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Could I Have Celiace Dsease?

Guest ColleenMax

By Guest ColleenMax
in Celiac Disease Pre-Diagnosis, Testing & Symptoms

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Guest ColleenMax
Guest ColleenMax
Posted

Hello: I am new here and need help! I went to my doctor yesterday and mentioned that I have been feeling dizzy and have had gas pains that I think are coneccted to eating cheese but allergy testing showed nothing -- all 0's. I also live in an old building which has significant amounts of mold and fungus. Last week I had a migrane. She retested for cheese and mold. I will get results next week. I do have a history of severe abdominal cramping. Lately I have been eating pizza. Yesterday I had mac & cheese with severe cramps last night. I barely made it home. Today I feel well -- I had sprouted grain bread with Peanut Butter and Jelly (from health food store), Green Tea and honey. I realize that these S&S's point in many different directions. ADVICE??????

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BostonCeliac Apprentice
BostonCeliac
Posted

Hi -- Welcome!

By the way, the "sprouted grain bread" you ate probably had wheat or gluten in it unless you checked... But if you think it might be celiac - maybe just ask your DR for the blood test, it was easy for me, I made a phone call, went in, and got results 5 days later (positive).

I would also advise reading a lot of the posts on this forum to see other people's symptoms to see if they sound familiar.... For me, my biggest symtom was unexplained anemia, then I started having major bloating, gas, etc... I also was feeling like I couldn't concentrate, and was extremely tired (prob. due to anemia)... but everyone's symptoms are different.

Do some research, family history seems to play a role in this as well...If you think you have it, get the blood test. It could be this among many other things, maybe a lactose intolerance.. who knows.

Good luck!! Keep us posted.

kbtoyssni Contributor
kbtoyssni
Posted

Your symptoms could be from a combination of irratants. Before I went gluten-free, pizza always made me sick, but bread never did. I now think that I got sick from pizza due to the combination of wheat with cheese and tomato. I do not have a problem with cheese now that I'm gluten-free. Not sure if this helps - the pizza thing just reminded me of me. Ok, got to run, I have to be somewhere in three minutes!

jerseyangel Proficient
jerseyangel
Posted

Your symptoms could point to a lot of things. If you suspect Celiac, ask your doctor to run the Complete Celiac Blood Panel. :)

Another possibility is food intolerance--that wouldn't show up on an allergy test.

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    • catnapt
      results from 13 day gluten challenge - does this mean I can't have celiac?

      By catnapt · Posted

      If lectins were my problem, I would react to wheat germ (the highest source of wheat lectins) and beans. I don't. I only react to bread and pasta, which are the highest sources of gluten. Therefore, my issue is wheat-specific (Gluten/ATIs), not a general lectin issue.   I have eaten a supposedly high lectin diet (I say supposedly because lectin content in these foods is greatly reduced by proper cooking and I eat very few of those foods raw, and even then, rarely!!) for years. My health has improved greatly on my whole foods plant forward diet. I have asked all my drs and a registered dietician about my diet, asked if eating such a high amnt of fiber might interfere with the digestion of any other nutrients and the answer has always been NO.     while doing the gluten challenge I did not eat ANY wheat germ (since it doesn't have hardly any gluten, and I was too sick from the bread and pasta to want to eat much anyway) I will NOT put that poison in my body again. That was a horrific experience and if this is what most celiac patients have to deal with, I am very sorry for them I don't care if I have celiac or NCGS I won't intentionally cause myself that much pain and suffering it's not worth it.  
    • knitty kitty
      results from 13 day gluten challenge - does this mean I can't have celiac?

      By knitty kitty · Posted

      @catnapt,  Wheat germ contains high amounts of lectins which are really hard to digest and can be irritating to the digestive tract.  They can stimulate IgG antibody production as your blood test shows.   Even beans have lectins.  You've simply eaten too many lectins and irritated your digestive tract.   You may want to allow your digestive tract to rest for a week, then start on gluten in "normal" food, not in concentrated vital wheat gluten. This explains it well: Lectins, agglutinins, and their roles in autoimmune reactivities https://pubmed.ncbi.nlm.nih.gov/25599185/
    • knitty kitty
      My journey is it gluten or fiber?

      By knitty kitty · Posted

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    • catnapt
      results from 13 day gluten challenge - does this mean I can't have celiac?

      By catnapt · Posted

      good luck! vital wheat gluten made me violently ill. I will touch the stuff ever again.  
    • catnapt
      results from 13 day gluten challenge - does this mean I can't have celiac?

      By catnapt · Posted

      I wouldn't consider this lucky. I can NOT tolerate the symptoms. And I googled it and I was not even getting 10 grams of gluten per day and I was extremely ill. They'd have to put me in the hospital. I'm not kidding.   I will have my first appt with a GI dr on March 4th   I will not eat gluten again - at least not on purpose   they are going to have to come up with a test that doesn't require it. 
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