Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Dr Booked, What To Do?

andersonfam06

Recommended Posts

andersonfam06 Apprentice
andersonfam06
Posted

Avery is feeling so horrible! We can't get in to the GI doc til the 22nd of December. He is so uncomfortable he was crying before school this mornign because he was scared he'd have an accident. His bowels are so lose when he finally has them that he really doesn't have time to make it to the toilet every time. He is only 3, potty training is still a work in progress. If anyone has any suggestions as to things that might help him be more comfotable, I'd really appreciate it. His actually ped doesn't want to talk to me now, cause she made the referral.. so she says I can't take it up with the specialist.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Nic Collaborator
Nic
Posted

I would call the ped. back and tell her that you can't get him in until Dec. 22 and someone needs to help you. Is it possible to try another GI instead of waiting?

Nicole

Hayleesdad Rookie
Hayleesdad
Posted
Avery is feeling so horrible! We can't get in to the GI doc til the 22nd of December. He is so uncomfortable he was crying before school this mornign because he was scared he'd have an accident. His bowels are so lose when he finally has them that he really doesn't have time to make it to the toilet every time. He is only 3, potty training is still a work in progress. If anyone has any suggestions as to things that might help him be more comfotable, I'd really appreciate it. His actually ped doesn't want to talk to me now, cause she made the referral.. so she says I can't take it up with the specialist.

I know what your going through,just keep liquids in him.It will take a while for things to get better.

My 6 year old was just diagnosed 1 week ago with Celiac D ,I've been dealing with the lose bowels for three months now.My daughter actually holds it all in ,all day at school and comes home and blows the back of the toilet off.

It's bad but ,I promise it will get better.Have you checked around to see if you can see another GI in your area.

My referal was 1 week and I saw the GI 4 days later, 2 weeks after that we went gluten free.It still seemed like forever.

I hope little Avery starts feeling better.

I'm sure you'll get some good replies on this forum,it's a real good place to learn and get support.

CarlaB Enthusiast
CarlaB
Posted

Can he just stay home from school until this is sorted out? I notice he's only 3 ... I wouldn't suggest it if he were already in kindergarten.

Be sure to keep him hydrated. He might need some electrolytes, too, since he has d so bad.

andersonfam06 Apprentice
andersonfam06
Posted
  • Author

He is staying home from school at this point. The sad story is, there are really not any other pediatric GI docs in this area. The other docs, are all with the same office. So, if they had an opening they would have given it to me. I faxed his file to the GI doc though, and he is going to look at it and call me. Maybe squeeze him in. We'll see. He is feeling somewhat better today. He just hasn't ate much to upste the belly since yesterday.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,561
    • Most Online (within 30 mins)
      7,748
    lamps
    Newest Member
    lamps
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • petitojou
      How long does it take to gain weight?

      By petitojou · Posted

      Thank you so much for sharing your experience and I found myself giggling with happiness as I read how your body reached such spring! And I hope that your current journey is also successful!! Definitely starting the food diary! So many amazing advices. And it’s very scary. It really hits all our soft spots as well as our confidence system. Most doctors I went thought I was underage despite being in my late 20s. Right now I look like am I twelve, but is also this body that’s taking so much, so I might as well love it too! Going to make the necessary changes and stay in this path. Thank you again! 🫶
    • petitojou
      How long does it take to gain weight?

      By petitojou · Posted

      Thank you so much for the information and kind message! Reading this transformed how I’ve been viewing my efforts and progress. Guess there’s still a lot to celebrate and also heal 😌  Yes, I’ve been taking it! Just recently started taking a multivitamin supplement and separated vitamin D! I also took chewable Iron polymaltose for ferritin deficiency 2 months ago but was unable to absorb any of it.  Thank you again! Hearing such gentle words from the community makes my body and heart more patient and excited for the future. 
    • ckeyser88
      Roommate search

      By ckeyser88 · Posted

      I am looking for a roomie in Chicago, Denver or Nashville! 
    • Scott Adams
      Taken Seriously

      By Scott Adams · Posted

      Your post demonstrates the profound frustration and isolation that so many in the Celiac community feel, and I want to thank you for channeling that experience into advocacy. The medical gaslighting you endured for decades is an unacceptable and, sadly, a common story, and the fact that you now have to "school" your own GI specialist speaks volumes about the critical lack of consistent and updated education. Your idea to make Celiac Disease a reportable condition to public health authorities is a compelling and strategic one. This single action would force the system to formally acknowledge the prevalence and seriousness of the disease, creating a concrete dataset that could drive better research funding, shape medical school curricula, and validate the patient experience in a way that individual stories alone often cannot. It is an uphill battle, but contacting representatives, as you have done with Adam Gray, is exactly how change begins. By framing it as a public health necessity—a matter of patient safety and protection from misdiagnosis and neglect—you are building a powerful case. Your voice and your perseverance, forged through thirty years of struggle, are exactly what this community needs to ensure that no one else has to fight so hard just to be believed and properly cared for.
    • Scott Adams
      Looking for a gluten-free roomie in Denver CO

      By Scott Adams · Posted

      I had no idea there is a "Louisville" in Colorado!😉 I thought it was a typo because I always think of the Kentucky city--but good luck!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.