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Newly Diagnosed, Question About Fertility Symptom


americangirl

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americangirl Newbie

Hi, I'm recently diagnosed (as in two days ago) and after about a year have found out what has caused me to become annovulatory (period is MIA). I'm 26 and my husband and I would like to start trying soon, however I have only just begun my gluten free diet. My question is has anyone else had this symptom and how long til becoming gluten free did your cycle return to normal? ANy help would be great :)

  • 2 weeks later...

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Fluffy Monkey Newbie

Now that I think of it, my period was always pretty light, short, and irregular until I learned of my celiac disease. It got normal pretty quickly after starting the gluten-free diet, maybe two-six months. Now that I'm on the pill, it's gone back to light and short, though. Another thread said that you shouldn't try to get pregnant until you've been on the diet for at least six months because of all of the placental difficulties that can take place. You want to make sure you're good and healed. I know how you feel, wanting to have a baby. My husband and I are not ready financially, but we would love to have one, too. It's so hard to wait, but it would be even harder if we didn't. I think your pregnancy will go much better if you wait a while for your tummy to heal up, first. Some of the other threads (not to mention doctor's info about infertility and miscarriages) are pretty scary. I think you'll be much happier and safer if you take care of yourself first.

Ursa Major Collaborator

I agree with the previous answer. First concentrate on getting yourself better. Then, only when you feel you're well again (which can take up to a year), and you've made sure that your vitamin and mineral levels are normal (have your doctor test you), should you consider getting pregnant. Having a miscarriage is miserable, and unless you're healed, and your body is ready, the risk of miscarriage is pretty high.

Guest AutumnE

That would definitely be me :) I was without it for nine months after being regular for quite a while after the birth of my daughter. I did just have it but I dont think I ovulated this month. I will have to wait a few weeks and see.

I know how difficult it is to wait and ttc but Im doing it also. Before my daughter we tried for two years and had three miscarriages(pcos), thankfully I carried her just fine. Although it was taxing on my body, I developed gall bladder disease and three cavities surfaced and my celiac disease came full force. Im hoping to give gluten free diet a year, I have been gluten free five months already. Im also going to get my vitamin levels checked and a bone scan done. Also a strict vitamin program is essential before. When you are low on folate it can create many problems for your baby including spina bifida and you may not be absorbing it yet.

Good Luck with ttc, When we decide to wait a year it seemed such a long way away but the time does go fast. If Im not absorbing properly and cant get it under control odds are we wont have another child. I would hate for something to happen to me from a malnutritioned body and not be here for my first daughter.

  • 1 month later...
tracey* Rookie

Great advice :)

I'm going to wait a full year of being gluten-free and then I'll go get a check up with the doc to see how I'm going before we TTC

It's really important to me that the baby has a good environment to grow into, so waiting will be worth it.

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      Welcome to the celiac.com community, @McKinleyWY! There currently is no testing for celiac disease that does not require you to have been consuming generous amounts of gluten (at least 10g daily, about the amount in 4-6 slices of wheat bread) for at least two weeks and, to be certain of accurate testing, longer than that. This applies to both phases of testing, the blood antibody tests and the endoscopy with biopsy.  There is the option of genetic testing to see if you have one or both of the two genes known to provide the potential to develop celiac disease. It is not really a diagnostic measure, however, as 30-40% of the general population has one or both of these genes whereas only about 1% of the general population actually develops celiac disease. But genetic testing is valuable as a rule out measure. If you don't have either of the genes, it is highly unlikely that you can have celiac disease. Having said all that, even if you don't have celiac disease you can have NCGS (Non Celiac Gluten Sensitivity) which shares many of the same symptoms as celiac disease but does not involve and autoimmune reaction that damages the lining of the small bowel as does celiac disease. Both conditions call for the complete elimination of gluten from the diet. I hope this brings some clarity to your questions.
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