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Anyone Else In Central Upstate Ny?

TriticusToxicum

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TriticusToxicum Explorer
TriticusToxicum
Posted
  • Author
Hi all, I am from Conklin, NY. Did anyone else get hit by the June flood. Boy it is hard being gluten-free in a FEMA trailer. Major break out of DH going on and it is miserable. Almost back in the house though

I'm from Oneonta, up the Susquehanna from you. I didn't get flooded out of my house, but the town of Oneonta and surrounding area was hammered. Much of the city was under water for the better part of a week. The sewage treatment plant was underwater and nonfunctioning until September (sorry about the raw sewage dumped into the river :ph34r: ) Many of the roads are still showing some damage from the flood.

I hope your situation turns around for you very soon.

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jcgirl Apprentice
jcgirl
Posted
I'm from Oneonta, up the Susquehanna from you. I didn't get flooded out of my house, but the town of Oneonta and surrounding area was hammered. Much of the city was under water for the better part of a week. The sewage treatment plant was underwater and nonfunctioning until September (sorry about the raw sewage dumped into the river :ph34r: ) Many of the roads are still showing some damage from the flood.

I hope your situation turns around for you very soon.

'Willi Wonka Chocolate River' as my 13 year old liked to call it has cleared up and behaving itself for the most part. Gave us a scare a couple times though when it creeped back up the bank. Things are finally moving along with a new crew working on the house. I will even have my very own gluten free kitchen pantry cabinet. With 4 kids it is hard to keep them out of my gluten-free snacks and especially the fruity pebbles.

  • 3 months later...
MegNY Newbie
MegNY
Posted

I'm from Buffalo too!

CanadianKaren... The Library -- good times!

--Meg

  • 3 weeks later...
SocietyInDenial Newbie
SocietyInDenial
Posted

I'm from Albany!

And, does anyone have information on support groups around here? I know that there is one at St. Peter's Hospital but they only meet a few times a year, and I would love to go to a celiac disease group weekly/monthly. Maybe AmyMarie? Any in Saratoga?

jacqui Apprentice
jacqui
Posted
I've been to the grapefest in Naples...never knew you could/would make a grape pie!

NY/NYC - uh huh!

Pic is from the Catskills last year. I prefer the Adirondacks (call me a mountain snob! :lol: ), but the Catskills are closer (and easier on the knees!).

I was for the Bronx and really grew up in Greenwood Lake NY (on the Jersey border about 50 min. northwest of the city), a small country town. I absolutely know what you guys mean about NY/NYC, I moved to California in '89 - WOW, I just realized how long I have been living out here - yikes :huh:

People were so absolutely rude once they heard me talk, granted I did have a very strong Bronx accent, but they assumed I was what everyone stereo types NYC as - Honestly I can't remeber what I wanted to say/word I wanted to use.

But then on the other hand I thought of California as palm trees, beaches and the ocean, boy did I have a rude awakening when I moved in with my brother in Union City California!! I hated it here for the first year!!

jacqui Apprentice
jacqui
Posted
I'm from Albany!

And, does anyone have information on support groups around here? I know that there is one at St. Peter's Hospital but they only meet a few times a year, and I would love to go to a celiac disease group weekly/monthly. Maybe AmyMarie? Any in Saratoga?

Hi there,

My sister lives downstate and has celiac disease, newly dx'd. I was 1st last April and she was in denial until mid-January 2007..

Anyway, my point is she may be moving up to the Albany area by this summer.

Have you called GIG or Celiac Sprue Assoc.? Their websites are where I found our support group.

powderprincess Rookie
powderprincess
Posted

Hi Everyone,

I am not in Upstate anymore but I loved reading this post. I went to school at Syracuse and LOVED it there. I worked at Song Mountain in Tully my senior year. Clearly the best job I've ever had (alright, most fun job anyway). I have family and friends in a lot of the places you mentioned :)

Just popping in to say "hey" and I love NY.

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  • 3 years later...
Kre8sioN Newbie
Kre8sioN
Posted

Newburgh, Ny (town of) new here, adjusting

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    • knitty kitty
      Help understand results

      By knitty kitty · Posted

      That test is saying that your daughter is not making normal amounts of any IGA antibodies.  She's not making normal amounts of antibodies against gliadin, not against bacteria, not against viruses.  She is deficient in total IGA, so the test for antigliadin antibodies is not valid.  The test was a failure.  The test only works if all different kinds of antibodies were being made.  Your daughter is not making all different kinds of antibodies, so the test results are moot.  Your daughter should have the DGP IgG and TTG IgG tests done.   The tests should be performed while she is still consuming gluten.  Stopping and restarting a gluten containing diet can make her more sick, just like you refuse to eat gluten for testing.  Call the doctor's office, request both the IGG tests. Request to be put on the cancellation list for an appointment sooner.  Ask for genetic testing.   Celiac disease is passed on from parents to children.  You and all seven children should be tested for genes for Celiac disease.  Your parents, your siblings and their children should be tested as well.  Eating gluten is not required for genetic testing because your genes don't change.  Genetic testing is not a diagnosis of Celiac disease.  Just having the genes means there is the potential of developing Celiac disease if the Celiac genes are activated.  Genetic testing helps us decide if the Celiac genes are activated when coupled with physical symptoms, antibody testing, and biopsy examination. It's frustrating when doctors get it wrong and we suffer for it.  Hang in there.  You're a good mom for pursuing this!  
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    • trents
      Positive biopsy

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      Welcome to the celiac.com community @pothosqueen!   Can you be more specific about which IGA test was run that resulted in 114 score and said to be "normal" and could you please include the reference range for what would be normal? By the size of that number it looks like it may have been what we call "total IGA" but that test is not usually run without also running a TTG-IGA. Total IGA tests for IGA deficiency. If someone is IGA deficient, then the celiac-specific IGA tests like the TTG-IGA will be inaccurate. Was this the only IGA test that was run? To answer, your question, yes, a positive biopsy is normally definitive for celiac disease but there are some other medical conditions, some medications and even some food proteins in rare cases that can cause positive biopsies. But it is pretty unlikely that it is due to anything other than celiac disease.
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      Upper endoscopy last week resulted in positive biopsy for celiac disease. The IgA they ran was normal (114). Does positive biopsy automatically mean definitive diagnosis?
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