Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Whole Family Has Celiac?

grace-inspired

Recommended Posts

grace-inspired Rookie
grace-inspired
Posted

Hi all. I am new to this site--but not new to the thought that my family suffers from glutin intolerance. Is it crazy to think that all four of us have this?!? Here are the major symptoms:

Husband: 28 years old, has had acute idiopathic pancreatitis at least 6 times, has ALWAYS had bowel issues(loose stools, frequent trips to BR, lots of gas), family history of gallbladder issues and diabetes.

ME: 27, lifelong acute depression, progressive muscle issues(fibromyalgia), asthma, fatigue(my mom has IBS)

daughter : 7 years old chronic constipation since birth, severe reflux, dry skin issues, muliple chemical sensitivities

son: age 5 healthy little guy, but he seems to have his dads bathroom habits(goes several times a day--lots--has lots of gas)

I am thinking about having the bloodwork done on me and possibly my daughter--then the boys. I would like to try a gluten-free diet--but I'm at a loss for where to start because it seems overwhelming. We eat lots of bread:) crackers:) oatmeal, pasta....oh my, we are wheat addicts.

What do you think?

Any favorite sites w/ good recipes? We tried some gluten-free bread once and it ws so bad that we just didn't eat that day(we had taken it for lunch somewhere)...yuck.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


AndreaB Contributor
AndreaB
Posted

It is entirely possible. If you want an official dx you need to stay on gluten. The blood work can get thrown out of wack quite easily.

If you go gluten free and symptoms don't resolve you would need to look at other things. Usually gluten, then dairy and soy are the top problem foods.

Tinkyada makes wonderful pasta so you won't miss pasta at all. Breads....varies a lot depending on taste. You need to try different brands and see what you like. Sounds like the package mixes are the best for a lot of people. My family likes enjoy life and food for life premade bread if I don't make my own. You may still be ok with gluten free oats. I think you can order them online and some health food stores and gluten free stores will carry the gluten free oats as well.

If your daughters symptoms don't clear going gluten, dairy and soy free (if necessary), then please jump in over at the OMG I Might Be On To Something thread. You don't need to read the whole 600 odd pages, just jump in. That thread has developed into a thread with people that haven't had their issues resolved just by going gluten, soy, dairy free.

Nantzie Collaborator
Nantzie
Posted

It's totally possible. My two kids and I are gluten intolerant, and my husband and half of his family all have symptoms, but nobody wants to go gluten-free.

This board is the best resource around. I learned everything I know here. I read the archives, asked questions, etc.

My favorite gluten-free thing in the whole world is Pamela's Amazing Wheat Free Bread Mix. Pamela's Baking and Pancake Mix makes great pancakes and there's also a good recipe for Choc chip cookies on the back.

For me, GAS was my most embarassing symptom, and the reason I ended up finding out about gluten and celiac, which I had never heard of in my life. I did a websearch, just trying to find something that could help me with that. I expected to find supplements or something. Instead I found celiac and my life has been different ever since that day.

I'm glad you found us here. Welcome to the boards!

Nancy

sparkles Contributor
sparkles
Posted

I used to think that it was important to have an "official" dx but after reading some of the horror stories about insurance, I am thinking that going gluten-free without a dx might be the best route to take. Of course, the medical community, your friends and family will probably think you are nuts but if being gluten-free makes everyone feel better than it is worth the aggravation.. One more thing, since celiac disease is a genetic disorder, of course, the WHOLE family can have it. Besides, if the whole family has it or some kind of gluten intolerance having gluten in the house for one person won't be an issue!!!!!

grace-inspired Rookie
grace-inspired
Posted
  • Author

Well thank you, everyone...I do think it would be logical to try the diet w/out the bloodwork first. Our family and friend already think we are crazy because we "eat healthy" and my daughter has chemical sensitivities that make it difficult for us to go certain places("but she looks fine to me...") :angry:

I'm happy to hear about gluten free oats--I hadn't heard of them before...

We do all of our baking from scratch....so I'm going to have to start experimenting:) I think we will stay on gluten until I find some bread/muffin/pancake/noodles that we all like so it won't be such a hard transition.

As far as dairy goes....we have dairy goats and a jersey cow. The goat milk is AWESOME! In fact, I thin we all felt a bit better when we were drinking it...but they are all dry right now. The cows milk was great, but myelf and my dd didn't tolerate it as well:( Boy was it creamy!

Thanks all! And I suggest giving raw goats milk a try for the dairy-free folks....

GFBetsy Rookie
GFBetsy
Posted
I'm happy to hear about gluten free oats--I hadn't heard of them before...

We do all of our baking from scratch....so I'm going to have to start experimenting:) I think we will stay on gluten until I find some bread/muffin/pancake/noodles that we all like so it won't be such a hard transition.

Try the recipes from www.eatingglutenfree.com. The basic muffins and pancake and waffle recipes are especially good.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. TheDHhurts
      - TheDHhurts posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      0

      need help understanding testing result for Naked Nutrition Creatine please

      Hi, I bought Naked Nutrition Creatine. It lists itself as gluten free but is not certified. (It used to be, but they dropped it in the past year or two apparently.) I wrote the company and asked them what testing results they had for creatine and they sent me the attached, which says the test result for gluten is <0.025MCG. I'm used to seeing...
    2. cristiana
      - cristiana replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      14

      Insomnia help

      When I was still recovering my gastroenterologist suggested I bought lactofree product as I was very bloated. So I bought some from the supermarket and from memory, I drank a nice big glass of milk - and it went right through me literally within an hour or so, if my memory serves correctly. I came off dairy completely next and it worked like a charm...
    3. wellthatsfun
      - wellthatsfun posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      nothing has changed

      i have been strictly gluten free for 7 months. this includes avoiding anything that may contain gluten and making sure surfaces and appliances are clean. i am 18 years old in australia and my tTG-IgA results were 69U/mL, pretty low compared to most people's, for reference. i feel the exact same as before. sure, i was pretty much asymptomatic/silent...
    4. trents
      - trents replied to Charlie1946's topic in Related Issues & Disorders
      48

      Severe severe mouth pain

      @Charlie1946There is a PM (Personal Message) tool built into the forum website that allows you to send a private message to other forum users. Just hover over their name with your mouse cursor and the menu containing that tool will pop up. This is useful if you want to communicate with an individual without everyone else involved in the thread seeing it....
    5. Charlie1946
      - Charlie1946 replied to Charlie1946's topic in Related Issues & Disorders
      48

      Severe severe mouth pain

      Hi everyone, I'm still trying to figure out how to each message individually. I saw one with some information on sebaceous hyperplasia but now I can't find it. I appreciate you all so much for all your responses and advice! God bless! Hi everyone, I'm still trying to figure out how to each message individually. I saw one with some information on sebaceous...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,105
    • Most Online (within 30 mins)
      7,748
    kyocera
    Newest Member
    kyocera
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • TheDHhurts
      need help understanding testing result for Naked Nutrition Creatine please

      By TheDHhurts · Posted

      Hi, I bought Naked Nutrition Creatine. It lists itself as gluten free but is not certified. (It used to be, but they dropped it in the past year or two apparently.) I wrote the company and asked them what testing results they had for creatine and they sent me the attached, which says the test result for gluten is <0.025MCG. I'm used to seeing test results as ppm, so I'm not sure what <0.025MCG means. Can it be converted to ppm easily? I want to confirm that it is safe to use.
    • cristiana
      Insomnia help

      By cristiana · Posted

      When I was still recovering my gastroenterologist suggested I bought lactofree product as I was very bloated.  So I bought some from the supermarket and from memory, I drank a nice big glass of milk - and it went right through me literally within an hour or so, if my memory serves correctly.  I came off dairy completely next and it worked like a charm, but started to reintroduce quite gradually it as I missed it! To this day, if I overdo dairy products, they work like a mild laxative.  I've never wanted to give up milk completely as I like it so much, and my mum had osteoporosis and it's an easy way of getting calcium.  But it doesn't really 'sit' well with me.   You may need to experiment a bit as when I was healing certain dairy products were worse than others - I could cope with one brand of Greek yoghurt, but I got extremely and painfully bloated with another brand of live British yoghurt.  
    • wellthatsfun
      nothing has changed

      By wellthatsfun · Posted

      i have been strictly gluten free for 7 months. this includes avoiding anything that may contain gluten and making sure surfaces and appliances are clean. i am 18 years old in australia and my tTG-IgA results were 69U/mL, pretty low compared to most people's, for reference. i feel the exact same as before. sure, i was pretty much asymptomatic/silent. the worst i'd get was occasionally bad stools and pitting of the nails/brittle hair since early childhood - and i was diagnosed with low iron and vitamin d which checks out due to easy bruising and such. but those symptoms have remained. maybe i'm jumping the gun, sure. i know it can take years to fully heal. but being over half a year in, i feel that i should be, y'know, healing. i'm nearly at my wits end and wondering if i should have a piece of bread or something to see how i go - to see if i possibly have refractory? my mental health is declining as i feel myself wanting to bang my head against a damn wall out of frustration every day. cravings haven't gotten better. look, i love the stuff i still can have, like salads and such. OH! i haven't lost any weight, which is mind boggling considering i eat very healthily now! i've always been on the chubbier side which is atypical of coeliac. i just don't know what's going on with me. i try to remain hopeful but i'm just so sad all the time. thanks for reading  
    • trents
      Severe severe mouth pain

      By trents · Posted

      @Charlie1946There is a PM (Personal Message) tool built into the forum website that allows you to send a private message to other forum users. Just hover over their name with your mouse cursor and the menu containing that tool will pop up. This is useful if you want to communicate with an individual without everyone else involved in the thread seeing it.  Are you realizing that in my PPI taper down recommendations in an earlier post above, I was responding not to your posts but to @Caligirl57? If you must use a PPI, I certainly would advise taking the lowest dose that is effective for you.  
    • Charlie1946
      Severe severe mouth pain

      By Charlie1946 · Posted

      Hi everyone, I'm still trying to figure out how to each message individually. I saw one with some information on sebaceous hyperplasia but now I can't find it. I appreciate you all so much for all your responses and advice! God bless! Hi everyone, I'm still trying to figure out how to each message individually. I saw one with some information on sebaceous hyperplasia but now I can't find it. I appreciate you all so much for all your responses and advice! God bless! Hi everyone, I'm still trying to figure out how to each message individually. I saw one with some information on sebaceous hyperplasia but now I can't find it. I appreciate you all so much for all your responses and advice! God bless! Hi everyone, I'm still trying to figure out how to each message individually. I saw one with some information on sebaceous hyperplasia but now I can't find it. I appreciate you all so much for all your responses and advice! God bless! Hi everyone, I'm still trying to figure out how to each message individually. I saw one with some information on sebaceous hyperplasia but now I can't find it. I appreciate you all so much for all your responses and advice! God bless!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.