Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Was I Glutened?


Guest ~jules~

Recommended Posts

Guest ~jules~

Today I woke up really tired, and in the bathroom again! I was fine last night, so I guess my question is if I ate something wouldn't I have reacted sooner than this morning? Also, if I did I can't figure out what it was! I have been really carefull, if I continue to be so carefull and this keeps happening, its going to drive me batty! Am I just detoxing or still symptomatic because I just started on the 15th or so?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



queenofhearts Explorer

Sorry you're feeling so rotten. It does make it really tough, but many people have delayed reactions to gluten. That's one of the reasons to try new things one by one with only sure things in between, so you can pinpoint the culprits. It's hard, though!

Hang in there,

Leah

kimjoy24 Apprentice

I'm experiencing the same thing- I've been very careful as well, but there's no telling if it was a bit of cross-contamination or if it's a touch of a stomach bug or just early PMS. Regardless, I'm gassy, gurgly, rumbly, and fuzzy in the head. Usually my gluten reactions hit the very next morning but this started late afternoon yesterday so I'm stumped.

It's indeed a bummer, but to a certain extent it's to be expected as part of the gluten-free "lifestyle". At least I can take solace in knowing that the way I feel today is the way I used to feel EVERY day before going gluten-free. Ick! I can't believe I lived like that for so long.

Queen Serenity Newbie

I'm sorry that you guys are having such a terrible time. It takes at least a year for a full recovery. Your body has to go through so many adjustments. Plus, you have to go through a lot of mental adjustments. Not to mention the learning process of keeping gluten out of your system. It's a lot of trial and error. One problem is that newly diagnosed people have a tendency to get glutened. In time, you will get the hang of things, trust me. As time passes, your body won't feel as tired or sick. The positive thing is that at least you know what's wrong. Back in the day, doctor's took a long time to diagnose Celiac's. This happened to me. I spent a week in the hospital, before they figured it out. I was 108 pounds. So, try and be positive! :) Keep posting messages, because everyone is here to help! Please take care and good luck! :)

Vicki

11 years and still counting

KaitiUSA Enthusiast

Sorry to hear you are feeling so bad. Have you changed your products like makeup? Things like that could have glutened you. I know the feeling of being glutened at it is never fun so I hope you feel better soon

Cornhusker Apprentice
Today I woke up really tired, and in the bathroom again! I was fine last night, so I guess my question is if I ate something wouldn't I have reacted sooner than this morning? Also, if I did I can't figure out what it was! I have been really carefull, if I continue to be so carefull and this keeps happening, its going to drive me batty! Am I just detoxing or still symptomatic because I just started on the 15th or so?

I'm new to this too. Diagnosed and gluten free in early July. Everyone has different recovery times. I've heard everything from 3 months to 2 years. What I can tell you is after only two weeks, you're still on the roller coaster.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - SamAlvi replied to SamAlvi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      High TTG-IgG and Normal TTG-IgA

    2. - trents replied to SamAlvi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      High TTG-IgG and Normal TTG-IgA

    3. - GlorietaKaro replied to GlorietaKaro's topic in Super Sensitive People
      7

      Am I nuts?

    4. - lalan45 replied to GlorietaKaro's topic in Super Sensitive People
      7

      Am I nuts?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,842
    • Most Online (within 30 mins)
      7,748

    aetherwax
    Newest Member
    aetherwax
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • SamAlvi
      Hi, thank you for the reply. Unfortunately, no other antibody tests were ordered. I am a 32-year-old male. About two months ago, I ate pancakes and then developed severe diarrhea that lasted the entire day. At night, I became unconscious due to fluid loss and was admitted to the ER, where I received IV fluids. Two days later, I ate bread again and once more developed severe diarrhea. I ended up in the ER again and received IV fluids. In my country, Pakistan, doctors are unfortunately not very thorough, so they treated me for a stomach infection. I visited three or four doctors, including a gastroenterologist, but it seemed like they just wanted to keep me on medications and IV fluids. Eventually, I did some digging myself and started connecting the dots. For years, I’ve had excessive gas buildup and frequent loose stools, but I never paid much attention to it. I also cannot easily digest dairy products. Two years ago, I had a CBC test that showed iron deficiency. My doctor told me to eat more meat and said it was nothing serious. However, for the past five years, I’ve also had severe motion sickness, which I never experienced before. Whenever I get on a bus or in a car, I sometimes lose consciousness for 10–20 seconds and wake up sweaty, and occasionally I feel the need to vomit. After more research on the internet, I came across gluten and celiac disease, so I got two related tests (TTG-IgA & TTG IgG) done along with a stool test and another CBC. The stool test showed weakly positive blood. Ever since eating those pancakes and bread, I’ve had a burning sensation in my gut. My doctor reviewed my tests, he told me to completely stop eating gluten and started me on IV fluids for 20 days, saying that I had severe inflammation in my gut. It has now been two months since I quit gluten, and I’m still not sure whether this is celiac disease or gluten intolerance. I don’t really trust doctors in Pakistan, so I thought I might get some help here.
    • trents
      Welcome to the celiac.com community, @SamAlvi! Were there any other antibody tests ordered? Particularly, was there a "total IGA" test ordered to check for IGA deficiency. When people are IGA deficient, celiac panel IGA test scores, such as the TTG-IGA, are likely not valid. If a total IGA test was not ordered, I would request such to be done. Note: "Total IGA" goes by other names as well. I will include a primer on celiac disease antibody testing which does a good job in covering the nomenclature variations connected with the various tests. Elevated IGG scores can certainly indicate celiac disease but they are more likely than elevated IGA tests to be caused by something else.  
    • GlorietaKaro
      Thank you— yes, valid and essential— The issue either doctors is that every one I have tried to talk to about this has essentially rolled their eyes and dismissed me as a hypochondriac, which gets discouraging. I believe a diagnosis would help me to be taken seriously by doctors as well as being validating, but can carry on without it.    There are many, probably most people in my area of my age and gender, who avoid gluten, but many just avoid it casually— eating the occasional plate of wheat pasta or a delicious-looking dessert, or baking cookies with wheat flour for gatherings.  That is not an option for me. I don’t eat other people’s cooking or go to restaurants that do not have strict cross- contamination procedures. It can be boring and lonely, and people do look at me as if I am being a bit dramatic but weeks of symptoms after a single small exposure has taught me to respect my experience.    Thank you very much for your response— sometimes I just need to hear that I am not crazy—
    • lalan45
      You’re not crazy—some people have severe neurological and physical reactions to gluten, not just digestive issues. While testing can be tricky without eating gluten, documenting symptoms and seeing a specialist familiar with atypical celiac or gluten-related disorders can help. Your reactions are real, and it’s valid to be cautious.
    • SamAlvi
      Anti TTG (IgA) 2.430 U/mL Anti TTG (IgG) 288.2 U/mL
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.