Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):
    GliadinX

    Celiac.com Sponsor (A1-M):
    GliadinX

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Celiac Presentation In Sandy, Utah

Emme999

By Emme999
in Coping with Celiac Disease

Recommended Posts

Emme999 Enthusiast
Emme999
Posted

Hi there :) I am doing a presentation on Celiac Disease at the Good Earth Natural Foods store in Sandy on Monday night. I know this forum was so much help to me when I was first diagnosed (and still is when I have questions) and I thought I would announce this here. Hopefully, I will be able to add to your understanding. (Which I know is vast if you spend much time here ;) )

I'm currently a student at the University of Utah who is studying Health Promotion & Education. I'm also someone with Celiac Disease who has a mad fascination with it ;) I've read at least 50 peer reviewed medical journal articles on the topic, read many books, done numerous presentations on the disease (in my classes) and have learned a lot of medical information about our disease and what happens - or how likely things are to happen.

Oh, and I know this is going to be at a natural foods store, but I promise not to tell you to eat spelt ;)

I hope that someone from this forum will come! :)

- Michelle :wub:

Here is my little anouncement :

* Living Well with Celiac Disease!

On Monday, November 27th at 7:00 pm, Michelle Larsen (University of Utah Health Educator and a woman with Celiac Disease) will offer a presentation on the gluten-free life. The meeting will take place at the Good Earth at 7905 South and 700 East, in Sandy.

We will discuss:

- Gluten-free supplements & medications

- Complications of Celiac Disease (Neurological, Autoimmune, Osteoporosis, Dermatitis

Herpetiformis, Emotional, etc.)

- The Genetic Component of Celiac disease

- How gluten affects your intestinal tract

- Prevalence of Celiac disease

- Food!

Please come! Bring your family and your insight!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):
GliadinX
Daura Damm

Celiac.com Sponsor (A8-M):
Lakefront Brewery

kbtoyssni Contributor
kbtoyssni
Posted

I think it's really neat that you're doing a presentation of celiac. Utah is a little too far for me to go to the presentation. Maybe you could post your slides or outline or whatever you're using. I bet it would be really helpful for newbies. Good luck!

Emme999 Enthusiast
Emme999
Posted
  • Author

Thanks for your encouragement! :) I need to get more involved in this board again. I miss having all of these great people to talk to who actually know what I'm talking about ;)

Once this semester is over (mid December) I'll come back to the board more often and try and make myself useful ;) I really have learned so much about celiac. It's kind of wild for an OCD person like myself to have (nearly) full access to medical journals. But hey, at least I'm learning! ;)

Just hope someone comes to the presentation!

- Michelle :wub:

Emme999 Enthusiast
Emme999
Posted
  • Author

Tonight! I hope someone comes! :wub:

jerseyangel Proficient
jerseyangel
Posted

Good luck with everything! :D

Be sure to let us know how it went.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):
    Little Northern Bakehouse


  • Member Statistics

    • Total Members
      129,852
    • Most Online (within 30 mins)
      7,748
    ehb
    Newest Member
    ehb
    Joined
  • Celiac.com Sponsor (A20):
    Daura Damm

  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):
    GliadinX


  • Celiac.com Sponsor (A21):
    Holidaily Brewing Co.


  • Upcoming Events

  • Posts

    • ehb
      Refractory Celiac disease - what to do

      By ehb · Posted

      Some other things to note and that I am wondering about is that my Mom has Chron's disease and I am wondering if that could interact here somehow. I am also wondering if I should do some form of genetic testing and what the benefit of this would be? Could this tell me my risk for developing Sprue or Lymphoma? I am very worried about this developing into Lymphoma, and wondering if that's a common thing that happens in these cases? 
    • ehb
      Refractory Celiac disease - what to do

      By ehb · Posted

      Hello,  I was diagnosed with Celiac disease about 2 years ago. Since then, I have been on an increasingly strict gluten free diet, and have been in an entirely gluten free household since January 2025 (almost 6 months). However, since my second blood test, my ttg AB, IGA levels have been stuck at ~50 (<15 not detected), fluctuating occasionally between ~47-53.  I had a biopsy one year ago (June, 2024), which showed "Duodenum with mild villous blunting and intramucosal Brunner's glands, crypt hyperplasia and increased intraepithelial lymphocytes are seen, no features of collagenous sprue or lymphoma". Since January, I went on a low FODMAP diet to help manage symptoms, but have never cut out dairy or oats completely. I am at a loss for what to do. My doctor has recommended a clinical trial for Amlitelimab, which thankfully doesn't require a gluten challenge, so I am waiting to hear back from them to see if I am eligible. I have gotten no other guidance, advice or options other than that. My symptoms are up and down but feel like they have been getting worse recently so I am feeling more desperate for solutions. I feel like I am not getting the follow up and support that is recommended online in these situations, so I am trying to get a second opinion, but don't know how to navigate insurance and getting an appointment with another specialist. I have heard some people talking about dairy, oats and corn causing a reaction in some patients, but it's unclear if that is a secondary reaction to gut damage or if these things could cause actually trigger the celiac autoimmune response, and no doctors or dieticians have recommended cutting these out. I am also wondering if this could be caused by some other autoimmune disorder, and how I would get tested for that? I guess I am looking for any sort of advice for what to do in this situation, either about participating in clinical trials or finding doctors for a second opinion, or how to get support/information for other dietary changes that could be contributing to this? Thank you in advanced for any information or support! 
    • Gary Libby
      Newly Diagnosed

      By Gary Libby · Posted

      Thankyou
    • Scott Adams
      Pepsid alternative

      By Scott Adams · Posted

      The inactive ingredients list you provided includes pregelatinized starch, which can sometimes be derived from wheat, meaning it may contain gluten. It's best to call them to verify this. https://www.pepcid.com/our-products/max-strength-pepcid-ac-cool-mint
    • Scott Adams
      Newly Diagnosed

      By Scott Adams · Posted

      This category is also helpful for recipes: https://www.celiac.com/celiac-disease/gluten-free-recipes/
×
×
  • Create New...