Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

It's Official

BostonCeliac

Recommended Posts

BostonCeliac Apprentice
BostonCeliac
Posted

Just thought I would share with everyone... My Doctor just let me know that my biopsies came back showing "classic unambiguous Sprue" as he put it. He mentioned that when he was doing the endoscopy he "saw it" but I was so out of it, I couldn't remember exactly what he said...

Anyway, I'm relieved, it would have been frustrating if it was negative. It's strange - I only had stomach issues beginning approx. 2-3 months prior to the biopsy. I have had unexplained anemia for about 6 years -- but I would have thought the damage to the intestines would have caused more problems. I knew right away what it was because my sister was diagnosed, and they thought I might have it.

Well, I've been gluten-free for 3 weeks today! So far so good... here's to a life of gluten-free living!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


queenofhearts Explorer
queenofhearts
Posted

Congratulations & Welcome to Celiac World!

ravenwoodglass Mentor
ravenwoodglass
Posted
Just thought I would share with everyone... My Doctor just let me know that my biopsies came back showing "classic unambiguous Sprue" as he put it. He mentioned that when he was doing the endoscopy he "saw it" but I was so out of it, I couldn't remember exactly what he said...

Anyway, I'm relieved, it would have been frustrating if it was negative. It's strange - I only had stomach issues beginning approx. 2-3 months prior to the biopsy. I have had unexplained anemia for about 6 years -- but I would have thought the damage to the intestines would have caused more problems. I knew right away what it was because my sister was diagnosed, and they thought I might have it.

Well, I've been gluten-free for 3 weeks today! So far so good... here's to a life of gluten-free living!

I am glad you now know for sure and for certain. Welcome to the family.

floridanative Community Regular
floridanative
Posted

I had anemia just over a year before my dx but I too was surprised that my biospy showed so much damage and I didn't have the GI symptoms except for very occasional bloating or a stomach ache that coule be explained by a spicey Mexican dinner or so I thought - lol!

I can say that after almost 8 months, living gluten free really is just second nature to me now. I never thought I'd get use to reading labels or paying a small fortune for gluten-free food but I did. I just have a new normal now and since I feel better than ever (without knowing I didn't before) I can't complain.

I should add that about a month in to eating gluten free, I got very overwhelmed that I had to do this forever. That feeling passed fairly quickly (less than a week) and each month since has just gotten better and better.

Welcome and good luck!

Guest ~jules~
Guest ~jules~
Posted

Hello, and welcome to the group....My doctor also said more or less he could tell it was sprue, but he needed the biopsies back to say for sure. This group has been very helpful to me since my diagnosis last month, and I think your really going to find this a great resource, and place for support when you are feeling the need to vent, everyone is great! Welcome again! Julie :D

jcc Rookie
jcc
Posted

Congratulations on receiving your gold star! You may not feel lucky, but it is great when the diagnosis is clear cut. Best of luck with your gluten free life...you will do fine!

Cara

BostonCeliac Apprentice
BostonCeliac
Posted
  • Author

Thanks for the comments everyone! I've already found this site EXTREMELY helpful -- we're lucky to have this.

FloridaNative --- looks you were the same as me, did you notice a big change when your iron levels got back to normal? How long did it take you? Also, thanks for the heads up about the 1-month mark 'freak out', I could definitely see myself getting to that point, and then just taking a deep breath & realizing, It's not that bad! It's just food!! :)

Have a great day everyone....

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,995
    • Most Online (within 30 mins)
      7,748
    Naner4
    Newest Member
    Naner4
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Gluten free nuts

      By Scott Adams · Posted

      They are a sponsor here, and I did noticed a free shipping coupon: GFships
    • Scott Adams
      Aldi Pueblo Lindo Yellow Corn Tortillas

      By Scott Adams · Posted

      In general if it is labelled gluten-free then it should be ok for most celiacs, however, those who are super sensitive (which is most who have dermatitis herpetiformis) may want to eat only certified gluten-free items, which are supposed to test down to 10ppm (but don't always!).
    • Wheatwacked
      Celiac and dermatitis herpetiformis has taken Me from Me

      By Wheatwacked · Posted

      Have faith, you will survive. I get mine from Pipingrock.com.  500 capsules of 10,000 IU for $22.  That is almost two years worth for me.  250 caps 5000 IU for $6.69 if you only take 5,000 a day.  It's like half the price of Walmart.
    • Wheatwacked
      Outgrow celiac?

      By Wheatwacked · Posted

      Testing can't alone be trusted.  Else why would it take so many years of testing and retesting and misdiagnosis to finally be told, yes you have Celiac Disease. As to what to eat, I like pre 1950 style food.  Before the advent of TV dinners.  Fresh food is better for you, and cooking from scratch is cheaper.  Watch Rachel Ray's 30 Minute Meals for how to cook.  Keep in mind that she is not gluten free, but her techniques are awesome.  Just use something else instead of wheat, barley, rye. Dr Fuhrman is a ex cardiologist.  His book Eat to Live and Dr Davis' book Wheatbelly were instrumental in my survival.
    • Scott Adams
      Celiac and dermatitis herpetiformis has taken Me from Me

      By Scott Adams · Posted

      If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch--thanks for the tip about Dupixent, and I've added it to the article:  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.