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Some Advice

AmyandSabastian

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AmyandSabastian Explorer
AmyandSabastian
Posted

I am so needy lol. But I trust all of you so much. I am not sure if I need to be posting this on my website or here. I have no idea if it celiac disease related or not. Here I go:

When Sabastian went gluten-free in May we saw night and day differences. And right away within the first 4 days. All was well up until 2 weeks ago. I dont know if its a phase or growth spurt or just teething (which I dont see any). He is started to get cranky and super clingy again. His stools are a little softer than normal. His belly is getting hard with each meal (not sure if he is over eating or not) he is eating more than normal again. He is waking crying again!!! Its really starting to look like old times. I swear he isnt eating gluten gosh I hope not I am checking so well. I am just at my wits end with a cranky baby. He is 8 1/2 months old and is trying to walk so bad, which could be it too. He gets so tired when he is learning. But the last 2 days he has skipped nap 2 and 3 which has made him just impossible. I might be over reacting but with no doctor in the state that knows anything about celiac disease I have no where to turn other than you. Any advice would be so helpful.

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Alexolua Explorer
Alexolua
Posted

Is it possible there could have been cross contamination somehow? Is your household completely gluten-free? If not.. if there happens to be crumbs on the floor, and he crawls through them.. could get some on his hands, and as soon as he puts a hand in his mouth, then there goes gluten in him.

Oh maybe a new product he started up on, has some gluten hiding in it? Keeping a food journal, and making notes of how he is doing could help track things too.

Or maybe it could be the trying to walk, he caught a cold.. or something.

Hope this helped somehow, and good luck! =)

AmyandSabastian Explorer
AmyandSabastian
Posted
  • Author

I forgot to mention one thing, and this may sound stupid. I have noticed that his little nose is rosey. Just the tip but it has been red. Isnt that weird?

Alexolua Explorer
Alexolua
Posted

Maybe? I'm not much of an expert at this, sorry.

Oh, and one thing I forgot to mention.. you said he was teething? Maybe something you've been giving him to chew on has gluten on it somehow?

Well trying. =)

AmyandSabastian Explorer
AmyandSabastian
Posted
  • Author

No he MIGHT be teething, but no redness or swelling so I havent even thought he was. But because of his age everyone says "Oh he must be teething"

TaylorsMom Rookie
TaylorsMom
Posted

I am far from an expert but I thought I'd give a suggestion anyway. Is he lactose intolerant as well? Is it possible, since at 8 1/2 months I'm sure he's trying new foods, that he has recently had a new dairy product and he's not handling it well? I'm not sure of your story before going gluten-free, so I may be way off. If so sorry in advance. You are right to be concerned though, especially with the looser stools and the hard abdomen. Those two things, in my opinion, signal that it's not a phase or teething but rather something that's being ingested.

Megan

woots Newbie
woots
Posted

again, i am far from an expert but have learnt alot in the last 3 months. my daughter seems to have gone through a similar set of circumstances as you have already mentioned. she was diagnosed some 3 months ago with celiac disease and in the last three weeks we have spent another week in hospital. the reason all stems around her being milk intolerant also so she is on a milk free and gluten free diet. The doctor over here has also placed her on a soya free diet for good measure in order to give her a few months of a balance diet where her immune system and intestines can grow again.

So in a nut shell, she is on a gluten, milk and soya free diet. the soya will be for about 3 -5 months but the milk for a few years yet.

she has really picked up and the change has been incredible, she is running around and putting weight on which is a wonderful sight to see.

dont know if that would have been of any help, but i am learning myself at present.

mark wootton

Nottinghamshire

England

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reidei Newbie
reidei
Posted

From another non-expert....I have been told that redness on extremeties is a sign of allergies....my nephew gets bright red ears (for example) when he's

exposed to something he's allergic to. The allergist told his mother to look for

this shortly after eating certain foods as a sign of allergies.....I would consider this as a possibly reason for a red nose...

For what it's worth - hope it helps....

AmyandSabastian Explorer
AmyandSabastian
Posted
  • Author

Well man I have some updates for you. In this one Sabastian got his first 2 front bottom teeth this week!!! He is doing great and has become a wonderful biter!! All symptoms are gone. YAY.

celiac3270 Collaborator
celiac3270
Posted

Congratulations!

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      By nanny marley · Posted

      Great advise there I agree with the aniexty part, and the aura migraine has I suffer both, I've also read some great books that have helped I'm going too look the one you mentioned up too thankyou for that, I find a camomile tea just a small one and a gentle wind down before bed has helped me too, I suffer from restless leg syndrome and nerve pain hence I don't always sleep well at the best of times , racing mind catches up I have decorated my whole house in one night in my mind before 🤣 diet changes mindset really help , although I have to say it never just disappears, I find once I came to terms with who I am I managed a lot better  , a misconception is for many to change , that means to heal but that's not always the case , understanding and finding your coping mechanisms are vital tools , it's more productive to find that because there is no failure then no pressure to become something else , it's ok to be sad it's ok to not sleep , it's ok to worry , just try to see it has a journey not a task 🤗
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      I agree there I've tryed this myself to prove I can't eat gluten or lactose and it sets me back for about a month till I have to go back to being very strict to settle again 
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