Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Imported Coffee

cdiverio

By cdiverio
in Coping with Celiac Disease

Recommended Posts

cdiverio Newbie
cdiverio
Posted

i have been wheat and gluten-free since sept., 04 even though a biopsy came back negative. the results of the change in diet were remarkable and in spite of cravings and constant glutenous temptations, you couldnt pay me enough to eat something with wheat in it! recently, i have been having trouble with coffee that is imported, specifically from costa rica and from vienna. these are both coffees i have had in the last 2 years without any problems, but i have noticed, thru process of elimination, that they currently wreak havoc on my system in the same way something contaminated by wheat does. anyone have the same problem with coffees or know why that might be happening?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


breann6 Contributor
breann6
Posted

are they flavored at all? hmm...sometimes coffee can give a laxative effect;

check out these links they may be of some help :)

totalsync.com/blog/2005/02/10/absolut-poison-the-dangers-in-coffee/

ask.metafilter.com/tags/coffee

cdiverio Newbie
cdiverio
Posted
  • Author
are they flavored at all? hmm...sometimes coffee can give a laxative effect;

check out these links they may be of some help :)

totalsync.com/blog/2005/02/10/absolut-poison-the-dangers-in-coffee/

ask.metafilter.com/tags/coffee

no - not flavored at all - medium roast mixed with decaf medium roast (which i did thinking that the offending agent might be the caffeine, but i got the same results) -

thanks for your input - could be the pesticides, i guess - its as good an explanation as i have!!!

breann6 Contributor
breann6
Posted

could be- or could be a cc issue- unless the coffee has a gluten free label. could be that you are sensitive to coffee- is it just this coffee- or all coffee regardless of brand?

~breann

cdiverio Newbie
cdiverio
Posted
  • Author
could be- or could be a cc issue- unless the coffee has a gluten free label. could be that you are sensitive to coffee- is it just this coffee- or all coffee regardless of brand?

~breann

i am not having a problem with any of the coffees made here - just one i got on a cruise to costa rica and one that was a gift from vienna. these are clearly things i could avoid, but they are one of those little pleasures i would rather not give up!! i thank you for your help and i will try the coffee listed in the article you sent me - celiac disease

jerseyangel Proficient
jerseyangel
Posted

There are coffees that are processed by using wheat flour on the lines to keep things moving. The only way to verify that would be to contact the manufacturer.

Brand name coffees are generally safe, but because you said that this was imported, this could apply. I've heard of off-brands where this has happened.

cdiverio Newbie
cdiverio
Posted
  • Author
There are coffees that are processed by using wheat flour on the lines to keep things moving. The only way to verify that would be to contact the manufacturer.

Brand name coffees are generally safe, but because you said that this was imported, this could apply. I've heard of off-brands where this has happened.

wow!!! that is JUST what this feels like!!! i cant read the one from vienna and the one from costa rica doesnt list ingredients - thank you so much for your insight - ~cheryl

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,212
    • Most Online (within 30 mins)
      7,748
    MoiraK
    Newest Member
    MoiraK
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Taking Probiotics but Still Getting Sick After Gluten – Advice?

      By trents · Posted

      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      Taking Probiotics but Still Getting Sick After Gluten – Advice?

      By Scott Adams · Posted

      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
    • Xravith
      Taking Probiotics but Still Getting Sick After Gluten – Advice?

      By Xravith · Posted

      I'm very confused... My blood test came out negative, I checked all antibodies. I suppose my Total IgA levels are normal (132 mg/dl), so the test should be reliable. Still, I'm not relieved as I can't tolerate even a single biscuit. I need to talk to my doctor about whether a duodenal biopsy is necessary. But it is really possible to have intestinal damage despite having a seronegative results? I have really strong symptoms, and I don't want to keep skipping university lectures or being bedridden at home.
    • Scott Adams
      CT with contrast.

      By Scott Adams · Posted

      They may want to also eliminate other possible causes for your symptoms/issues and are doing additional tests.  Here is info about blood tests for celiac disease--if positive an endoscopy where biopsies of your intestinal villi are taken to confirm is the typical follow up.    
    • Scott Adams
      New labs are now very elevated

      By Scott Adams · Posted

      In the Europe the new protocol for making a celiac disease diagnosis in children is if their tTg-IgA (tissue transglutaminase IgA) levels are 10 times or above the positive level for celiac disease--and you are above that level. According to the latest research, if the blood test results are at certain high levels that range between 5-10 times the reference range for a positive celiac disease diagnosis, it may not be necessary to confirm the results using an endoscopy/biopsy: Blood Test Alone Can Diagnose Celiac Disease in Most Children and Adults TGA-IgA at or Above Five Times Normal Limit in Kids Indicates Celiac Disease in Nearly All Cases No More Biopsies to Diagnose Celiac Disease in Children! May I ask why you've had so many past tTg-IgA tests done, and many of them seem to have been done 3 times during short time intervals?    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.