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Different Foods... Different Symptoms


clhsc

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clhsc Apprentice

Hi! I'm new here and don't know if this is the right place to post, but does anyone else notice that some foods and drinks bother you more than others? Certain foods will leave me cramping and hurting for days, but some foods just make me feel a little tired? Also, does anyone have some problems with small white bumps on their arms after being glutened? My doctor says it's due to a Vitamin A deficiancy. My mom and sister have the same problems but they aren't celiacs. Any help would be greatly appreciated!


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MySuicidalTurtle Enthusiast

I have problems with dairy and sometimes soda.

Ursa Major Collaborator

Hi, and welcome to this board. Yes, I do react quite differently to foods I am intolerant to. Which foods bother you? And what are your symptoms? If you tell us more, we will be able to hopefully help you better.

Budew Rookie

Welcome. I joined last Monday. I hope someone can give you pointers on the skin. My sister and my mom and I all have celiac and a variety of skin problems. Dermatologists can help but we usually got some type of cream. Cortisone, Meto creme, triamicinolone is working for me now. I have more than white bumps.

About food sensitivity. I am still unraveling my mystery. Read and post questions and you will learn a lot.

Before I was celiac I became vegetarian. 25 years ago.

I eliminated eggs, (except in bake goods and noodles) about 15 years ago.

I was diagnosed celiac 5 years ago. Stopped gluten. I got really sick for 2 years. I ended up not being able to keep anything down.

So, I figured out my stuff so far by elimination.

I began with white potato, margerine, salt, water. 3 months later I realized the iodine in the salt was a problem.

For 3 months I tried to eat a balanced gluten free vegetarian diet with out processed foods. I was still sick.

I eliminated dairy. I was still sick. I eliminated night shade vegetables. I was still sick. I eliminated salycilcates(wrong spelling). I am still sick. Adding enzymes, right now. I am also wondering about corn and soy.

Well welcome to a great group of folks who have a wealth of experience. Being a member for only one week has given me direction, hope, and the understanding that was so lacking. Thanks everyone!

Simply-V Newbie
Hi! I'm new here and don't know if this is the right place to post, but does anyone else notice that some foods and drinks bother you more than others? Certain foods will leave me cramping and hurting for days, but some foods just make me feel a little tired? Also, does anyone have some problems with small white bumps on their arms after being glutened? My doctor says it's due to a Vitamin A deficiancy. My mom and sister have the same problems but they aren't celiacs. Any help would be greatly appreciated!

I'd hate to tell your doctor he's wrong about the bumps.. but we've been discussing this on Delphi Avoiding Corn and several of us get it as a symptom of getting into something we're allergic to.. aka allergic reaction, much like breaking out with acne can be because of allergies. My bumps only went away when I switched laundry soaps. They come back now and then if I get into something, but they go away as soon as my system is clear of the allergen.

And yes some of my food intolerances just make me a little tired, while others (usually my IgE allergies) will mess me up for days.

Budew Rookie

Me too. I almost forgot that a bunch of the skin rashes cleared up when I eliminated soaps, lotions and cosmetics. The only thing I use now are baby oil, pantene/sauve shampoo a couple times a week, and dishwashing detergent.

I had 10 potato chips Sat. Sunday night I was covered with ???...mosquito bites? I have not been outside in over a week so it must be the potato.

clhsc Apprentice
Me too. I almost forgot that a bunch of the skin rashes cleared up when I eliminated soaps, lotions and cosmetics. The only thing I use now are baby oil, pantene/sauve shampoo a couple times a week, and dishwashing detergent.

I had 10 potato chips Sat. Sunday night I was covered with ???...mosquito bites? I have not been outside in over a week so it must be the potato.

Last Tuesday, I got glutened... BAD! Being new to this I thought, "Oh Chicken and Rice soup, I can have that." Not so, I found out about 1 hour later. Since then I have been sick and broken out on my arms with those little bumps. I switched back to baby shampoo and body wash and the rash has cleared up significantly. However, I am still feeling a little sluggish. Also, is Malt Extract Powder (barley) bad? ... It sounds that way, but a friend brought some chocolate back from Switzerland and I am dying to try it.


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Ursa Major Collaborator
Last Tuesday, I got glutened... BAD! Being new to this I thought, "Oh Chicken and Rice soup, I can have that." Not so, I found out about 1 hour later. Since then I have been sick and broken out on my arms with those little bumps. I switched back to baby shampoo and body wash and the rash has cleared up significantly. However, I am still feeling a little sluggish. Also, is Malt Extract Powder (barley) bad? ... It sounds that way, but a friend brought some chocolate back from Switzerland and I am dying to try it.

Yes, malt extract obviously has gluten, and you better give it away before you give into the temptation!

clhsc Apprentice
Yes, malt extract obviously has gluten, and you better give it away before you give into the temptation!

I guess you live and learn! Thanks for saving me from a tremendous amount of pain.

I know it seems like I am asking tons of stupid questions (at least I feel I am), but my doctor told me to try the diet and didn't really give me any information. This site has been a life saver!

Budew Rookie

I am amazed everyone seems to get glutened and realize a reaction.

I don't know that I have been glutened by mistake since I as diagnosed.

Since being diagnosed I have felt worse, not better.

I don't vomit as much, and the skin seems to be slowly improving but on the flip side I now have headaches fevers, sluggishness, mindfog, memory loss, a mass in my stomach (no one seems to be alarmed about) and sometimes for no apparent reason I just hurt all over, lose my mind and lay down too limp to move. These episodes last 5 minutes to 15 hours.

I am hoping that I can really get on board taking enzymes. I realized last night that I was having trouble taking l-glutamine with .5 grams and my doctor wants me to take 40 grams. Any advice on how to get from 1 gm to 40 gms with the least amount of trouble?

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    • Rogol72
      Hey @Butch68, I also have dermatitis herpetiformis but don't suffer from it anymore. I used to drink Guinness too but I drink Cider now when out on social occasions. I assume you are in Ireland or the UK. If it's any good to you ... 9 White Deer based in Cork brew a range of gluten-free products including a gluten-free Stout. I'm not sure if they are certified though. https://www.9whitedeer.ie/ I haven't come across any certified gluten-free stouts this side of the pond.
    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
    • MogwaiStripe
      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
    • Butch68
      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
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