Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Scope Test


jknnej

Recommended Posts

jknnej Collaborator

So, since going gluten free, I've lost my voice....I am a singer (a soprano) but you'd never know it now because my voice is low and scratchy.

Now, when I had my endoscopy/biopsy, the dr looked at my vocal cords and they looked fine...he even took pictures. I took those pictures to an ENT-Ear, nose, throat doctor. She said that although the cords looked fine on the pictures, she would need to do HER scope test on me. Now, I walked out after that because:

they stick a tube/camera up your nose and down your throat and you are awake the entire time.

Now, I handled the GI biopsy just fine because I was OUT; that's fine with me. But now I am freaking out because she wants to do this test with me fully awake-they won't even allow you to have a sedative.

I REALLY need to find out what is wrong with my voice; I've already had to quit teaching choir because of this and I now teach English. I enjoy it, but I still need a voice to teach.

Help!!! Has anyone else had this test? Is it awful? Did they give you a sedative? I know I need to stop being a baby but it really freaks me out. I need to find out what's wrong with my voice before I do it permanent damage, if I haven't already....help!!!!!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Ursa Major Collaborator

I am afraid there is no other way for the specialist to look at your vocal cords. I feel it is very important she look at your vocal cords, the other doctor wouldn't really have known what to look for.

Are you sure that other intolerances aren't causing you to lose your voice? I constantly lost my voice before I went off all the foods I am intolerant to. Now I just realized that my voice has been fine for many months, no sore throats, no scratchy voice, or losing my voice.

So, there might be nothing wrong with your vocal cords, your vocal cords might be reacting to foods you're intolerant to. Something to consider.

theprincess Newbie

I'm studying to be a speech-language pathologist so I know some clinical stuff but MORE importantly, I'm a vocalist, too!

1. The test at the ENT is NOTHING. If they use a flexible scope, they will stick it down your nose (some people Afrin or numb you first) and it will hang to your vocal folds. It is uncomfortable but not painful at all <-- I am a major pain wussy. It sort of feels like if you snort water up your nose. This scope is actually good at identifying major things like nodules and bumps but not so good if you want a detailed view. So if they think they need to they will send you to an SLP who will perform a rigid scope (some ENTS do this but most just refer you)

2. The rigid scope is not painful at all because it doesn't "go down your throat" perse. The therapist wraps some gauze around your tounge and then pulls it out so that they can see the back of your throat. Then they take a metal stick with a camera on the end of it and look at your chords.

In both cases they will ask you to do a series of silly sounds so that they can watch the way your chords move. Sometimes one chord will get lazy or stop moving. This could be a cause of the scratchy sound and would not be able to be detected on the endoscopy (because you wouldn't be making noise and vibrating your chords against one another.)

I highly reccomend that you go back and let them do the test. It's not painful or scary and it could really help you. If you have some kind of reflux (which is common to Celiac I've heard) then treatment is very simple. Your doctor may want you to go to a SLP for therapy because vocalists can gain a lot from learning how to use their voices properly in ALL contexts.

I hope this wasn't too detailed or boring. Good luck! Feel free to e-mail or pm me if need be.

Ashley

jknnej Collaborator

Yeah, I guess I will have to have it done. I am such a wussy with things and gagging, though!

I really do need to find out what is up with my voice, though.

I am worried that if I have nodules, which is very possible considering I overuse my voice, how can I go on vocal rest as a teacher?

I do have reflux and I take Prevacid for it. But the endoscopy picture of my cords and esophagus show no damage, so that is good,....

Well, my appointment is Tuesday, 10/24. will they do it right then and there?

theprincess Newbie

Yep. I have had both scopes and an endoscopy and I SWEAR that the flexible nasal scope is no big deal. In fact, in school we volunteer on each other! If it was that bad I would be honest. (You won't gag from a scope down your nose most likely, either)

KEEP THIS IN MIND: It is highly unlikely that you have nodules if they weren't seen on the endoscopy. They are pretty obvious, kind of like little whiteheads. BUT there are a host of other things that could be wrong with the functioning of the chords. Thats why its important to have it done, because the endoscopy is not a functional test. You need to find out whats up so you can bless the world with your voice. GL again!

jknnej Collaborator

What other kinds of things could be wrong?

Hopefully no nodules...the problem the ENT said before I left was that there could be nodules on the underside of the chords because she could not see that part with the pics she had.

OK if you say it's not that bad I'll do it..hopefully I won't gag...I will be terrified, though!!

How is the rigid scope? Is that test worse than the flexible one?

theprincess Newbie

There are a ton of mildly irritating but totally fixable things that could be wrong. Also, it could be totally non-medically related that you just are doing some harmful things while you are teaching class, even without noticing it. It's easy to hurt your voice speaking - in fact - even easier than while singing!

I think the rigid scope is worse because I gag easily, I didn't gag with the flexible. GL - let me know how it goes.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



flagbabyds Collaborator

the flexible thing is not that bad and i have the worse gag reflex even during my sleep studies i couldn't have the tube down my throat cause i would be barfing everywhere before tehy got it down, they do numb your nose so you really don't feel a thing and it does not go to the back of your throat just into your nose

don't worry about it it is not something to stress over.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    2. - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    3. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    4. 0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

    5. - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,331
    • Most Online (within 30 mins)
      7,748

    Kristy2026
    Newest Member
    Kristy2026
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • knitty kitty
      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.