Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Another Condition Related To Celiac

debmidge

By debmidge
in Related Issues & Disorders

Recommended Posts

elaine33 Apprentice
elaine33
Posted
Welcome Elaine

Who cares what thread you come to join on..we're just glad your here.

Can you tell me what test your dr is doing to prove Leaky gut.

i'm needing to be tested for that also

Good luck

were glad you joined.

judy in philly

Hi Judy, I grew up in Media, by the way :), graduated from Penncrest, and still live in Delco.

The test I am having is an intestinal permeability test. I am doing it at home. I have to drink a sugar mixture and then spend six hours collecting all my urine, then mixing it in a few test tubes and sending it back to the lab. My doctor is at the Myrna Brind Center for Integrative Medicine at Jefferson in Philly. He said they will see if I am spilling things I should not be into my urine because my gut is letting through things in bigger chunks than it should be. If this is the case, then I imagine I am going to be allergic or having to avoid a whole lot of foods until we can get this healed, if this is indeed the case. I am gathering they think wheat and/or other food allergies caused this, but this is all very new to me so I might be messing up some of the info right now.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Judyin Philly Enthusiast
Judyin Philly
Posted
Hi Judy, I grew up in Media, by the way :), graduated from Penncrest, and still live in Delco.

The test I am having is an intestinal permeability test. I am doing it at home. I have to drink a sugar mixture and then spend six hours collecting all my urine, then mixing it in a few test tubes and sending it back to the lab. My doctor is at the Myrna Brind Center for Integrative Medicine at Jefferson in Philly. He said they will see if I am spilling things I should not be into my urine because my gut is letting through things in bigger chunks than it should be. If this is the case, then I imagine I am going to be allergic or having to avoid a whole lot of foods until we can get this healed, if this is indeed the case. I am gathering they think wheat and/or other food allergies caused this, but this is all very new to me so I might be messing up some of the info right now.

Hi

Thanks for the fast rely..

Son whose 31 graduated from Penncrest also.

Wish i could remember the year..wow my brain fog..

this place at Jeff sounds great.

how did you find your way there?

Did you get a celiac disease dx from a gasto or internist or this place?

lots of questions..I've been gluten-free for 16 months and was doing so well and now seems like alot of this 'leaky gut and possible adrenal fatigue' are coming up.

thanks for the info on the test.

can you get this though you personal dr.?

judy

debmidge Rising Star
debmidge
Posted
  • Author

I don't know if a GI can do what a Proctologist does.....seems like the same territory but only your GI can tell you ......

You might need to go to separate doctors after all....

We are going for a second opinion next week...

elaine33 Apprentice
elaine33
Posted

this place at Jeff sounds great.

how did you find your way there?

Well my son and I had been to a ton of different purely medical doctors. Some were totally not helpful and some were trying really hard to be helpful but had no real answers for us. My sister has MS (now I'm thinking she's celiac), and she has done totally holistic therapies including dietary restrictions and has done fairly well. I know my husband is pretty leary of holistic docs, plus I haven't really worked significantly since my health problems started so I needed to find a place that took my insurance for financial reasons. I went online and googled integrative medicines and just gave it a shot. I have been pretty pleased so far.

Did you get a celiac disease dx from a gasto or internist or this place? I actually don't have a diagnosis yet, but this Dr who is an MD is nearly 100 percent that I have a leaky gut. He is going to have me take this test (am waiting on receiving the sugar compound from the pharmacy), and he sent my son to a nutritionist, who also felt I had progressed from wheat/milk allergy into leaky gut. She wants me to start on elimination diet right after I take this Mannitol test (intestinal permeability).

lots of questions..I've been gluten-free for 16 months and was doing so well and now seems like alot of this 'leaky gut and possible adrenal fatigue' are coming up.

thanks for the info on the test.

can you get this though you personal dr.? I don't think I can get this through my personal md. I only go to him for sore throats and flu shots. I am having to pay for the intestinal test but it is only $100.

Hope this helps.

Judyin Philly Enthusiast
Judyin Philly
Posted

tHANKS ELAINE

SO MUCH HELP HERE. PLEASE KEEP ME POSTED ON THIS THREAD OR IN A PM OR EMAIL FROM HERE.

HUGS

JUDY

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. trents
      - trents replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      Positive biopsy

      Wow! You're pretty young to have a diagnosis of SMA syndrome. But youth also has its advantages when it comes to healing, without a doubt. You might be surprised to find out how your health improves and how much better you feel once you eliminate gluten from your diet. Celiac disease is an autoimmune disorder that, when gluten is consumed, triggers an...
    2. pothosqueen
      - pothosqueen replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      Positive biopsy

      26F!
    3. pothosqueen
      - pothosqueen posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      Celiac for dummies

      I was just diagnosed at 26 after accidental finding. Any simple tips for newbies? Things a non celiac would never think of? I already went through my prescriptions and identified some medications that have gluten. Is there a beginners guide? Celiac for dummies?
    4. trents
      - trents replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      Positive biopsy

      Would it be rude to ask your age?
    5. pothosqueen
      - pothosqueen replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      Positive biopsy

      Wow! Thank you @trents I really appreciate the responses. This line of diagnosis has me questioning a lot of symptoms over the course of my life. Very validating and very much a bummer at the same time.
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,005
    • Most Online (within 30 mins)
      7,748
    William Boyd
    Newest Member
    William Boyd
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • trents
      Positive biopsy

      By trents · Posted

      Wow! You're pretty young to have a diagnosis of SMA syndrome. But youth also has its advantages when it comes to healing, without a doubt. You might be surprised to find out how your health improves and how much better you feel once you eliminate gluten from your diet. Celiac disease is an autoimmune disorder that, when gluten is consumed, triggers an attack on the villous lining of the small bowel. This is the section of the intestines where all our nutrition is absorbed. It is made up of billions of tiny finger-like projections that create a tremendous surface area for absorbing nutrients. For the person with celiac disease, unchecked gluten consumption generates inflammation that wears down these fingers and, over time, greatly reduces the nutrient absorbing efficiency of the small bowel lining. This can generate a whole host of other nutrient deficiency related medical problems. We also now know that the autoimmune reaction to gluten is not necessarily limited to the lining of the small bowel such that celiac disease can damage other body systems and organs such as the liver and the joints and cause neurological problems.  It can take around two years for the villous lining to completely heal but most people start feeling better well before then. It's also important to realize that celiac disease can cause intolerance to some other foods whose protein structures are similar to gluten. Chief among them are dairy and oats but also eggs, corn and soy. Just keep that in mind.
    • pothosqueen
      Positive biopsy

      By pothosqueen · Posted

      26F!
    • pothosqueen
      Celiac for dummies

      By pothosqueen · Posted

      I was just diagnosed at 26 after accidental finding. Any simple tips for newbies? Things a non celiac would never think of? I already went through my prescriptions and identified some medications that have gluten. Is there a beginners guide? Celiac for dummies?
    • trents
      Positive biopsy

      By trents · Posted

      Would it be rude to ask your age?
    • pothosqueen
      Positive biopsy

      By pothosqueen · Posted

      Wow! Thank you @trents I  really appreciate the responses. This line of diagnosis has me questioning a lot of symptoms over the course of my life. Very validating and very much a bummer at the same time. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.