Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Liver Biopsy

Guest ~jules~

By Guest ~jules~
in Related Issues & Disorders

Recommended Posts

Guest ~jules~
Guest ~jules~
Posted

I'm having a liver biopsy on tuesday, and I'm getting a little nervous. Has anyone here ever had this done, if so would you share your experience? Thanks, julie

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Budew Rookie
Budew
Posted

My husband has done this twice. I go with him because he is realy out of it afterwards. He does not remember anything. Afterwards he has a tiny wound that healled quickly.

I actually laughed until my sides hurt waiting in recovery. Farts coming from everywhere. Recovery was with all kinds of folks who had another procedure that forces air into them. In recovery it was a concert of farts.

They also say recovery is a few hours. He is always there 10-15. Poor kid just needs the sleep I guess.

bmzob Apprentice
bmzob
Posted

I've had two when i was younger it's really no big deal. The only thing I was scared of because I was so little is I didn't want to leave my parents when they took me back. They knock you out and when you wake back up you have a small hole in your side, but its covered up with a bandage. Your not allowed to do any rigorous activity for a few days...but thats about it. It really isn't that bad at all.

teebs in WV Apprentice
teebs in WV
Posted

Jules,

I hope that all goes well for you. I am anxious to hear your experience as I think my GI is ready to send me to a surgeon for a liver biopsy (among other things).

Take care,

Tracy

  • 2 weeks later...
Anne AMP Apprentice
Anne AMP
Posted

Hi Jules,

How did your liver biopsy go? Did you get your results yet?

lorka150 Collaborator
lorka150
Posted

i had a liver biopsy this past summer (after having the appt since december! talk about nerves :)) and i missed your post - sorry! i hope things went well for you, and you get the results you need.

Anne AMP Apprentice
Anne AMP
Posted
i had a liver biopsy this past summer (after having the appt since december! talk about nerves :)) and i missed your post - sorry! i hope things went well for you, and you get the results you need.

What was the reason for the liver biopsy?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


lorka150 Collaborator
lorka150
Posted

normal liver enzymes are 40 or lower. mine were above 800 for about 3 months, and i had so many tests done. they teetered to about 250 for three months after that. there was a lot of concern - i had every test known to man, done.

Anne AMP Apprentice
Anne AMP
Posted
normal liver enzymes are 40 or lower. mine were above 800 for about 3 months, and i had so many tests done. they teetered to about 250 for three months after that. there was a lot of concern - i had every test known to man, done.

Was this related to celiac disease? Are the liver enzymes normal now?

teebs in WV Apprentice
teebs in WV
Posted

Mine are high also - have been for about 5 years, with Alk Phos being the highest (677 vs. normal range of 45 - 126). I have had many tests also, and go back to my GI 11/17. I hope he sends me to a surgeon like he mentioned last time I was there ...... I am so disgusted with this.

lorka150 Collaborator
lorka150
Posted

teebs,

for what it's worth, i see an internist rather than just a GI. (i see both, but it was the internist who wanted the biopsy).

teebs in WV Apprentice
teebs in WV
Posted

Thanks. After my GI appt on the 17th I hope he gives up and refers me. If not I am going to have my GP refer me to someone else. My GP is the one that sent me the GI for my liver issues and also enlarged lymph nodes in my abdominal cavity.

After 2 CT Scans, an MRI, and numerous blood tests, I hope this guy gives up. He wanted a 3rd CT scan and I reminded him that I had just had 2 done in the past few months. He "didn't realize" that we had done a 2nd.

Sorry for getting off on a tangent on this thread - I am just really frustrated and haven't felt well today and getting cranky.

Thanks for listening,

Tracy

debmidge Rising Star
debmidge
Posted
Thanks. After my GI appt on the 17th I hope he gives up and refers me. If not I am going to have my GP refer me to someone else. My GP is the one that sent me the GI for my liver issues and also enlarged lymph nodes in my abdominal cavity.

After 2 CT Scans, an MRI, and numerous blood tests, I hope this guy gives up. He wanted a 3rd CT scan and I reminded him that I had just had 2 done in the past few months. He "didn't realize" that we had done a 2nd.

Sorry for getting off on a tangent on this thread - I am just really frustrated and haven't felt well today and getting cranky.

Thanks for listening,

Tracy

You have every right to be cranky....so it's ok by me.

bpritt Newbie
bpritt
Posted

I had a transjugular liver biopsy last year to confirm celiac had caused elevated liver enzymes and not something else. My doctors went the transjugular route because I am on anticoagulants for DVT. Even though I was switched from Coumadin to Lovenox for the procedure (2 types of anticoagulants with different mechanisms), I had a hematoma at the catheter site on my jugular vein following the removal of the catheter. But this was a consequence of the combination of the transjugular procedure and anticoagulants. If you're not on anticoagulants, you'll have a different procedure and this won't be an issue.

Guest ~jules~
Guest ~jules~
Posted

I just noticed I abandoned my post. :D Well, the biopsy was nothing really. The worse part was having to stay in the hospital all day for observation afterward. Also I had to take two pain pills afterward because I had some pain in my upper body, shoulders, and neck. This could have been a side effect of relaxation drugs they gave me, or the procedure. I don't have autoimmune hep. (big suprise) its more than likely still inflamed from the celiac. I had the procedure done to rule out any other problems. Tracy, I hope yours goes well, its really not that bad....

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Aretaeus Cappadocia
      - Aretaeus Cappadocia replied to Clear2me's topic in Gluten-Free Foods, Products, Shopping & Medications
      4

      Gluten free nuts

      Azure Standard (https://www.azurestandard.com/) is one of my gluten-free vendors. I've purchased nuts, "grains", flours, and many other products there. If you are not familiar with Azure, you have to set up an account (no cost) and get your purchases either via shipping (expensive) or "drop" (free if you buy a reasonable minimum). Search their website...
    2. Jmartes71
      - Jmartes71 replied to Jmartes71's topic in Coping with Celiac Disease
      5

      Related issues

      Doterra literally has saved my life hands down.Nateral supplements that really are pure grade and does work organically with ones body. I had to stop all my nateral supplements to be a good puppet for medical so I can get the financial help that my body won't allow me to do more days than not these days, every day with menopause.....Not feeling well.Had to...
    3. Midwesteaglesfan
      - Midwesteaglesfan replied to Midwesteaglesfan's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Going for upper endoscopy today

      Back home after the scope. Dr said as soon as he got in there it was clear signs of celiacs. Must be a decent amount of damage. I don’t remember the post procedure conversation as the anesthesia was still wearing off but that’s what my wife says anyway. Still the biopsy results to come back but pretty definitive and now I get to learn to live gluten fre...
    4. Russ H
      - Russ H replied to Butch68's topic in Gluten-Free Foods, Products, Shopping & Medications
      4

      Guinness, can you drink it?

      There are several blogs where people test different beers using commercially available gluten testing kits. Guinness definitely tests positive for gluten. Something to be mindful of is that in some regions, foodstuffs containing less than 20 ppm gluten can be sold as 'gluten free'. However, due to the volume involved, a UK pint of beer at 19 ppm would contain...
    5. Scott Adams
      - Scott Adams replied to Borky's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Gluten food test strips

      Welcome to the forum! Do you mean this article, and if so, I don't think these are available yet.
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,270
    • Most Online (within 30 mins)
      7,748
    Hope2024
    Newest Member
    Hope2024
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Aretaeus Cappadocia
      Gluten free nuts

      By Aretaeus Cappadocia · Posted

      Azure Standard (https://www.azurestandard.com/) is one of my gluten-free vendors. I've purchased nuts, "grains", flours, and many other products there. If you are not familiar with Azure, you have to set up an account (no cost) and get your purchases either via shipping (expensive) or "drop" (free if you buy a reasonable minimum). Search their website for a drop location in your area. Each drop location has a local volunteer(?) coordinator who coordinates with the local customers. I go to a drop 4-5 miles from my home that delivers every 2 weeks. We seem to range from 8-18 customers at a given delivery. The downside of the drop is that you have to be there when they say. They give you a few days notice of the precise time, though, and they are punctual. Their pricing relative to other vendors for various products ranges from best price to overpriced, so you have to shop and compare. Quality is mostly good but once in a while you get a dud - however they've been very responsive to giving me a credit on the few occasions when I've complained. In my opinion, they are not as transparent about gluten as they could be. Some products are labeled "gluten free" and so far I trust that. Many products are labeled "Azure Market products are re-packaged by Azure for your convenience in a facility that meets Food Safety Modernization Act (FSMA) standards, including an approved allergen control program." I've corresponded with them over this and they all but say this means gluten free. I've come to trust this, with a little nervousness, but I wish they would be more explicit. They also sell a lot of gluten-containing products. Frankly, I think they are overlooking a business opportunity to become a trusted source for the gluten-free community by not being more clear about gluten. Among Azure products I've purchased are "Walnuts, Baker's Pieces, Raw", "Cashews, Raw, Large White Pieces, Organic" and "Missouri Northern Pecan Grower Pecans Fancy Native, Raw, Halves". The walnuts and cashews were very good and the pecans were fabulous. For almonds, I've been buying Blue Diamond unsalted when they go on sale (mostly from Safeway). The salted ones are probably fine too but the flavored ones I avoid now that I am gluten-free. I also buy products including nuts from CostCo (cashews, shelled pistachios). Their nuts usually contain a "made in a facility that processes wheat" statement, which is scary. I've contacted customer service about various Kirkland products and they will usually give you a response <<for a specific lot>> whether it really was made in a wheat facility (sometimes yes sometimes no). For the "Kirkland Signature Fancy Whole Cashews, Unsalted, 40 oz" and "Kirkland Signature Shelled Pistachios, Roasted & Salted, 1.5 lbs", I got a "safe" answer and I ate them. I got an "unsafe" answer once for "Kirkland Signature Fancy Whole Cashews with Sea Salt, 2.5 lbs" and "Kirkland Signature Dry Roasted Macadamia Nuts, Salted, 1.5 lbs" and I don't look at these anymore. Again, these answers were given for specific lots only. They will accept an unopened return for cash if you find out you don't want it. Costco also sells "Kirkland Signature Super Extra-Large Peanuts, 2.5 lbs" that are labeled gluten free. My celiac kid eats them all the time. I pretty much only eat food that I prepare myself from scratch. My celiac symptoms are not that overt, so I can't say for certain I could identify a glutening. However, my antibody levels dropped 25 fold (into normal range) since my dx earlier this year. Hope this helps.
    • Jmartes71
      Related issues

      By Jmartes71 · Posted

      Doterra literally has saved my life hands down.Nateral supplements that really are pure grade and does work organically with ones body. I had to stop all my nateral supplements to be a good puppet for medical so I can get the financial help that my body won't allow me to do more days than not these days, every day with menopause.....Not feeling well.Had to switch " medical team" because I was told I wasn't celiac though I am gluten-free since 1994! I am also positive HLA-DQ2. I think doctors down play it because on quest lab work it states " However 39% of the U.S  general population carry these HLA-DQ variants, as a consequence, the presence of HLA-DQ2 or  DQ8 or both variants is not perse diagnostic of celiac disease". Hintz the down playing of celiac disease......This needs to change because doctors seem to down playe it because when I showed the past 2nd and 3rd  doctors that I waisted my time on this year showed my that line and absolutely down played it.4th pcp this year.I live in Patterson California and would love for a few of us to go to mayors office and make this disease heard
    • Midwesteaglesfan
      Going for upper endoscopy today

      By Midwesteaglesfan · Posted

      Back home after the scope.  Dr said as soon as he got in there it was clear signs of celiacs.  Must be a decent amount of damage.  I don’t remember the post procedure conversation as the anesthesia was still wearing off but that’s what my wife says anyway.  Still the biopsy results to come back but pretty definitive and now I get to learn to live gluten free
    • Russ H
      Guinness, can you drink it?

      By Russ H · Posted

      There are several blogs where people test different beers using commercially available gluten testing kits. Guinness definitely tests positive for gluten. Something to be mindful of is that in some regions, foodstuffs containing less than 20 ppm gluten can be sold as 'gluten free'. However, due to the volume involved, a UK pint of beer at 19 ppm would contain more gluten than the generally accepted as safe daily limit of 10 mg. I have seen gluten-free beers testing at between "undetectable" and 5-10 ppm. I have also seen a report of a positive home test on Daura Damm, which is sold as gluten-free beer - the manufacturer did not respond to the tester's query.
    • Scott Adams
      Gluten food test strips

      By Scott Adams · Posted

      Welcome to the forum! Do you mean this article, and if so, I don't think these are available yet.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.