Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Its Over


Jackmat

Recommended Posts

Jackmat Newbie

My problem first began on March 24th 2005. I thought I had the flu. No matter what I ate, it made me feel ill.

I began to keep a food diary and within 3 months I worked out that I could relieve my symptoms my minimising my intake of fructose and by eliminating sorbitol.

For the next 9 months, I was on a fructose restrictive diet, but I was still able to enjoy honey, bananas, nuts, cheese, yoghurt, salmon and oil and use psylliym husks as a bulking agent when I needed to. However, in March this year and particularly from July, all the aforementioned foods plus wheat, were bothering me and in the past month, I had been eating only rice, chicken, fish (all boiled) and green vegetables.

I had been taking statins (cholesterol lowering drugs) for the past 4-5 ears (since the age of 50), and on August 20th this year, decided I would stop taking them.

For the first 26 days it made no difference. In fact I felt worse.

It has now been 29 days since I stopped my daily dose of statins.

Yesterday and today I have eaten chocolate, potato crisps, sultanas, oranges, cream biscuits, caramel pudding, mince meat, bread, pasta and any other food you might care to imagine.

I have had no food intolerance symptoms.

The relief and joy that I feel is tempered by the knowledge that all of you must continue with your own battles. Besides, celebrations in the past have often been shortlived.

Although I am cautiously optimistic about the future, I now know that these statins impacted on my liver/intestines in such a profound way that my body was no longer able to digest and absorb many foods. As my body continues the "washout" of the effects of the statins, my tolerances towards foods continues to improve.

I will post this news on other forums and will hopefully continue to contribute something relevant in the future.

May you all continue to find the strength to carry on with your struggles.

Cheers


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor
My problem first began on March 24th 2005. I thought I had the flu. No matter what I ate, it made me feel ill.

I began to keep a food diary and within 3 months I worked out that I could relieve my symptoms my minimising my intake of fructose and by eliminating sorbitol.

For the next 9 months, I was on a fructose restrictive diet, but I was still able to enjoy honey, bananas, nuts, cheese, yoghurt, salmon and oil and use psylliym husks as a bulking agent when I needed to. However, in March this year and particularly from July, all the aforementioned foods plus wheat, were bothering me and in the past month, I had been eating only rice, chicken, fish (all boiled) and green vegetables.

I had been taking statins (cholesterol lowering drugs) for the past 4-5 ears (since the age of 50), and on August 20th this year, decided I would stop taking them.

For the first 26 days it made no difference. In fact I felt worse.

It has now been 29 days since I stopped my daily dose of statins.

Yesterday and today I have eaten chocolate, potato crisps, sultanas, oranges, cream biscuits, caramel pudding, mince meat, bread, pasta and any other food you might care to imagine.

I have had no food intolerance symptoms.

The relief and joy that I feel is tempered by the knowledge that all of you must continue with your own battles. Besides, celebrations in the past have often been shortlived.

Although I am cautiously optimistic about the future, I now know that these statins impacted on my liver/intestines in such a profound way that my body was no longer able to digest and absorb many foods. As my body continues the "washout" of the effects of the statins, my tolerances towards foods continues to improve.

I will post this news on other forums and will hopefully continue to contribute something relevant in the future.

May you all continue to find the strength to carry on with your struggles.

Cheers

Hello, I am so happy for you that you may have found the cause of your distress. Not every med works for everyone and some do cause side effects that don't go away with time. I do however want to caution you that for many gluten intolerance is a delayed reaction. For some it takes 3 to 5 days to feel the effect of a glutening. I am keeping my fingers crossed for you and hope the challenge you are doing shows that it was the statins all along.

mythreesuns Contributor

Oh, how JEALOUS I am at the relief you must feel!!! I have been looking for answers and finding none for so long....I can only dream of that feeling.

Good luck to you, and I hope your symptoms continue to improve.

  • 3 weeks later...
Jackmat Newbie

Thank you both for your good wishes.

Its been about 3 weeks since my disovery and I've eaten everything under the sun without a reaction.

I hope all of you can find answers to your problems. Without wishing to understate the gravity of your issues, sometimes, the answer can be so surprisingly simple.

RiceGuy Collaborator

I'm also glad to know you are getting relief, and off the meds too. That's always a good thing whenever it can be done. I just thought I'd chime in to suggest prunes as just one of many ways to naturally lower cholesterol. Here's a link to some excellent info on it: Open Original Shared Link

That site is one place I find continuously useful. I'm sure you'll find plenty of interesting articles about cholesterol by typing that into their search engine.

Jackmat Newbie

Thanks Riceguy,

I won't try prunes just yet because I'm still afraid of sorbitol (prunes are loaded with it). But in a couple of months I will give it a go.

At present my cholesterol lowering regime consists of:

Freshly ground flaxseed sprinkled on cereal each morning. Three fish oil capsules a day. Cinnamon powder sprinkled on dessert (or tea). Psyllium husks before most meals.

I'm also wondering if I should be taking Lecithin.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,546
    • Most Online (within 30 mins)
      7,748

    KimberlyAnne76
    Newest Member
    KimberlyAnne76
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Beverage
      I had a very rough month after diagnosis. No exaggeration, lost so much inflammatory weight, I looked like a bag of bones, underneath i had been literally starving to death. I did start feeling noticeably better after a month of very strict control of my kitchen and home. What are you eating for breakfast and lunch? I ignored my doc and ate oats, yes they were gluten free, but some brands are at the higher end of gluten free. Lots of celics can eat Bob's Red Mill gluten-free oats, but not me. I can now eat them, but they have to be grown and processed according to the "purity protocol" methods. I mail order them, Montana Gluten-Free brand. A food and symptoms and activities log can be helpful in tracking down issues. You might be totally aware, but I have to mention about the risk of airborne gluten. As the doc that diagnosed me warned . . Remember eyes, ears, nose, and mouth all lead to your stomach and intestines.  Are you getting any cross contamination? Airborne gluten? Any pets eating gluten (they eat it, lick themselves, you pet them...)? Any house remodeling? We live in an older home, always fixing something. I've gotten glutened from the dust from cutting into plaster walls, possibly also plywood (glues). The suggestions by many here on vitamin supplements also really helped me. I had some lingering allergies and asthma, which are now 99% gone. I was taking Albuterol inhaler every hour just to breathe, but thiamine in form of benfotiamine kicked that down to 1-2 times a day within a few days of starting it. Also, since cutting out inflammatory seed oils (canola, sunflower, grapeseed, etc) and cooking with real olive oil, avocado oil, ghee, and coconut oil, I have noticed even greater improvement overall and haven't used the inhaler in months! It takes time to weed out everything in your life that contains gluten, and it takes awhile to heal and rebuild your health. At first it's mentally exhausting, overwhelming, even obsessive, but it gets better and second nature.
    • Jsingh
      Hi,  I care for my seven year old daughter with Celiac. After watching her for months, I have figured out that she has problem with two kinds of fats- animal fat and cooking oils. It basically makes her intestine sore enough that she feels spasms when she is upset. It only happens on days when she has eaten more fat than her usual every day diet. (Her usual diet has chia seeds, flaxseeds, and avocado/ pumpkin seeds for fat and an occasional chicken breast.) I stopped using cooking oils last year, and when I reintroduced eggs and dairy, both of which I had held off for a few months thinking it was an issue of the protein like some Celiac patients habe mentioned to be the case, she has reacted in the same fashion as she does with excess fats. So now I wonder if her reaction to dairy and eggs is not really because of protein but fat.   I don't really have a question, just wondering if anyone finds this familiar and if it gets better with time.  Thank you. 
    • Chanda Richard
      Hello, My name is Chanda and you are not the only one that gose through the same things. I have found that what's easiest for me is finding a few meals each week that last. I have such severe reactions to gluten that it shuts my entire body down. I struggle everyday with i can't eat enough it feels like, when I eat more I lose more weight. Make sure that you look at medication, vitamins and shampoo and conditioner also. They have different things that are less expensive at Walmart. 
    • petitojou
      Thank you so much! I saw some tips around the forum to make a food diary and now that I know that the community also struggles with corn, egg and soy, the puzzle pieces came together! Just yesterday I tried eating eggs and yes, he’s guilty and charged. Those there are my 3 combo nausea troublemakers. I’m going to adjust my diet ☺️ Also thank you for the information about MCAS! I’m from South America and little it’s talked about it in here. It’s honestly such a game changer now for treatment and recovery. I know I’m free from SIBO and Candida since I’ve been tested for it, but I’m still going to make a endoscopy to test for H. Pylori and Eosinophilic esophagitis (EoE). Thank you again!! Have a blessed weekend 🤍
    • knitty kitty
      Yes, I, too, have osteoporosis from years of malabsorption, too.  Thiamine and magnesium are what keep the calcium in place in the bones.  If one is low in magnesium, boron, selenium, zinc, copper, and other trace minerals, ones bone heath can suffer.  We need more than just calcium and Vitamin D for strong bones.  Riboflavin B 2, Folate B 9 and Pyridoxine B 6 also contribute to bone formation and strength.   Have you had your thyroid checked?  The thyroid is important to bone health as well.  The thyroid uses lots of thiamine, so a poorly functioning thyroid will affect bone heath.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.