Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

"special" Circumstances


clbevilacqua

Recommended Posts

clbevilacqua Explorer

While I wouldn't generally do something like this for myself (gluten-free for 4 yrs), I will stand up for each and every right that my DD (gluten-free for 1-1/2 yrs) has:

Our local theater, which has few if any gluten-free options-even in the candy section, refused to allow my DD to bring in her gluten-free food that she brought with her, stating that it was "policy" and if they allowed her to do it, then everyone would want to. We DO buy drinks there (at an enormous profit to them) but there is really nothing she can eat. Well, after arguing with the manager, she finally said she would allow "this time only". I later found out that the American Disabilities Act actually allows celiacs (and others with diagnosed eating disorders) the RIGHT to bring our own food into any establishment that does not offer us equal access, regardless of their company policies. Since that time I have taken food into other countries that would not normally have allowed such transport and have taken it on planes, even during these past few months because it has been a medical neccessity and TSA can't change or alter the Disablities Act-just give yourself enough time to CALMLY present your case and have everything individually inspected INCLUDING your checked luggage. Don't be antagonistic, but do be firm. Realizing that my DD and I were included in the ADA changed my outlook; this is NOT my choice, this is NOT something I "did" to myself, this is not my fault-consequently-much less frustration BUT I did have to become well prepared to fight for our rights.

While I never thought of the ADA as being for me, as I am an otherwise healthy (albeit overweight) person, I have discovered that it is not just for the obviously disabled-it is a long, wordy law that was intended to make "the pursuit of happiness" do-able for all Americans, regardless of the "size" or "obviousness" of their handicap/disability and eating disorders, allergies or whatever you want to call them are listed in the ADA.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Ursa Major Collaborator

I always bring my own food, be it air-plane or theater. This far nobody has protested, but if anybody ever does, I'll give them such a fabulous lecture on celiac disease and other intolerances (nice and calm, even if it will be hard), that they'll wish they had never asked. :rolleyes::D

Random Guy Apprentice

interesting...

a few weeks back, I had to throw out my tuna packets.

i was like "you've got to be kidding me - tuna is a solid!"

to which they responded "but it's packed in water. toss it or check your luggage"

this was my back-up meal in case nothing else offered at someone's home was good for me - for the next 5 meals.

"toss it" i disgustedly replied

i can't imagine they would've been talked into anything. I don't have documented proof of having celiac. I didnt' have anything that explained celiac.

but i'm flying again soon

this is something to look into .

thanks

-rg

eKatherine Apprentice
Since that time I have taken food into other countries that would not normally have allowed such transport and have taken it on planes, even during these past few months because it has been a medical neccessity and TSA can't change or alter the Disablities Act-just give yourself enough time to CALMLY present your case and have everything individually inspected INCLUDING your checked luggage.

Keep in mind that the ADA has zero effect on the actions of anyone outside the borders of the USA and plan accordingly.

clbevilacqua Explorer

That's true that the ADA doesn't apply in other countries-but in looking into ADA issues, I talked with my doctor and he told me I could take food into other countries as medical supplies, which is legally recognized by them. It does require some foreplanning, but it certainly beats trying to read a foreign ingredient list.

lpellegr Collaborator

I carry a note from my doctor in my wallet - it's written on a prescription blank and says that this patient requires a special diet. I haven't had to use it yet, but I got it with the ADA in mind - I figured somewhere I would run into some yahoo in a ball park or other place who wouldn't want me to take in my fanny pack of gluten-free snacks and only by waving this official-looking note and invoking the ADA would I manage to change his mind. That's the theory, anyway. There was also a good thread here a while back about how to smuggle food - cargo pants, inner pockets of jackets - my favorite was to tuck it into the bottom of a box of tampons because nobody wants to inspect that!

crittermom Enthusiast

I am so glad I found this thread! I am traveling with my 4 year old daughter, diagnosed celiac 1 week ago and my son who is allergic to dairy and soy with reflux on friday. We are visiting my husband before he leaves for Kuwait. Food would never keep us away from this visit, but jeez, it has been a real anxiety for me the last few days. I am going to call the dr and get a note!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



moving on Apprentice

I've just returned from a trip and carried 3 - 3 ounce cans of tuna or chicken. I had them in my carry on luggage and was allowed to keep them. I was told that since they contained water they should be put in the 1 quart ziplock bag along with other items. The cans should not be larger than the 3 oz size and all liquids and gels should fit in one ziploc bag that should be the 1 quart size and no larger.

Guest cassidy

This has been an issue for me several times. I went to a football game a few weeks ago and I called the disabilities number ahead of time trying to get an ok for me bringing some food in. I'm pregnant so there is no way I could go 4 hours without food. I also have a doctors note and they said that didn't matter. They said I couldn't bring anything in. The cop checking bags was busy with someone else when I walked in so I quickly walked by and my bag wasn't checked.

There may be a law protecting us but no one I have dealt with seems to be respectful of it. I almost want to talk to a lawyer and have the number with me so the next time I'm denied I can really threaten to call up a lawyer. It isn't like I'm ever trying to bring in a whole picnic basket for me and all my friends - I usually just bring in a boost shake and some fruit.

  • 5 months later...
BrisQuil Newbie

Do beware though, speaking as someone from a country with some of the tightest quarantine laws in the world, that you will not be permitted to bring any products containing fresh food (fruit, vegetables, seeds etc), meat or dairy products and eggs into Australia or New Zealand. Processed foods etc are fine, but you will be throwing them all out in Customs. It would be such a pity to carry them all that way to have to throw them out. Check out websites before you go. Unfortunately our special circumstances aren't enough to jeopardise an entire countries livestock and produce!

debmidge Rising Star

Question to world travelers then: would it then be safe to presume that when US person is traveling to countries whose official language is English, even if you had to ditch your supplies it wouldn't be so difficult to buy new ones when there? Especially when going to countries who acknowledge celiac disease more than ours does?

BrisQuil Newbie

I can only speak for Australia (New Zealand is a little harder, but still OK) and UK and Argentina (and that is Spanish, but I still did it!) but it will be easy for you to find your way around a gluten-free diet here. In the medical community it was just discussed at an international conference how low the awareness of coeliac disease is in North America and certainly medical awareness and general community and restaurant awareness is much higher here (the products in the supermarkets might not be as good, but otherwise we are pretty good) than US or Canada.

Spare a thought for Finland - the incidence is 1 in 50 there. Maybe the rumours of gluten-free McDonald's burgers are true. That's more common than diabetes!

lovegrov Collaborator

I woud think, although I'm no ADA expert, that if the theater offers anything that's gluten-free, the ADA wouldn't apply. I might be wrong, but I don't think the ADA is supposed to guarantee that you have the same selection as everybody else, especially not when we're talking snack or junk food.

Of course I don't know your local theater, but at all of our theaters -- chain and privately owned -- I can have the soft drinks, popcorn, and at least half if not more of the candy (Reese's, Junior Mints, Mike and Ike, Sweet Tarts, and Tootsie Rolls seem to be in most theaters and all are gluten-free). I've yet to find a popcorn that isn't gluten-free.

Having said that, I do sometimes take my own candy in but all I do is put it in my pocket. Do they actually search your pockets or pocketbook going in?

richard

Phyllis28 Apprentice

Theater:

I bring my own food to the theater or eat before I go. I put it into my purse so there are no questions. I apply this same process when I go to other places that have a "policy" against bringing in your own food. It works as long as no one in security is hand checking bags. The food is usually not noticed if it is only going through x-ray machine.

Travel:

I used to carry all the food I wanted to bring from home on the airplane. With the new restictions I carry on what I need for the trip plus a little extra. If it is something that might be questioned, like premade pizza (dinner at the end of the trip), I freeze it. I check the rest and hope the airline does not loose my bags.

I try to buy the bulk of my food at my destination.

tarnalberry Community Regular
I woud think, although I'm no ADA expert, that if the theater offers anything that's gluten-free, the ADA wouldn't apply. I might be wrong, but I don't think the ADA is supposed to guarantee that you have the same selection as everybody else, especially not when we're talking snack or junk food.

Of course I don't know your local theater, but at all of our theaters -- chain and privately owned -- I can have the soft drinks, popcorn, and at least half if not more of the candy (Reese's, Junior Mints, Mike and Ike, Sweet Tarts, and Tootsie Rolls seem to be in most theaters and all are gluten-free). I've yet to find a popcorn that isn't gluten-free.

Having said that, I do sometimes take my own candy in but all I do is put it in my pocket. Do they actually search your pockets or pocketbook going in?

richard

I would think the same, and my blood sugar dips just thinking about it. Thank goodness Cliff Nectar bars and Bumble Bars are small. Go ahead, just try to search there Mr. Ticket Taker!

Jestgar Rising Star
I would think the same, and my blood sugar dips just thinking about it. Thank goodness Cliff Nectar bars and Bumble Bars are small. Go ahead, just try to search there Mr. Ticket Taker!

:lol: :lol: :lol:

Having visions of stuffing my bra with gluten-free goodies

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      results from 13 day gluten challenge - does this mean I can't have celiac?

    2. - knitty kitty replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      results from 13 day gluten challenge - does this mean I can't have celiac?

    3. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      results from 13 day gluten challenge - does this mean I can't have celiac?

    4. - knitty kitty replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      results from 13 day gluten challenge - does this mean I can't have celiac?

    5. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      results from 13 day gluten challenge - does this mean I can't have celiac?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,368
    • Most Online (within 30 mins)
      7,748

    Helen1984
    Newest Member
    Helen1984
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • catnapt
      so do you have celiac or not? 🤔 why are your vision issues undiagnosed? 😢 what does your ophthalmologist say?  do you have a serious vit A deficiency? what do you take for it? how long have you had celiac disease and how long did  it take to get a diagnosis?   if you are legally blind there are adaptive devices that will help you. I have vision difficulties as well but did not qualify (at least not yet)   do you have a vit A deficiency? why are you undiagnosed? what does your ophthalmologist say? I have a retinal specialist and he tells me my eye condition can not be fixed- until/unless it gets to the point of where surgery is safer since the surgery can leave me actually blind... so you want to wait til it gets really bad 🤪     I hope you find what works for you.    PS   the medication I started at the same time as the gluten challenge is obvious from the condition it's trying to treat. you can google it 😉 it is not an for any auto immune condition.   
    • knitty kitty
      @catnapt,  I apologize.  Obviously I've confused you with someone else.  I have vision problems due to undiagnosed Celiac complications.  Being legally blind, y'all look the same from here.   You still have not said which new medication you started taking.  Parathyroid disorders can affect antibody production.  Bone Loss Correlated with Parathyroid Hormone Levels in Adult Celiac Patients https://pubmed.ncbi.nlm.nih.gov/36619734/ Effect of vitamin B1 supplementation on bone turnover markers in adults: an exploratory single-arm pilot study https://pmc.ncbi.nlm.nih.gov/articles/PMC12075007/
    • catnapt
      during the gluten challenge I did not consume any wheat germ   the wheat germ is TOASTED - it's the only way it is sold now afiak doesn't matter I consume vast amounts of lectin containing foods PROPERLY prepared and have for well over a decade. They do not bother me in the least.    no anemia however the endo who ordered the celiac panel is the one who suggested the 2 week gluten challenge of eating at least 2 slices of bread per day or a serving of pasta- ALSO put me on a new drug at the same time (not a good idea)  I ate 4 slices because they were thin, or 2 English muffins, and just once some lasagna that someone else made since I stopped eating wheat pasta years ago. The English muffins caused some of the worst symptoms but that pc of lasagna almost killed me ( not literally but the pain was extreme) during those 12 days there were at least 3 times I considered going to Urgent Care.   This entire process was a waste of time TBH due to being on that new drug at the exact same time. it is impossible to tell if the drug I am taking for the possible renal calcium leak is working or not- given the dramatic response to the gluten challenge and resulting nausea (no vomiting) and eventually a loss of appetite and lower intake of foods so now I have a dangerously low potassium level   I don't have a simple case of celiac or no- I have an extremely complicated case with multiple variables I am seeing an endocrinologist for a problem with the calcium sensing glands - that system is very complicated and she has been unable to give me a firm diagnosis after many tests with confusing and often alarming results. She also appears to be inexperienced and unsure of herself. but I don't have the luxury of finding a new endo due to multiple issues of insurance, lack of drs in my area, money and transportation. so I'm stuck with her At least she hasn't given up    in any case I can assure you that lectins are not and never were the problem. I know they are a favorite villain in some circles to point to, but I have ZERO symptoms from my NORMAL diet which DOES NOT contain gluten. The longer I went without bread or foods with wheat like raisin bran cereal, the better I have felt. my body had been telling me for several years that wheat was the problem- or maybe specifically gluten, that remains to be seen- and stopping eating it was the best thing I could have done   I almost had unnecessary MAJOR SURGERY due to joint pain that I ONLY have if I am eating bread or related products I assumed it was the refined grains - never really suspected gluten but it does not matter I won't put that poison in my body ever again not that it is literally poison but it is def toxic to me        
    • knitty kitty
      @catnapt,  I'm sorry you're having such a rough time.   How much wheat germ and how much gluten were you eating? Lectins in beans can be broken down by pressure cooking them.  Do you pressure cook your beans?  Were you pressure cooking your wheat germ? What drugs are you taking?  Some immunosuppressive drugs affect IgA production.  Do you have anemia?
    • catnapt
      oops my gluten challenge was only 12 days It started Jan 21s and ended Feb 1st   worst 12 days of my life   Does not help that I also started on a thiazide-like drug for rule in/out renal calcium leak at the exact same time No clue if that could have been symptoms worse 🤔
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.