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Celiac's: Get Tested For Lyme!...

tailz

By tailz
in Coping with Celiac Disease

Recommended Posts

tailz Apprentice
tailz
Posted

You all have to read this. Anyone who has been diagnosed with "Celiac's" needs to be aware. I'm getting tested. This is too scary...

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Nancym Enthusiast
Nancym
Posted

Good luck with the testing. I've heard that Lyme disease can be hard to find in the blood after awhile.

Lymetoo Contributor
Lymetoo
Posted

With the tests almost ALL drs use, it's unlikely Lyme will be found. Some of those tests are terribly inaccurate.

Johns Hopkins.... testing for Lyme inadequate

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If you decide to get tested, your best choice in labs is Igenex Labs in CA. You may have to pull strings to get tested through them. The dr is the biggest obstacle. Most will refuse to use this lab.

here is more info:

More info:

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Wild Condor's Links and information:

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Chrisser Explorer
Chrisser
Posted

That article will scare anyone. The biggest thing missing from Lyme Disease that is found with Celiac is the digestive and intestinal issue. I had Lyme Disease when I was younger, and I went 9 months undiagnosed. I didn't get the rash when I got bitten, but I was able to link it back to flicking a little bug off my hip when I was changing out of my bathing suit after the beach one day. I was fortunate enough to have had a mild case, as the only symptoms I had were horrible fatigue and muscle aches. A friend of mine, however, had to have IV antibiotics because she had a more severe case. I wouldn't mistake Celiac for Lyme Disease, but if it would make you feel more comfortable getting tested then talk to your doctor about it.

Here's another link for you:

Open Original Shared Link

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EDIT:

OK, I could definitely be wrong about this...I didn't do enough reading before I posted.

Still sounds fishy to me, though.

rinne Apprentice
rinne
Posted

Lyme Disease can affect the digestive system.

Thanks for posting the article. It is long and wordy but for anyone who is feeling lost and overwhelmed with the number of symptoms they have it is well worth the read.

It is funny how we come to learn things, perhaps five years ago my sister was diagnosed with IBS and Celiac and I remember noting that Celiac was that wheat thing and that I probably had it but since I already avoided bread I really didn't need to look too closely at it. After all, I knew that if I ate bread I didn't digest it and the rare times I did I simply increased my ground flax seed and moved it through. Now I understand how much damage I was doing to myself by doing that. :(

A friend was telling me recently that when she first became seriously ill she thought she had Chronic Fatigue Syndrome and was participating in an on-line support group for CFS but occasionally she would visit the Lyme Board and there was a woman there who repeatedly told her she thought she had Lyme. My friend would say no and go away for awhile but she kept going back and eventually she did get tested and she did have Lyme. We hadn't spoken in twenty years when she got a hold of me this past winter and we've been talking about being ill, her Lyme and my Celiac/Gluten Intolerance and Arthritis and it never occured to either of us that I might have Lyme. I believe I am exhibiting that kind of circumstantial recounting that Lyme patients do, <_< Anyways we were discussing salt, iodine, the thyroid and the adrenal system and she offered to forward me an article on Salt but accidentally forwarded me the Salt/Vitamin C protocol for treating Lyme and I read it and I saw myself. I also realize that if I had read the article three years ago it wouldn't have occured to me that I had Lyme because it has only been in the past two years that I have had the later stage symptoms appear.

As I have said elsewhere I started using the salt/c as a diagnostic tool and have now had two herxes. I'm pretty much convinced I have Lyme and that it manifested in the area of my body that was weakest first. I have improved on a gluten and dairy free diet and won't return to it although maybe I am hoping for a little cheese. :)

As I read many people's stories here I see the possiblity for Lyme disease in their symptoms but I think it is one of the last places people go because there is so little information about it and how varying the symptoms can be. I also think that once our focus becomes food issues we can lose ourselves in the effort to modify our diets in hopes that by doing so we will get better.

Oh, and as a bonus the salt/c has given me back sleep, I am now sleeping close to seven hours a night which I haven't done in so many years I can't even remember. I have mostly slept for four or five hours and woken tired, I am actually feeling refreshed when I wake up.

Hope I didn't hijack this thread too badly. I really appreciate the effort you are making to bring this information forward. :)

Lymetoo Contributor
Lymetoo
Posted
Here's another link for you:

Open Original Shared Link

-----------------------------------------------------------------------------------------------------------------------------------------------

EDIT:

OK, I could definitely be wrong about this...I didn't do enough reading before I posted.

Still sounds fishy to me, though.

What sounds fishy??? :unsure:

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