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Different Foods... Different Symptoms

clhsc

By clhsc
in Food Intolerance & Leaky Gut

Recommended Posts

clhsc Apprentice
clhsc
Posted

Hi! I'm new here and don't know if this is the right place to post, but does anyone else notice that some foods and drinks bother you more than others? Certain foods will leave me cramping and hurting for days, but some foods just make me feel a little tired? Also, does anyone have some problems with small white bumps on their arms after being glutened? My doctor says it's due to a Vitamin A deficiancy. My mom and sister have the same problems but they aren't celiacs. Any help would be greatly appreciated!

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MySuicidalTurtle Enthusiast
MySuicidalTurtle
Posted

I have problems with dairy and sometimes soda.

Ursa Major Collaborator
Ursa Major
Posted

Hi, and welcome to this board. Yes, I do react quite differently to foods I am intolerant to. Which foods bother you? And what are your symptoms? If you tell us more, we will be able to hopefully help you better.

Budew Rookie
Budew
Posted

Welcome. I joined last Monday. I hope someone can give you pointers on the skin. My sister and my mom and I all have celiac and a variety of skin problems. Dermatologists can help but we usually got some type of cream. Cortisone, Meto creme, triamicinolone is working for me now. I have more than white bumps.

About food sensitivity. I am still unraveling my mystery. Read and post questions and you will learn a lot.

Before I was celiac I became vegetarian. 25 years ago.

I eliminated eggs, (except in bake goods and noodles) about 15 years ago.

I was diagnosed celiac 5 years ago. Stopped gluten. I got really sick for 2 years. I ended up not being able to keep anything down.

So, I figured out my stuff so far by elimination.

I began with white potato, margerine, salt, water. 3 months later I realized the iodine in the salt was a problem.

For 3 months I tried to eat a balanced gluten free vegetarian diet with out processed foods. I was still sick.

I eliminated dairy. I was still sick. I eliminated night shade vegetables. I was still sick. I eliminated salycilcates(wrong spelling). I am still sick. Adding enzymes, right now. I am also wondering about corn and soy.

Well welcome to a great group of folks who have a wealth of experience. Being a member for only one week has given me direction, hope, and the understanding that was so lacking. Thanks everyone!

Simply-V Newbie
Simply-V
Posted
Hi! I'm new here and don't know if this is the right place to post, but does anyone else notice that some foods and drinks bother you more than others? Certain foods will leave me cramping and hurting for days, but some foods just make me feel a little tired? Also, does anyone have some problems with small white bumps on their arms after being glutened? My doctor says it's due to a Vitamin A deficiancy. My mom and sister have the same problems but they aren't celiacs. Any help would be greatly appreciated!

I'd hate to tell your doctor he's wrong about the bumps.. but we've been discussing this on Delphi Avoiding Corn and several of us get it as a symptom of getting into something we're allergic to.. aka allergic reaction, much like breaking out with acne can be because of allergies. My bumps only went away when I switched laundry soaps. They come back now and then if I get into something, but they go away as soon as my system is clear of the allergen.

And yes some of my food intolerances just make me a little tired, while others (usually my IgE allergies) will mess me up for days.

Budew Rookie
Budew
Posted

Me too. I almost forgot that a bunch of the skin rashes cleared up when I eliminated soaps, lotions and cosmetics. The only thing I use now are baby oil, pantene/sauve shampoo a couple times a week, and dishwashing detergent.

I had 10 potato chips Sat. Sunday night I was covered with ???...mosquito bites? I have not been outside in over a week so it must be the potato.

clhsc Apprentice
clhsc
Posted
  • Author
Me too. I almost forgot that a bunch of the skin rashes cleared up when I eliminated soaps, lotions and cosmetics. The only thing I use now are baby oil, pantene/sauve shampoo a couple times a week, and dishwashing detergent.

I had 10 potato chips Sat. Sunday night I was covered with ???...mosquito bites? I have not been outside in over a week so it must be the potato.

Last Tuesday, I got glutened... BAD! Being new to this I thought, "Oh Chicken and Rice soup, I can have that." Not so, I found out about 1 hour later. Since then I have been sick and broken out on my arms with those little bumps. I switched back to baby shampoo and body wash and the rash has cleared up significantly. However, I am still feeling a little sluggish. Also, is Malt Extract Powder (barley) bad? ... It sounds that way, but a friend brought some chocolate back from Switzerland and I am dying to try it.

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Ursa Major Collaborator
Ursa Major
Posted
Last Tuesday, I got glutened... BAD! Being new to this I thought, "Oh Chicken and Rice soup, I can have that." Not so, I found out about 1 hour later. Since then I have been sick and broken out on my arms with those little bumps. I switched back to baby shampoo and body wash and the rash has cleared up significantly. However, I am still feeling a little sluggish. Also, is Malt Extract Powder (barley) bad? ... It sounds that way, but a friend brought some chocolate back from Switzerland and I am dying to try it.

Yes, malt extract obviously has gluten, and you better give it away before you give into the temptation!

clhsc Apprentice
clhsc
Posted
  • Author
Yes, malt extract obviously has gluten, and you better give it away before you give into the temptation!

I guess you live and learn! Thanks for saving me from a tremendous amount of pain.

I know it seems like I am asking tons of stupid questions (at least I feel I am), but my doctor told me to try the diet and didn't really give me any information. This site has been a life saver!

Budew Rookie
Budew
Posted

I am amazed everyone seems to get glutened and realize a reaction.

I don't know that I have been glutened by mistake since I as diagnosed.

Since being diagnosed I have felt worse, not better.

I don't vomit as much, and the skin seems to be slowly improving but on the flip side I now have headaches fevers, sluggishness, mindfog, memory loss, a mass in my stomach (no one seems to be alarmed about) and sometimes for no apparent reason I just hurt all over, lose my mind and lay down too limp to move. These episodes last 5 minutes to 15 hours.

I am hoping that I can really get on board taking enzymes. I realized last night that I was having trouble taking l-glutamine with .5 grams and my doctor wants me to take 40 grams. Any advice on how to get from 1 gm to 40 gms with the least amount of trouble?

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    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
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    • Scott Adams
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

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      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
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      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

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      Contact them.
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