Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Why Do I Feel So Guilty?


ekdumas19

Recommended Posts

ekdumas19 Apprentice

Hi everyone!

So right now I feel really guilty because at my job we have all these sales people that come in and take our department out to lunch. It is usually to restaurants where the menu is limited and the level of cross contamination is too high for me to really risk going. The only one I have attended is the one at Legal Seafood because I know they are pretty dedicated to being gluten free when it counts. So today-they came around again asking if I wanted to go--I said sorry I have bad food allergies and don't like to eat out-especially at a place like Mangiano's-where its pasta/bread central. I swear to god my office is like the anti celiac-these sales people bring in muffins/donuts/cakes/cookies-and I have to decline everytime. I think they honestly think I dont even eat at all, though I have told several people about my celiac disease. Please assure me that i was better just to decline than to risk an episode of cross contamination! I just feel like people still don't understand enough about the disease to realize why I have to bail out all the time!!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



HawkFire Explorer

Please bring your own lunches. You can order a drink and still socialize. celiac isn't an isolating disease. You should have fun with your friends every chance you get. Don't decline. Go, go, go.

CarlaB Enthusiast

I agree, go and bring your own lunch!!

There is a place called Maggianos, surprisingly similar name to the one you said, that is VERY accomodating to celiacs, in fact, our local celiac group had a dinner there.

floridanative Community Regular

Carla is right and if it's the same place, you can order gluten free pasta ahead of time. I have it with their gluten-free alfredo sauce and a nice salad. There's enough to take left overs home. Some locations always has corn pasta but both ours require calling ahead so they have it for sure when you arrive. The Chef comes to the table to tell you what he can safely make you. They take allergies very seriously, at least in Atlanta.

ekdumas19 Apprentice
Carla is right and if it's the same place, you can order gluten free pasta ahead of time. I have it with their gluten-free alfredo sauce and a nice salad. There's enough to take left overs home. Some locations always has corn pasta but both ours require calling ahead so they have it for sure when you arrive. The Chef comes to the table to tell you what he can safely make you. They take allergies very seriously, at least in Atlanta.

Wow-it's probably the same one. Good to know though. I don't feel as bad now, because a lot of people didn't go and I hardly knew the guy anyway. But I guess it goes to show that there is no harm in asking......

megzmc3611 Rookie
Hi everyone!

So right now I feel really guilty because at my job we have all these sales people that come in and take our department out to lunch. It is usually to restaurants where the menu is limited and the level of cross contamination is too high for me to really risk going. The only one I have attended is the one at Legal Seafood because I know they are pretty dedicated to being gluten free when it counts. So today-they came around again asking if I wanted to go--I said sorry I have bad food allergies and don't like to eat out-especially at a place like Mangiano's-where its pasta/bread central. I swear to god my office is like the anti celiac-these sales people bring in muffins/donuts/cakes/cookies-and I have to decline everytime. I think they honestly think I dont even eat at all, though I have told several people about my celiac disease. Please assure me that i was better just to decline than to risk an episode of cross contamination! I just feel like people still don't understand enough about the disease to realize why I have to bail out all the time!!

I think we all know how you feel! Maybe you can suggest PF Changs next time. It is right near Maggiano's and has a full gluten-free menu. Very good stuff! (of course eating out is always risky!)....

kbtoyssni Contributor

You should still go. I go out to lunch with my coworkers all the time and bring my own food. No one cares; they're all just hapy I can make it. The restaurants don't mind either. If they don't let me bring my own food they know we'd have to go somewhere that can accomodate me and they don't want to lose the business of all my friends. It's a little strange to start reaching into your lunchbox when everyone's meals arrive, but you gt used to it.

I went to a buffet once and handed them a cheese sandwich in one of those toaster bags for them to make me a grilled cheese. The server was thouroughly confused for a while at my one instruction for her: DON'T TAKE THE SANDWICH OUT OF THE BAG!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tarnalberry Community Regular

I agree that you should still go, and bring your own lunch. Socializing doesn't have to involve the food - though it's hard to separate it mentally when others are involved with food.

CarlaB Enthusiast
Carla is right and if it's the same place, you can order gluten free pasta ahead of time. I have it with their gluten-free alfredo sauce and a nice salad. There's enough to take left overs home. Some locations always has corn pasta but both ours require calling ahead so they have it for sure when you arrive. The Chef comes to the table to tell you what he can safely make you. They take allergies very seriously, at least in Atlanta.

If you don't have the chance to call ahead, go ahead and go anyway. I've never called ahead here in Cincinnati and they've always accomodated me very well!!! It's my favorite place to eat!!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to Butch68's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Guinness, can you drink it?

    2. - MogwaiStripe replied to Midwestern's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      15

      Gluten Issues and Vitamin D

    3. - Butch68 posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Guinness, can you drink it?

    4. - trents replied to Xravith's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      17

      Taking Probiotics but Still Getting Sick After Gluten – Advice?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,217
    • Most Online (within 30 mins)
      7,748

    Sutto
    Newest Member
    Sutto
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
    • MogwaiStripe
      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
    • Butch68
      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.