Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Crohn's Disease?


Nantzie

Recommended Posts

Nantzie Collaborator

A friend of the family was just diagnosed with Crohn's. I'm almost positive they didn't do any testing for celiac. She just had a baby a couple of months ago. I'm not sure how long she's had symptoms

I've seen several people on here mention that they have Crohn's as well as celiac, or were misdiagnosed with Crohn's and then found out it was celiac.

On the NIH's fact sheet they say that celiac can be misdiagnosed as Crohns.

Any info / insight?

Nancy


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



lorka150 Collaborator

Hi there,

I knew I had read this a bunch of times so I searchd "Crohn's" in this thread and came up with this:

Open Original Shared Link

I hope that helps a bit!

num1habsfan Rising Star

I'm sure it is related, just read back to my posts when I started getting sick again this year ;) ... Thats what the doctors are suspecting, thats what I am suspecting I have ... The docs think Celiac has triggered off Crohn's (but since I dont get my results until the 14th, i dont know if we assume right...)

~Lisa~

mythreesuns Contributor

Well, the symptoms are certainly the same. My dr is convinced I don't have celiac ("passed" the tests) and since I was still having symptoms gluten-free he's testing me for Chrone's and ulcerative colitis.

I figure its worth ruling those things out, but more and more I'm thinking gluten is my issue. I keep waiting for a good time to "test" myself with a slice of pizza or something, but I'm afraid to! LOL

Plus, I'm not sure I've actually made it a whole week truly gluten-free (eating out, etc.) so I'm waiting for a good week or so before I "test" myself...maybe. Then again, maybe I'll just skip the test and stay gluten-free! LOL

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,566
    • Most Online (within 30 mins)
      7,748

    Rrenee2990
    Newest Member
    Rrenee2990
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • cristiana
      That's great news, you can do this.  Let us know how things go and don't hesitate to ask if you have any more questions. Cristiana 😊
    • petitojou
      Thank you so much for sharing your experience and I found myself giggling with happiness as I read how your body reached such spring! And I hope that your current journey is also successful!! Definitely starting the food diary! So many amazing advices. And it’s very scary. It really hits all our soft spots as well as our confidence system. Most doctors I went thought I was underage despite being in my late 20s. Right now I look like am I twelve, but is also this body that’s taking so much, so I might as well love it too! Going to make the necessary changes and stay in this path. Thank you again! 🫶
    • petitojou
      Thank you so much for the information and kind message! Reading this transformed how I’ve been viewing my efforts and progress. Guess there’s still a lot to celebrate and also heal 😌  Yes, I’ve been taking it! Just recently started taking a multivitamin supplement and separated vitamin D! I also took chewable Iron polymaltose for ferritin deficiency 2 months ago but was unable to absorb any of it.  Thank you again! Hearing such gentle words from the community makes my body and heart more patient and excited for the future. 
    • ckeyser88
      I am looking for a roomie in Chicago, Denver or Nashville! 
    • Scott Adams
      Your post demonstrates the profound frustration and isolation that so many in the Celiac community feel, and I want to thank you for channeling that experience into advocacy. The medical gaslighting you endured for decades is an unacceptable and, sadly, a common story, and the fact that you now have to "school" your own GI specialist speaks volumes about the critical lack of consistent and updated education. Your idea to make Celiac Disease a reportable condition to public health authorities is a compelling and strategic one. This single action would force the system to formally acknowledge the prevalence and seriousness of the disease, creating a concrete dataset that could drive better research funding, shape medical school curricula, and validate the patient experience in a way that individual stories alone often cannot. It is an uphill battle, but contacting representatives, as you have done with Adam Gray, is exactly how change begins. By framing it as a public health necessity—a matter of patient safety and protection from misdiagnosis and neglect—you are building a powerful case. Your voice and your perseverance, forged through thirty years of struggle, are exactly what this community needs to ensure that no one else has to fight so hard just to be believed and properly cared for.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.