Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Should I Bother With My Hmo


JerryK

Recommended Posts

JerryK Community Regular

Howdy,

Don't know if I've said this before, but I belong to the lovely Kaiser Permanente...

Should I bother my gatekeeper/GP with my gluten sensitivity, or should I

go directly to Enterolab?

Frankly I've never gotten much from my HMO except when I've had strep

throat. Other than that it's pretty much a waste of my time to go.

Should I bother my GP about an antibody test or should I just to to Enterolab?

Is Enterolab reputable? Does anyone ever test negative? Will my wife think I'm

insane when I mail my poo off to be analyzed??

Jerry


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tarnalberry Community Regular

No one can answer these questions for you. You just have to go for it. Maybe they'll turn you down, but no one can say for sure. Not only is Kaiser different in different locations, but it varies by the doctor as well. Don't worry about what people will think about you, worry about how your health! :)

aikiducky Apprentice

If you can afford it, I'd do everything - have your doctor do the blood tests, send some poo off to Enterolab :) , and after all testing is done, try the diet.

Make sure your doctor orders the correct blood tests though, they're often clueless about which ones you need.

Pauliina

debmidge Rising Star

What indication did Kasier make that made you feel not to bother them?

There is an appeal process....

JerryK Community Regular

About three years ago, in the throes of a depression, I had Kaiser check my testosterone levels.

My level on two separate tests was 240 ng/dl and 255 ng/dl. While barely within the accepted normal

limits, it's also the level of an 80 year old man...(I'm 46).

Any other doctor would have given me a trial of Testosterone supplementation, but not Kaiser.

I pushed it. I submitted an appeal, I went to three different endocrinologists. They were just

humoring me. They had no intention of treating me, because, although they know my levels are

low, if they admit that low testosterone is a treatable condition, then they have to pay for it.

Now, if you think about it, it seems that someone who's Celiac or Gluten intolerant could certainly

have hormonal problems. I mean our bodies manufacture hormones out of the foods we eat and

absorb. Testosterone is manufactured from cholesterol...if you're pooping out all your fat, you

probably aren't going to feel like a jackrabbit on a date.

So anyway, it was at this point I realized that Kaiser isn't there to make me feel better. They are there to help(hopefully) if something catastrophic happens....they aren't interested in your quality of life, especially if it costs them money. Sorry for my cynical attitude, but it is what it is.

So this is why I've put off going to Kaiser and having the Celiac Panel done, I think Kaiser is worthless, although I could probably get them to run the correct tests, if I showed them what they are.

Jerry

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,871
    • Most Online (within 30 mins)
      7,748

    GR82BNTX
    Newest Member
    GR82BNTX
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • cristiana
      Hi Colleen Are you supplementing B12/having injections? I have learned recently that sometimes when you start addressing a B12 deficiency, it can temporarily make your symptoms worse.  But it is important not to stop the treatment.  Regarding your problems with anxiety, again that is another symptom of a B12 deficiency.   I didn't know what anxiety was until it hit me like a train several months before gastrointestinal issues began, so I can certainly relate.   Two books which helped me hugely were At Last A Life by Paul David (there is a website you can look up) and The Depression Cure: The Six-Step Programme to Beat Depression Without Drugs by Dr Steve Llardi.  Although his book is aimed at people who have depression, following the principals he sets out was so helpful in lessening my anxiety.  Llardi suggests we need to focus on getting enough: - physical exercise - omega-3 fatty acids - natural sunlight exposure - restorative sleep - social connectedness - meaningful, engaging activity   ... and we should feel a lot better. That is not to stay you must stop taking medication for depression or anxiety if you have been prescribed it, but adopting the changes Dr Llardi sets out in the book should really help. Can I just ask two more questions:  1) you say that you are B12 deficient, did they test your iron levels too?  If not, you really ought to be checked for deficiency and, 2) did they check your thyroid function, as an overactive thyroid can be cause rapid heartbeat and a lot of coeliacs have thyroid issues? Cristiana        
    • Jmartes71
      Hello still dancing around my celiac disease and not getting medically backed up considering Ive been glutenfree since 1994.All my ailments are the core issue of my ghost disease aka celiac disease. Im angery because the "celiac specialist " basically lightly dismissed me.Im extremely angery and fighting for a new primary care physician which is hard to do in Northern Cali.So currently without and looking.Im angery that its lightly taken when its extremely serious to the one who has it.My only evidence is a brochure back in the days when I got news letters when I lived at my parents.It was published in 1998.I was diagnosed before any foods eliminated from my diet. Angery doctors don't take seriously when Im clearly speaking.I did write to the medicine of congress and have case number.
    • Scott Adams
      I totally get this. It's absolutely a grieving process, and it's okay to feel gutted about the loss of those simple joys, especially at 18. Your feelings are completely valid—it's not about being ungrateful for your amazing boyfriend, it's about mourning the life you thought you'd have. That "tortured by the smell" feeling is so real. It does get easier, I promise, but it's okay to sit in the sadness and just vent about how much it stings right now. Thanks for sharing that. Celiac.com has published a book on our site by Jean Duane PhD called Gluten-Centric Culture, which covers many of the social aspects of having celiac disease: This chapter in particular covers issues around eating with family and others - Gluten-Centric Culture: Chapter 5 - Grabbing A Bite Together:    
    • Scott Adams
      Many of us with celiac find that the fillers in medications can cause a reaction, and sometimes our bodies just process things weirdly. That "rebound muscle pain" and "burning feet" you described sounds awful and is a huge red flag. It's frustrating enough managing the diet without medication causing setbacks. So sorry you're dealing with this, but you're definitely on the right track by connecting the dots. You can search this site for prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
    • Scott Adams
      It's so tough when you're doing everything right and still get hit with it. I'm glad you're figuring out a system that works for you—the peppermint tea and rehydration powders are smart moves. It sounds like you've really learned to listen to your body, and that's half the battle. Sticking to simple, safe food at home is the best way to build yourself back up. It's great you can take the time to rest properly. Thanks for sharing what works; it's a big help to others figuring this out too. This article, and the comments below it, may be helpful:    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.