Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How Much Would You Pay For A Pill?

asdfgh

Recommended Posts

asdfgh Newbie
asdfgh
Posted

I am doing some research on developing potential new therapies for celiac disease and am wondering, how much would you be willing to pay each day if you could take a pill that would let you eat a normal diet? How much would you pay per year?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


RDV Newbie
RDV
Posted

Thats a good question. at $5 to $6 a loaf of brick like bread and $8 a box for average cornflakes...It adds up..I'd pay a lot if I could afford it. I'd start at $10 to $15 Canadian per week... About $500 to $800 per year...I 'd find that difficult to afford but I'd go for it!!! ...RDV:)

rsavage Newbie
rsavage
Posted

I wouldn't give one red cent for a pill. I have taken pills all of my life because of this disease. I would just keep on with the diet as is. I feel better than ever and have more energy than most 60 year olds should have. Pills? Thanks any way. RS

tarnalberry Community Regular
tarnalberry
Posted

I wouldn't take it regularly. Following the diet, when you get creative and good with your cooking (branching out where need be) really isn't that hard, and is healthy to boot. I'd consider paying up to $2/dose for special occasions, but that'd be ~twice a year.

gf4life Enthusiast
gf4life
Posted

I agree with Tiffany. I wouldn't use the pill on a daily basis, but would probably use it more than twice a year. Following the diet at home is easy, but we take chances every time we go out of the house and eat somewhere else. I would certainly like the option of having a pill that would lessen the reaction to accidental intake of gluten, but as a treatment everyday, so I could eat all the gluten filled foods I want...NO THANKS!

I don't think it would even be possible to develop a pill that would be able to keep the intestines from being damaged and I would not want to risk my health just to be able to eat more conveniently. I mean even Lactaid doesn't stop a person from being lactose intolerant. They still have to be cautious with dairy foods and it doesn't completely stop every reaction. With gluten we are talking actual intestinal damage, as well as an increase in the risk for intestinal cancer and other complications. It just isn't worth it.

God bless,

Mariann

Thomas Apprentice
Thomas
Posted

I'm not trying to be negative, but life isn't always about taking the easy way...

sunflower Newbie
sunflower
Posted

Do you mean a pill that would cure my celiac disease forever, or a pill that I would have to take everyday, till the end of my life, just to be able to eat gluten?

If you mean the former, I would pay any amount I could afford, even if it would take not just one "magical" pill, but a longer therapy (say, a few weeks or even a few months). If in the end I could hope to be cured, I would give it a try at any cost.

If you mean the latter, I'm not sure I would use it - maybe for special occassions, as the people above already said, and only if I could be sure that it really blocks the damage done to my intestines. Having a pill that would enable us to eat normally sounds just great, but I'd be worried about the side effects of taking any medication every day, for years and years. Surely that cannot be good for your liver. I'd be worried even more that the pill could not be 100% sure - like I'm not sure Lactaid helps you digest every single bit of lactose that you ingest. What if despite taking the pill, there would still be some amounts of gluten left that would hurt your intestines? In my case, I could not know about it for a long time, because I don't have symptoms after small amounts of gluten, but I would still suffer from it in the long run.

To be honest, when I first read the question, it reminded me of an opinion I have read in some newspaper some time ago, stating that it will be a long time before some kind of vaccination for AIDS will be invented, mainly because drug makers gain too much profit from selling all those medications that are believed to help people with AIDS live longer. I am not jumping to conclusions that the question that started this thread was asked with such meaning, and I think any efforts to find remedy for celiac disease should be supported, because some day, someone might manage to find it. Still, as for myself, I'd prefer a treatment for the disease itself and not for its effects only.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Guest Lindam
Guest Lindam
Posted

How much would I pay for a pill that would allow me to eat anything I wanted and not feel sick, GUARANTEED? Well right now I am on many different medications for celiac disease, which help me dramatically. If I could get rid of all those, take one pill and eat anything....HMMMM I think I would pay what I pay now for scripts monthly, about $100.00. If this magic pill would cure me forever, I would pay whatever I could afford.

I would hope that this pill would come with some sort of guarantee.

I hope this helps with you research.

Linda

crc0622 Apprentice
crc0622
Posted

It is so refreshing to actually hear people say they'd just stick with the diet. We live in such a "take a pill and it'll be okay" kind of time that I expected more people would go with that option. I have to agree. I don't think a medication could be developed which could guarantee that I wouldn't have other problems in the long run. Same kind of reasoning I use in my decision to avoid artificial sweeteners-all of them.

Linda-Do you mind my asking what meds you take? Just curious, as I didn't know anything really helped except gluten-free.

Celeste

EddieJP125 Explorer
EddieJP125
Posted

does anybody know about any research thats bein done on celiac disease that would give us some hope in the future for us or for our children to not have celiac disease?

i'm wondering how far they are from a cure?

Dwight Senne Rookie
Dwight Senne
Posted

Ditto to most of the other comments. I take ZERO pills or meds, and I like it that way! I will only take a pill if it is life or death - and even then I might stop and think about it!!! :P

Besides, why do I need a pill? I've already been cured! (the diet)

Since this disease is an autoimune disorder anyway, I doubt there ever will be a pill. Seems like more of a genetic engineering thing to prevent our offspring from getting it, rather than us being "cured".

Sadly, this is one of the biggest reasons this disease remains in the shadows. Since there is no pill, you don't have multi-billion dollar pharm. companies advertising on the evening blues every night. Just about everyone knows about acid reflux disease, erectile dysfunction, and a host of others because of these commercials.

Carriefaith Enthusiast
Carriefaith
Posted

If a celiac pill came out I would probably only use it to avoid cross-contamination when eating out or when eating at other people's houses. I don't know if I would trust it to use all the time. In order to convince me to use it all the time, I'd have to see good scientific results and scientific studies that prove that it works and does not allow any intestinal damage.

I would pay up to 75/year to use only when eating out, which would be about 2-3x a month if I had the pill.

-Carrie

pturse Apprentice
pturse
Posted

I don't take any pills other than vitamins but if there was a celiac pill, i'd take it probably every day. Not sure how much I'd be willing to shell out for it but I am italian and grew up italian my entire life . . . if there were no other side effects from the pill, I'd have more than one a day!

beelzebubble Contributor
beelzebubble
Posted

i also would use a pill like that sporadically, maybe once or twice a month, when i go to a bbq or party. it would be nice to be able to pick on something that i normally wouldn't have. i would pay 2 dollars (us) for that.

WHAT I WOULD PAY UPWARDS OF $5 FOR would be a pill that would stop a gluten reaction when it's already started. lol, keep dreaming, bubble.

tarnalberry Community Regular
tarnalberry
Posted

lol, I would pay $10-$20 for something that would stop a gluten reaction if I got contaminated!

  • 2 weeks later...
Littlewolf Newbie
Littlewolf
Posted

I know my BF missed pizzia and Olive Garden bread sticks. . .

If there was a pill my consern would be heath before luxury. If a pill a day could help relieve symptoms and help prevent/stop bodily damage it would be a worthwhile investment even if it wasn't a "magic cure". So much like insulin. . .it doesn't mean you can eat all the sugar you want but it makes living with it a ton easier.

gf4life Enthusiast
gf4life
Posted

I agree with the others, I WOULD pay for a pill that would completely stop in it's tracks a gluten reaction from contamination! The amount I would be willing to pay would depend on how well it worked! And as I said before would like the option of preventing a reaction when eating away from home, but why would I need to buy pills to take daily just to eat anything I wanted. I'm healthier now and losing weight for the first time since I was a teenager, and believe me that is a big deal! I am an overweight Celiac who chose to do the diet before I got sick to the point of weight loss and massive intestinal damage. To chose to go back on gluten and trust my new found health to a pill just seems odd to me. It might be nice to have a pill around for when we are on vacation and are eating out at every meal, since it is awful to feel sick while on vacation.

God bless,

Mariann

Pegster Apprentice
Pegster
Posted

If there were a "Gluten-Blocker" that I could take before Thanksgiving dinner at my sister-in-law's or before a special wedding dinner, I'd shell out $5 - $10 for - it to be able to eat without worry. As for a daily pill, I'd rather stay gluten-free, I think. I'm so used to it it's not a big deal.

WayneB Rookie
WayneB
Posted

If a daily pill could be developed to counter celiac disease, that would be a major breakthrough. I would pay $50/month easy. That wouldn't be much to live a normal life.

I am really surprised by some of the earlier replies. A pill would make my life easier as well as my spouse's. Travel would be easier on business trips and it would be great just to have a cold Miller Lite again !!!!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,903
    • Most Online (within 30 mins)
      7,748
    LamFam
    Newest Member
    LamFam
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Xravith
      Taking Probiotics but Still Getting Sick After Gluten – Advice?

      By Xravith · Posted

      Yes, you are right. Indeed, I’ve been feeling anemic since the beginning of this week, and today I felt horrible during a lecture at the university, I was trembling a lot and felt all my body incredibly heavy, so I had to come back home. I’ll do a blood test tomorrow, but I’m just worried about the possibility of it coming back negative. I’ve been eating two cookies in the morning as my only source of gluten over the past two weeks—could that affect the final result?
    • trents
      New (possible) celiac diagnosis

      By trents · Posted

      Welcome to the forum, @Judy M! Yes, he definitely needs to continue eating gluten until the day of the endoscopy. Not sure why the GI doc advised otherwise but it was a bum steer.  Celiac disease has a genetic component but also an "epigenetic" component. Let me explain. There are two main genes that have been identified as providing the "potential" to develop "active" celiac disease. We know them as HLA-DQ 2.5 (aka, HLA-DQ 2) and HLA-DQ8. Without one or both of these genes it is highly unlikely that a person will develop celiac disease at some point in their life. About 40% of the general population carry one or both of these two genes but only about 1% of the population develops active celiac disease. Thus, possessing the genetic potential for celiac disease is far less than deterministic. Most who have the potential never develop the disease. In order for the potential to develop celiac disease to turn into active celiac disease, some triggering stress event or events must "turn on" the latent genes. This triggering stress event can be a viral infection, some other medical event, or even prolonged psychological/emotional trauma. This part of the equation is difficult to quantify but this is the epigenetic dimension of the disease. Epigenetics has to do with the influence that environmental factors and things not coded into the DNA itself have to do in "turning on" susceptible genes. And this is why celiac disease can develop at any stage of life. Celiac disease is an autoimmune condition (not a food allergy) that causes inflammation in the lining of the small bowel. The ingestion of gluten causes the body to attack the cells of this lining which, over time, damages and destroys them, impairing the body's ability to absorb nutrients since this is the part of the intestinal track responsible for nutrient absorption and also causing numerous other food sensitivities such as dairy/lactose intolerance. There is another gluten-related disorder known as NCGS (Non Celiac Gluten Sensitivity or just, "gluten sensitivity") that is not autoimmune in nature and which does not damage the small bowel lining. However, NCGS shares many of the same symptoms with celiac disease such as gas, bloating, and diarrhea. It is also much more common than celiac disease. There is no test for NCGS so, because they share common symptoms, celiac disease must first be ruled out through formal testing for celiac disease. This is where your husband is right now. It should also be said that some experts believe NCGS can transition into celiac disease. I hope this helps.
    • Judy M
      New (possible) celiac diagnosis

      By Judy M · Posted

      My husband has had lactose intolerance for his entire life (he's 68 yo).  So, he's used to gastro issues. But for the past year he's been experiencing bouts of diarrhea that last for hours.  He finally went to his gastroenterologist ... several blood tests ruled out other maladies, but his celiac results are suspect.  He is scheduled for an endoscopy and colonoscopy in 2 weeks.  He was told to eat "gluten free" until the tests!!!  I, and he know nothing about this "diet" much less how to navigate his in daily life!! The more I read, the more my head is spinning.  So I guess I have 2 questions.  First, I read on this website that prior to testing, eat gluten so as not to compromise the testing!  Is that true? His primary care doctor told him to eat gluten free prior to testing!  I'm so confused.  Second, I read that celiac disease is genetic or caused by other ways such as surgery.  No family history but Gall bladder removal 7 years ago, maybe?  But how in God's name does something like this crop up and now is so awful he can't go a day without worrying.  He still works in Manhattan and considers himself lucky if he gets there without incident!  Advice from those who know would be appreciated!!!!!!!!!!!!
    • Scott Adams
      Patiently Waiting to See Results

      By Scott Adams · Posted

      You've done an excellent job of meticulously tracking the rash's unpredictable behavior, from its symmetrical spread and stubborn scabbing to the potential triggers you've identified, like the asthma medication and dietary changes. It's particularly telling that the rash seems to flare with wheat consumption, even though your initial blood test was negative—as you've noted, being off wheat before a test can sometimes lead to a false negative, and your description of the other symptoms—joint pain, brain fog, stomach issues—is very compelling. The symmetry of the rash is a crucial detail that often points toward an internal cause, such as an autoimmune response or a systemic reaction, rather than just an external irritant like a plant or mites. I hope your doctor tomorrow takes the time to listen carefully to all of this evidence you've gathered and works with you to find some real answers and effective relief. Don't be discouraged if the rash fluctuates; your detailed history is the most valuable tool you have for getting an accurate diagnosis.
    • Scott Adams
      Gluten free beer ?

      By Scott Adams · Posted

      In this case the beer is excellent, but for those who are super sensitive it is likely better to go the full gluten-free beer route. Lakefront Brewery (another sponsor!) has good gluten-free beer made without any gluten ingredients.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.