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How Common?


Adelle

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Adelle Enthusiast

I have sleep apnea and gluten intolerance. Am I that weird?? How common is it to have both? I feel like a freeeeak!! Tho honestly, I think it's easier to deal with the diet than the cpap. Arg.


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Guest ~jules~
I have sleep apnea and gluten intolerance. Am I that weird?? How common is it to have both? I feel like a freeeeak!! Tho honestly, I think it's easier to deal with the diet than the cpap. Arg.

I don't think your a freek! When we were kids (and there were alot of us) my brother would choke and weez in his sleep, I could hear him from the other bedroom. As we were close in age opposed to the other kids (13 mos.) I would go into the room and slap him awake. My dad has this also, my poor mother to this day has to go sleep in their motorhome, which they have parked on the property, just so she can sleep! I don't know how common it is to have both, but I do know sleep apena is common. Hey, total change of subject, but how did the meeting go out at kaiser saturday, I'm going to the next one for sure.

eKatherine Apprentice

I remember coming home from college, and wherever my father was sleeping that night, the whole house shook.

jenvan Collaborator

There are several others here w/apnea...you might want to ck out this thread and see who has experience with it: Open Original Shared Link

Adelle Enthusiast

The meeting was okay. Weird tho. They seemed to see celiac disease as some kind of burdon, I view it as "FINALLY, I know what it is! YAY!". Maybe I'm weird. And they talked about how big this transition is, it hasn't been that hard for me. Maybe I'm weird. Next month they r gonna have a guest speaker. C u there!

  • 2 weeks later...
Kody Rookie

Two years ago when I started visiting doctors nonstop, I even went as far as to get tested for sleep apnea. I had no other explanation for how tired I always was.

Well... I was tested negative, no sleep apnea. Only one small apnea all night... but the doctor did say it is something that will likely develop, in like, 20 years or something.

Hope that helps. :)

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    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
    • MogwaiStripe
      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
    • Butch68
      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
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