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RakkasanWife

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RakkasanWife Rookie
RakkasanWife
Posted

Hi folks....I'm needing some help!

My 11yo daughter was diagnosed about 2 1/2 weeks ago with celiac disease. This was based solely on description of symptoms. The doc has not run a single test and didnt know I have a family history of celiac disease untill after she told me her diagnosis. Well, we immediatly put her on the gluten free diet. I did see some improvement almost immediately (she stopped needing pepto bismol two-three times a week, and her attitude started improving). But knowing how military medicine seems to be all knowing (*cough*yea-right*cough*) I decided to put her on an extremely reduced gluten diet after two weeks of being gluten free. That way there would be *some* gluten in her system so they could at least run the blood tests once we get to our next duty station.

So her first gluten containing meal in two weeks...she had one small pig-in-a-blanket and two pieces of sweet and sour chicken (breaded in whatever it is that they bread it in to get that smooth texture) and miscelaneous other items that she has had before on other occasions.

Before she even finished eating, she started breaking out in hives at the dinner table!!! All up her chest and around her back. We gat home, she took her zyrtec and they went away.

Now is this a "normal" reaction for someone with celiac disease or a food alergy? I'm asking so I know whether she needs to see the GI doc and an alergist, or just the GI or just the alergist, etc.

Thanks!

btw, we're back to exclusively gluten free....screw the tests!

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Mtndog Collaborator
Mtndog
Posted
Hi folks....I'm needing some help!

My 11yo daughter was diagnosed about 2 1/2 weeks ago with celiac disease. This was based solely on description of symptoms. The doc has not run a single test and didnt know I have a family history of celiac disease untill after she told me her diagnosis. Well, we immediatly put her on the gluten free diet. I did see some improvement almost immediately (she stopped needing pepto bismol two-three times a week, and her attitude started improving). But knowing how military medicine seems to be all knowing (*cough*yea-right*cough*) I decided to put her on an extremely reduced gluten diet after two weeks of being gluten free. That way there would be *some* gluten in her system so they could at least run the blood tests once we get to our next duty station.

So her first gluten containing meal in two weeks...she had one small pig-in-a-blanket and two pieces of sweet and sour chicken (breaded in whatever it is that they bread it in to get that smooth texture) and miscelaneous other items that she has had before on other occasions.

Before she even finished eating, she started breaking out in hives at the dinner table!!! All up her chest and around her back. We gat home, she took her zyrtec and they went away.

Now is this a "normal" reaction for someone with celiac disease or a food alergy? I'm asking so I know whether she needs to see the GI doc and an alergist, or just the GI or just the alergist, etc.

Thanks!

btw, we're back to exclusively gluten free....screw the tests!

Hi- If they were truly hives, it sounds like an allergic reaction. But, there is a reaction with celiac called DH where the skin breaks out. I don't have it so I don't know much about it but there is a whole section of this board devoted to it (Dermatitis Herp.)

But if the antihistamine worked, you could be dealing with an allergic reaction. There are lots of people on here who are both allergic/intolerant so maybe they can help you more.

Welcome though- that must have been SO scary. I'm sorry you and she had to go through that. :( Beverly

RakkasanWife Rookie
RakkasanWife
Posted
  • Author
Hi- If they were truly hives, it sounds like an allergic reaction. But, there is a reaction with celiac called DH where the skin breaks out. I don't have it so I don't know much about it but there is a whole section of this board devoted to it (Dermatitis Herp.)

But if the antihistamine worked, you could be dealing with an allergic reaction. There are lots of people on here who are both allergic/intolerant so maybe they can help you more.

Welcome though- that must have been SO scary. I'm sorry you and she had to go through that. :( Beverly

Thanks Beverly

I guess thats what I was wondering....if it was possible for it to be both (intolerance and now allergy).

It wasn't all that scary...I was an EMT in the Army, so I knew it wasnt a severe reaction, so Morganne saw me reacting nonchalantly and followed suit. I think we were both more annoyed (and at the same time kinda resigned to going back on the diet). At least she's stopped complaining about it (as much lol). She's actually checking labels now and helping me to figure out what she can and can't eat. She's starting to accept that she cant have wonder bread anymore and that she's going to have to find a way to get used to new flavors and textures of old favorite foods.

Thanks again!

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