Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Relief Frpm Stomach Pain


KyKelBri2

Recommended Posts

KyKelBri2 Newbie

Hello-new to site...my daughter is almost 7 years old and was diagnosed with celiac 6 months ago. It's been difficult but we are finally at a point where Kylie has about 7 staples in her diet. She is extremely picky when it comes to eating and after throwing out a ton of food we finally found some things she will eat. Kylie's symptoms have been chronic stomach aches and head aches. I truly had to fight the doctors to get her tested for ANYTHING since they believed she had these symptoms because she is shy.

My husband and I are doing everything we possibly can to keep her gluten-free. My home is not totally gluten free but I use separate pots/utensils/etc. for Kylie's food. I cook almost everything for her and freeze it. I am finally starting to feel that I can handle this (notice I say "I") until a night like tonight where Kylie is crying over her stomach aches. She still gets them occassionally and most of the time they are dull aches but tonight she was crying. I know everything she has eaten since last Saturday and I can't see where the gluten came from. I am absolutely at my wit's end over this disease!! There is nothing worse than seeing your child in pain and you can't even offer an antacid! My question is: what can I give her to help her with her pain? Anything? I'm so angry right now that I had to hold my sobbing daughter and wait for her to pass out from crying. I want to be able to offer her some sort of medication when she has a bad day. Any suggestions from anyone?

Thank you to anyone who responds!

Kelly


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



AndreaB Contributor

I don't have any advice for pain relief, I'm sorry. :(

I wanted to find out if you have had her tested for other intolerances or allergies. It could be that she is responding to something other than possible cc. Dairy and soy are two other big ones, but you'd probably want to look at the top allergens. If you don't want the expense of testing then do a food diary/journal and record everything eaten and any possible reactions, keeping in mind that a reaction to a food could be up to three days later. Eliminate all dairy and soy first for at least 2 months, preferably 6 months or more and then reintroduce a couple weeks apart and note any possible changes or reactions.

heli Newbie

Pain is very motivating. Involve that young lady in being as wary as a fox. Teach her to "interrogate" for all food that she is offered. Be sure she always has a snack (Think Organic bars are great to carry) so that she does not get hungry and eat indiscrimanately. Mom and daughter are partners in improving health.

I know the majority of the load for food prep falls to mom because I am a mom with celiac and 2 daughters with celiac.Gluten contamination may be the problem such as french fries that would be ok except if they are fried in oil that has previously had battered items fried.

Or, your daughter may have accepted/shared a food with a friend who would never intentionally make her sick. Give your daughter some friendly, cheerful "thanks, but I can't accept that food - it may have an ingredient in it that I can't eat." Where as "that food makes me sick" tends to turn people away - and you don't want your little one being ostracized over food.

I have a daughter in high school, and a daughter in college who was diagnosed in high school (finally) after 10 years and is now doing well at college.

Do you live in a city that has Whole food markets or specialty stores?

key Contributor

Dairy can be a problem for Celiac's at first until they heal. I know it was for my son. Sorry she was sick. I take Pepto-bismol when my stomach hurts. I don't know if she is old enough to take a small amount, probably they would say no. Hot herb chamomile tea may help with a small amount of honey or peppermint tea. Also, a warm heating pad helps. I try and drink more water and eat lighter when gluttened.

Is she using any products, shampoo's etc, with gluten?

Sorry she was sick. As a parent, there is nothing worse then seeing your child in pain.

The first year can be up and down and take awhile to heal.

Monica

GFBetsy Rookie

On September 3, 2005 Western Family Acetaminiphin, Asprin, and Asprin-Free pain relievers were all gluten free. I'm not sure if they still are, but they were then. As far as name brand pain relievers go, I haven't actually called any of them, but I'm sure they will answer any questions you have.

Sorry I couldn't be more help!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,021
    • Most Online (within 30 mins)
      7,748

    maltawildcat
    Newest Member
    maltawildcat
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • NanCel
    • sleuth
      He is not just a psychiatrist.  He is also a neuroscientist.  And yes, I have already read those studies.   I agree with benfotiamine.  This is short term while glutened/inflammation occurs.  As I had already mentioned, these symptoms no longer exist when this phase passes.  And yes, I know that celiac is a disease of malnutrition.  We are working with a naturopath.
    • knitty kitty
      Please do more research before you settle on nicotine. Dr. Paul New house is a psychiatrist.  His latest study involves the effect of nicotine patches on Late Life Depression which has reached no long term conclusions about the benefits.   Effects of open-label transdermal nicotine antidepressant augmentation on affective symptoms and executive function in late-life depression https://pubmed.ncbi.nlm.nih.gov/39009312/   I'm approaching the subject from the Microbiologist's point of view which shows nicotine blocks Thiamine B1 uptake and usage:   Chronic Nicotine Exposure In Vivo and In Vitro Inhibits Vitamin B1 (Thiamin) Uptake by Pancreatic Acinar Cells https://pubmed.ncbi.nlm.nih.gov/26633299/   While supplementation with thiamine in the form Benfotiamine can protect from damage done by  nicotine: Benfotiamine attenuates nicotine and uric acid-induced vascular endothelial dysfunction in the rat https://pubmed.ncbi.nlm.nih.gov/18951979/   I suggest you study the beneficial effects of Thiamine (Benfotiamine and TTFD) on the body and mental health done by Dr. Derrick Lonsdale and Dr. Chandler Marrs.  Dr. Lonsdale had studied thiamine over fifty years.   Hiding in Plain Sight: Modern Thiamine Deficiency https://pmc.ncbi.nlm.nih.gov/articles/PMC8533683/ I suggest you read their book Thiamine Deficiency Disease, Dysautonomia, and High Calorie Malnutrition.     Celiac Disease is a disease of malabsorption causing malnutrition.  Thiamine and benfotiamine: Focus on their therapeutic potential https://pmc.ncbi.nlm.nih.gov/articles/PMC10682628/
    • sleuth
      Thanks for your response.  Everything you mentioned he is and has been doing.  Tobacco is not the same as nicotine.  Nicotine, in the form of a patch, does not cause gastrointestinal irritation.  Smoking does. He is not smoking.  Please do your research before stating false information. Dr. Paul Newhouse has been doing research on nicotine the last 40 years at Vanderbilt University Medical Center.  
    • Jmartes71
      Im so frustrated and still getting the run around trying to reprove my celiac disease which my past primary ignored for 25 years.I understand that theres a ray of medical that doctors are limited too but not listening and telling the patient ( me) that im not as sensitive as I think and NOT celiac!Correction Mr white coat its not what I think but for cause and affect and past test that are not sticking in my medical records.I get sick violently with foods consumed, not eating the foods will show Im fabulous. After many blood draws and going through doctors I have the HLA- DQ2 positive which I read in a study that Iran conducted that the severity in celiac is in that gene.Im glutenfree and dealing with related issues which core issue of celiac isn't addressed. My skin, right eye, left leg diagestive issues affected. I have high blood pressure because im in pain.Im waisting my time on trying to reprove that Im celiac which is not a disease I want, but unfortunately have.It  has taken over my life personally and professionally. How do I stop getting medically gaslight and get the help needed to bounce back if I ever do bounce back to normal? I thought I was in good care with " celiac specialist " but in her eyes Im good.Im NOT.Sibo positive, IBS, Chronic Fatigue just to name a few and its all related to what I like to call a ghost disease ( celiac) since doctors don't seem to take it seriously. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.