last baby this March of 2025. I had some issues after my second but nothing ever made me think, "I should see a doctor about this." After having my last baby this year, my body has finally started to find its new rhythm and balance...but things started to feel out of sorts. A lot of symptoms were convoluted with postpartum symptoms, and, to top it all off, my cycle came back about 4m postpartum. I was having reoccurring migraines, nausea, joint pain, numbness in my right arm, hand and fingers, tummy problems, hives. I finally went to my PCP in August just for a wellness check and I brought up my ailments. I'm so thankful for a doctor that listens and is thorough. He ended up running a food allergy panel, an environmental respiratory panel, and a celiac panel. I found out I was allergic to wheat, allergic to about every plant and dust mites, and I did have celiac. I had an endoscopy done on October 3 and my results confirmed celiac in the early stages! I am truly blessed to have an answer to my issues. When I eat gluten, my brain feels like it's on fire and like someone is squeezing it. I can't think straight and I zone out easily. My eyes can't focus. I get a super bad migraine and nausea. I get so tired and irritable and anxious. My body hurts sometimes and my gut gets bloated, gassy, constipated, and ends with bowel movements. All this time I thought I was just having mom brain or feeling the effects of postpartum, sleep deprivation, and the like (which I probably was having and the celiac disease just ramped it up!) I have yet to see a dietician but I've already been eating and shopping gluten-free. My husband and I have been working on turning our kitchen 100% gluten-free (we didn't think this would be so expensive but he assured me that my health is worth all the money in the world). There are still a few things to replace and clean. I'm already getting tired of reading labels. I even replaced some of my personal hygiene care for myself and the kids because they were either made with oats or not labeled gluten-free. I have already started feeling better but have made some mistakes along the way or have gotten contamination thrown into the mix. It's been hard! Today I joked that I got diagnosed at the worst time of the year with all the holidays coming up. I will just need to bring my own food to have and to share. It will be okay but different after years of eating "normally". Today I ordered in person at Chipotle and was trying not to feel self-conscious as the line got long because they were following food-allergy protocols. It's all worth it to be the healthiest version of myself for me and my family. I would be lying if I said I wasn't a little overwhelmed and a little overloaded!  I am thankful for this community and I look forward to learning more from you all. I need the help, that's for sure!
    • knitty kitty
      Help I’m cross contaminating myself,

      By knitty kitty · Posted

      On the AIP diet, all processed foods are eliminated.  This includes gluten-free bread.  You'll be eating meats and vegetables, mostly.  Meats that are processed, like sausages, sandwich meats, bacons, chicken nuggets, etc., are eliminated as well.  Veggies should be fresh, or frozen without other ingredients like sauces or seasonings.  Nightshade vegetables (eggplant, potatoes, tomatoes, peppers) are excluded.  They contain alkaloids that promote a leaky gut and inflammation.  Dairy and eggs are also eliminated.   I know it sounds really stark, but eating this way really improved my health.  The AIP diet can be low in nutrients, and, with malabsorption, it's important to supplement vitamins and minerals.  
    • Yaya
      Does anyone here also have Afib

      By Yaya · Posted

      Thank you for responding and for prayers.  So sorry for your struggles, I will keep you in mine.  You are so young to have so many struggles, mine are mild by comparison.  I didn't have Celiac Disease (celiac disease) until I had my gallbladder removed 13 years ago; at least nothing I was aware of.  Following surgery: multiple symptoms/oddities appeared including ridges on fingernails, eczema, hair falling out in patches, dry eyes, upset stomach constantly and other weird symptoms that I don't really remember.  Gastro did tests and endoscopy and verified celiac disease. Re heart: I was born with Mitral Valve Prolapse (MVP) and an irregular heartbeat, yet heart was extremely strong.  It was difficult to pick up the irregular heartbeat on the EKG per cardiologist.  I had Covid at 77, recovered in 10 days and 2 weeks later developed long Covid. What the doctors and nurses called the "kickoff to long Covid, was A-fib.  I didn't know what was going on with my heart and had ignored early symptoms as some kind of passing aftereffect stemming from Covid.  I was right about where it came from, but wrong on it being "passing".  I have A-fib as my permanent reminder of Covid and take Flecainide every morning and night and will for the rest of my life to stabilize my heartbeat.   
    • larc
      Does anyone here also have Afib

      By larc · Posted

      When I accidentally consume gluten it compromises the well-being of my heart and arteries. Last time I had a significant exposure, about six months ago, I had AFib for about ten days. It came on every day around dinner time. After the ten days or so it went away and hasn't come back.  My cardiologist offered me a collection of pharmaceuticals at the time.  But I passed on them. 
    • klmgarland
      Help I’m cross contaminating myself,

      By klmgarland · Posted

      So I should not eat my gluten free bread?  I will try the vitamins.  Thank you all so very much for your ideas and understanding.  I'm feeling better today and have gathered back my composure! Thank you kitty kitty   I am going to look this diet up right away.  And read the paleo diet and really see if I can make this a better situation then it currently is.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.