Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Depakote For Food Intolerance Migraines


cakes

Recommended Posts

cakes Newbie

Has anyone tried Depakote for their migraines? I want to know about the side effects.

thanks,

Colleen


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor
Has anyone tried Depakote for their migraines? I want to know about the side effects.

thanks,

Colleen

I was given depakote for a seizure disorder that turned out to be gluten related, as were my migraines. My experience was not good. I trembled very badly, my hair fell out, my fingernails became extremely curved and ridged, I walked around in a cloud and my liver enzymes were eventually effected. It did get rid of my seizures but it was for me not worth it. The generic form also gave me severe D and stomach cramps but the name brand didn't. The generic had gluten of course. If you are newly gluten free you may want to try and wait for a couple of weeks to see if the diet gets rid of the migraines without meds. I haven't had one since a couple weeks after I went gluten-free, unless I get glutened, and I think there are others who have had the same effect. Good luck and I hope you are migraine free soon.

Guest Norah022

I took depakote for migraines that were not food related (or so we think) and was put on two additional anti-depressants at the same time to treat the migraines. I had no side effects at all. It did not however help my migraines.

cakes Newbie
I was given depakote for a seizure disorder that turned out to be gluten related, as were my migraines. My experience was not good. I trembled very badly, my hair fell out, my fingernails became extremely curved and ridged, I walked around in a cloud and my liver enzymes were eventually effected. It did get rid of my seizures but it was for me not worth it. The generic form also gave me severe D and stomach cramps but the name brand didn't. The generic had gluten of course. If you are newly gluten free you may want to try and wait for a couple of weeks to see if the diet gets rid of the migraines without meds. I haven't had one since a couple weeks after I went gluten-free, unless I get glutened, and I think there are others who have had the same effect. Good luck and I hope you are migraine free soon.

Wow! I noticed when I went gluten-free they got much better. However I still get bad ones around my menstrual cycle. I have pcos and my blood sugars are erratic during these times. I had migraines for a whole week last week. I take Pamelor (an antidepressant) but I don't know what else to do.

Thanks for your reply.

Colleen

I took depakote for migraines that were not food related (or so we think) and was put on two additional anti-depressants at the same time to treat the migraines. I had no side effects at all. It did not however help my migraines.

did you find anything that did help them? I know mine are hormonal/blood sugar/food related.

Clark Bent as Stupor-Man Contributor

I took depakote ER as a daily preventative for headaches for nearly 2 years prior to trying all this gluten-free/food intolerance dieting... I started out on a small dosage and eventually went up to 1000 or 1500 mg each night.... I didn't notice much difference in the years taking it in terms of reducing headaches but maybe there was some small reduction at first...

however, I had negative experiences with depakote as well... when I bumped up the dosage past 500 I got very fatigued and didn't feel well (don't remember many specifics besides the fatigue)... I switched off of it after the 2 years and don't personally recommend it although everyone's body is different

Budew Rookie

I feel like I stumbled onto something. Ursula's links to Lectins is worth a read for everyone who has commented here.

Just 6 weeks ago I was really sick. Erratic blood sugars, flushing, muscle pain, migrane headaches.

Long story short, I think the corn caused the migranes. I looked back and found I was always hungry before my period and ate cornmeal mush. I thought the migranes were hormonal, but I am sure it is the corn (maize).

By chance I cut out soy too. My rice intake increased and my muscle pain did too. I read about Lectin classes. A person having trouble with the lectin associated with all grains can cause many symptoms. I have been off rice and all other grains since Friday. I cannot believe how much more energy I have, how my mental abilities are improving, and my appetite has improved.

I decided to stop using Legumes (peanuts included) for 6 months. Then I will test their toxicity. They are a different Lectin class that could be causing problems. I really never got into eating legumes, even as a vegetarian for 30 years. I am using instinct eliminating this one.

I am eating limited dairy. Another Lectin Class. Bloating, gas

There is also a Lectin type in Nightshade vegetables. I eliminated them a long time ago. I have tried to add them back on occassion. I continue to react to them quite immediately. Flushing, rashes

Oh yeah, the blood sugar leveled out as soon as I started taking digestive enzymes about 6 weeks ago. I take l-glutamine powder (powder not capsule was important) and probiotics with (FOS). I can get all the stuff at the local coop and health food stores. I plan to discuss other digestive enzymes available with my doctor in Dec.

I discovered a sensitivity to salycalates. They are a ripen agent in fruits and vegetables. Ursula has a link to rate foods by their levels. I have restricted my intake to foods on the safe, very little, little, and limited amounts of foods on the medium list.

I made a data base to figure out what I should eat. I thought it was ironic that all of the foods on my list were the foods I like the very best. I am having a great time making things to eat.

Last but not least my skin. I had terrible skin sores. I did not heal correctly. Thick skin formed over the sores. Very painful. Unsightly. I used make up to cover them. It finally dawned on me how important it was to get gluten free makeup. I had gone gluten free in all other personal care products long before. I found that Bobbi Brown and Clinique are the most helpful. I made the change a week ago. The healing improved the second day. I have been on the road to healing for a week now and can hardly recognize myself in the mirror. The skin is smoother, the sores are now flat red tender skin areas that I am sure will dissapear soon without scarring.

I am on cloud nine. I wonder how I could have been a diagnosed celiac 6 years ago. Begging for help, and not one person/ doctor every mentioned the words lectin or salyclate.

Oh well, this is working. I am not seriously ill. I am just reacting to foods. WHew!

Ravenwood. I read your signature. You can probably help me. Sounds like you already have been through this. I am just getting started.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    2. - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    3. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    4. 0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

    5. - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,329
    • Most Online (within 30 mins)
      7,748

    klkarius
    Newest Member
    klkarius
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • knitty kitty
      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.