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Dh - How Long Does It Take To Show Up?

BFreeman

By BFreeman
in Dermatitis Herpetiformis

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BFreeman Explorer
BFreeman
Posted

After you get weaned off Dapsone, how long does it take for the rash to return if you have slipped up?

My husband was diagnosed a few months ago and has been on gradually-reduced levels of Dapsone since then. It has had side effects of headaches and fatigue, and so, based on a comment his doctor made at his last visit of "I have several patients who go off the Dapsone and then back on if the rash returns," he has decided to stop taking it. (This doctor is a dermatologist; should we seek out a gastroenterologist? The dermatologist didn't say so; this is a small-town area.)

Does anyone have experience on how soon you can tell if you aren't doing the diet right? Thanks!

B Freeman

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lovegrov Collaborator
lovegrov
Posted

As with everything related to celiac, it depends on the person. My DH never came back even though I went off dapsone right after going gluten-free (this is very unusual, apparently). Others report problems months and months later even when strictly gluten-free.

richard

brizzo Contributor
brizzo
Posted

I took tetracycline before going gluten-free. It usually took me about 10-14 days before I would re-erupt after stopping tetracycline

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