Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Questions About Celiac Disease

Gutcheck

By Gutcheck
in Coping with Celiac Disease

Recommended Posts

Gutcheck Newbie
Gutcheck
Posted

I am a celiac patient. I've known that I had Dermititus Herpediformus (sp?) for about 20 years. Recently I had the gut-scope done to me and found I have Celiac Sprue. Since being diagnosed with D.H. long ago, I have taken Dapsone every day and kept eating whatever I wanted. Upon learning of this new development, I have decided to try to go 100% gluten free and see if it affects how I feel. But I have some questions that I need answers for:

1. Does the amount of gluten ingested affect the amount of villi damage done? In other words, is one little particle of gluten like a duodenal atomic bomb - flattening villi in all directions - or is it dependant on how much gluten you have eaten in determing the amount of damage done?

2. They told me if I went gluten-free that my villi damage was not permanent and they would begin growing back normally. What is the time period for this rejuvenation?

3. Is Dapsone bad for you?

4. Is "Ezekial" brand bread really Gluten Free? Dr. Phil's wife said it was.

5. What about 1-a-day vitamins for men and Tums?

Thanks in adavance for any information you can give me.

And when will Bard'sTale Beer be available? It's supposed to be the only Gluten-free beer available.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


lovegrov Collaborator
lovegrov
Posted

If you have DH andd celiac you don't need to just "try" going gluten-free, you NEED to go gluten-free. While one crumb of gluten will not flatten all your villi, continued exposure to gluten can slowly make you sicker and sicker. You also remain more likely to develop certain cancers and other autoimmune diseases. It's possible you could go along for years with no problems, or things could slowly pile up until you end up in the hospital, like I did.

Dapsone can have severe side effects in some people, but thsoe side effects are rare and can be montiored with regular visits to the doctor. I took it for more than 20 years but wasn't aware of the connection with celiac.

Ezekiel bread is not gluten-free. Some claim sprouted wheat is OK but I wouldn't take the chance. Spelt is also off-limits. We all keep our fingers crossed for Bard's beer. They're trying to find ways and places to distribute it now.

richard

Forty320 Newbie
Forty320
Posted

Just thought I'd mention, my mum used to sprout wheat regularly, but tests revieled the sprouts were not gluten-free.

Niteyx13 Explorer
Niteyx13
Posted

Open Original Shared Link

Also has gluten-free beer, but I don't think they ship. They are located in the NY area from what I can see. =)

Deanna

DawnI Rookie
DawnI
Posted

please make sure you stay gluten Free.........it gets easier as you go along and everyone is here For you.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,917
    • Most Online (within 30 mins)
      7,748
    tiffanygosci
    Newest Member
    tiffanygosci
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • knitty kitty
      Help I’m cross contaminating myself,

      By knitty kitty · Posted

      I followed the Autoimmune Protocol Diet which is really strict for a while, but later other foods can be added back into your diet.  Following the AIP diet strictly allows you digestive system to heal and the inflammation to calm down.  Sort of like feeding a sick baby easy to digest food instead of spicy pizza.   It's important to get the inflammation down because chronic inflammation leads to other health problems.  Histamine is released as part of the autoimmune response to gluten.  High histamine levels make you feel bad and can cause breathing problems (worsening asthma), cardiovascular problems (tachycardia), and other autoimmune diseases (Hashimoto's thyroiditis, diabetes) and even mental health problems. Following the low histamine version of the AIP diet allows the body to clear the histamine from our bodies.  Some foods are high in histamine.  Avoiding these makes it easier for our bodies to clear the histamine released after a gluten exposure.   Vitamin D helps regulate the immune system and calm it down.  Vitamin D is frequently low in Celiacs.  The B Complex vitamins and Vitamin C are needed to clear histamine.   Supplementing with essential vitamins and minerals boosts your intestines' ability to absorb them while healing.   Keep in mind that gluten-free facsimile foods, like gluten-free bread, are not enriched with added vitamins like their gluten containing counterparts are.   They are empty calories, no nutritional value, which use up your B vitamins in order to turn the calories into fuel for the body to function.   Talk to your doctor or nutritionist about supplementing while healing.  Take a good B Complex and extra Thiamine in the form Benfotiamine (shown to promote gut health).  Most B Complex vitamins contain thiamine mononitrate which the body cannot utilize.  Meats and liver are good sources of B vitamins.   Dr. Sarah Ballantyne wrote the book, the Paleo Approach.  She's a Celiac herself.  Her book explains a lot.   I'm so glad you're feeling better and finding your balance!
    • klmgarland
      Help I’m cross contaminating myself,

      By klmgarland · Posted

      So I should not eat my gluten free bread?  I will try the vitamins.  Thank you all so very much for your ideas and understanding.  I'm feeling better today and have gathered back my composure!
    • knitty kitty
      Taking Probiotics but Still Getting Sick After Gluten – Advice?

      By knitty kitty · Posted

      Some people prefer eating gluten before bed, then sleeping through the worst symptoms at night.  You might want to try that and see if that makes any difference.   Several slices of toast for breakfast sounds okay.  Just try to work up to the Ten grams of gluten.  Cookies might only have a half of a gram of gluten.  The weight of the whole cookie is not the same as the amount of gluten in it.  So do try to eat bread things with big bubbles, like cinnamon rolls.   Yeah, I'm familiar with the "death warmed over" feeling.  I hope you get the genetic test results quickly.  I despise how we have to make ourselves sick to get a diagnosis.  Hang in there, sweetie, the tribe is supporting you.  
    • Clear2me
      Gluten free nuts

      By Clear2me · Posted

      Thank you, a little expensive but glad to have this source. 
    • Xravith
      Taking Probiotics but Still Getting Sick After Gluten – Advice?

      By Xravith · Posted

      @knitty kitty  Thank you very much for the advice. I did the exam this morning, my doctor actually suggested me to take something called "Celiac duo test" in which I first do the genetic test and if it's positive, then I'll have to do the antigen blood test. I have to attend 1 month until my results are ready, so I have some weeks to increase the amount of gluten I eat daily. It will be hard because my health is not the best right now, but I also did a blood test to cheek my nutritional deficiencies. The results will arrive on Tuesday, so I can ask my doctor what should I do to control my symptoms and blood levels during this month. For now I'm resting and paying attention to what I eat— at least I don’t look like a vampire who just woke up, like I did yesterday. I'm still scared because is the first time I've felt this sick, but this is the right moment to turn things around for the better.  I realized that if I eat gluten at lunch I cannot finish the day properly, I become severely tired and sometimes my stomach hurts a lot - let's not talk about the bloating that starts later. Do you think is it ok to eat gluten just in the morning, like some cookies and slices of bread for breakfast? 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.