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- Pablohoyasaxa replied to Stephanie Wakeman's topic in Coping with Celiac Disease17Is it common to develop a wheat allergy in addition to Celiac Disease?
Great post. The skin issue can be intolerable. I have been taking niacinamide for the past month and have improved with respect to the blistering lesions. -
- knitty kitty replied to Stephanie Wakeman's topic in Coping with Celiac Disease17Is it common to develop a wheat allergy in addition to Celiac Disease?
I've found taking Niacin Vitamin B 3 in the form that causes flushing (nicotinic acid) helps immensely to clear my skin. The flushing is harmless and goes away the longer Niacin is taken. The flushing (vasodilation in the skin) helps the body get rid of the tTg 3 IgA antibodies that cause the blisters. TTg 2 IgA antibodies are found in the blood and are... -
- meghanf replied to Rebeccaj's topic in Coping with Celiac Disease3Airbourne products in same living house hold .
We have a gluten-free household. It's the least stressful option. No one else in my family has Celiac, but they are all extremely supportive. We don't even have Play-doh for this kids. -
- trents replied to Stephanie Wakeman's topic in Coping with Celiac Disease17Is it common to develop a wheat allergy in addition to Celiac Disease?
@Ronnie d, there is a small percentage of celiacs who have dermatitis herpetiformis but have no small bowel mucosal involvement. Also, we have had some reports on this forum from dermatitis herpetiformis suffers who said Dapsone did not work for them. But for the vast majority it does. -
- trents commented on Jefferson Adams's article in Additional Concerns15
Is Cracker Barrel Gluten-Free?
@judycs, will you be following up with the company on this? But before you do, find out what kind of "flour" was used in the apples. Do you know for sure it was wheat flour? The term flour doesn't necessarily imply a wheat product.- celiac disease
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By Pablohoyasaxa · Posted
Great post. The skin issue can be intolerable. I have been taking niacinamide for the past month and have improved with respect to the blistering lesions. -
By knitty kitty · Posted
I've found taking Niacin Vitamin B 3 in the form that causes flushing (nicotinic acid) helps immensely to clear my skin. The flushing is harmless and goes away the longer Niacin is taken. The flushing (vasodilation in the skin) helps the body get rid of the tTg 3 IgA antibodies that cause the blisters. TTg 2 IgA antibodies are found in the blood and are measured in diagnostic testing for Celiac. People with Dermatitis Herpetiformis make tTg 3 as well as tTg 2 antibodies. Niacin Vitamin B3 in the non flushing form niacinamide also works without the flushing, but takes a bit longer. I also avoid foods containing high levels of iodine because iodine activates the tTg 3 IgA antibodies to become more active and make more blisters. I avoid kelp (nori, seaweed) and crustaceans, eggs, dairy products, and iodized table salt. Niacinamide and Nicotinic acid are water soluble and harmless. I'd much rather take Niacin than Dapsone with scary side effects. -
We have a gluten-free household. It's the least stressful option. No one else in my family has Celiac, but they are all extremely supportive. We don't even have Play-doh for this kids.
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@Ronnie d, there is a small percentage of celiacs who have dermatitis herpetiformis but have no small bowel mucosal involvement. Also, we have had some reports on this forum from dermatitis herpetiformis suffers who said Dapsone did not work for them. But for the vast majority it does.
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yes, the above is true. however; if the doctor does the tests and finds your are a candidate then dapsone is the drug that will stop the blisters immediately. dapsone started as a drug for malaria and leprosy....I do not know how it became known for dermatitis herpetiformis. I can tell you that my doctor told me she had several patients that have taken it over 20 years. our dosage was one a day until clear,then we went to every other day for a while, working down to zero a day. I still have an active prescription for dapsone but have not had to take one in several years. in closing, if anyone reads this and has truly been diagnosed for dermatitis herpetiform is, then ask your doctor for dapsone..... for those of you reading this that have never had the blisters and infections from the scratching and oozing fluid...than you can't identify. you can have celiac without dermatitis herpetiform is....but all people with dermatitis herpetaformis have celiac... a double whammy, so to say.
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