Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Question On How To Read Bloodwork.


Alexolua

Recommended Posts

Alexolua Explorer

I know there are two threads currently about blood work, but I wasn't sure how to post this in one of those, without stealing the creator's thunder so to speak.. so starting yet another one, sorry!

I had these taken last Fall, seeing the doctor again, and just want to sound intelligent when I point out to him how this could mean celiac disease (or gluten intolerance, lol) to him.

Gliadin Ab (IgG) = 64

Gliadin Ab (IgA) = 34

Transglutaminase Ab (IgA) = 5

Under 20, Neg. Over 20, weak positive. Over 30, positive.

Reticulin Ab (IgA) = Negative

So, if I understand this right. The IgG is raised in people with celiac disease, but also other diseases. The IgA, my test results say can be with celiac disease or other diseases too, but I read on the boards that IgA is better at showing celiac disease than IgG?

And the other two, obviously appear to be negative according to the lab results. Do those other two have more to do with a damaged small intestines than the first? Just a guess..

But when my doctor rails on about me not having to be gluten-free, I can say pretty positively to him, if I'm not mistaken that no matter what he thinks, having Gliadin Anti-Bodies showing up as strong positives mean I am gluten intolerant and would be dumb to go back to eating it?

Thanks! And yes, I know getting another doctor could be good to do.. but so far, he seems willing to learn, and better for his patients if I can educate him somehow. Don't think my insurance would allow a switch anyway, LOL.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GEF Explorer
I know there are two threads currently about blood work, but I wasn't sure how to post this in one of those, without stealing the creator's thunder so to speak.. so starting yet another one, sorry!

Alexolua,

I don't know if we could ever have enough of these questions, to be honest with you.

But when my doctor rails on about me not having to be gluten-free, I can say pretty positively to him, if I'm not mistaken that no matter what he thinks, having Gliadin Anti-Bodies showing up as strong positives mean I am gluten intolerant and would be dumb to go back to eating it?

That's how I see it too!

Gretchen

Alexolua Explorer
That's how I see it too!

Okay, so I am right in assuming those mean I'm gluten intolerant, no matter what he thinks? =)

And hey.. looking at your tag, you were negative on the last two, too? Well Borderline for that other one.. with a certain number, looks like my lab didn't do numbers for that one.

GEF Explorer

Alexolua,

I have read that encouraging a patient to go gluten-free before diagnois is discouraged because of the difficulty of receiving a diagnosis later in life. I personally consider an auto-immune response to gluten as intolerance... irregardless of what condition might be causing it. A year after my Igg was elevated and I didn't go gluten-free, my levels just increased.... real good that did. <_<

I have read about the destructive nature of gluten in the bloodstream and knowing I have a problem, don't want to risk the results of non-treatment.

Okay, so I am right in assuming those mean I'm gluten intolerant, no matter what he thinks? =)

I'd say "yes" to that. ... you wouldn't be the first one to disagree with a doctor

Gretchen

Alexolua Explorer

Thanks for the reply again. =)

you wouldn't be the first one to disagree with a doctor

I know that! Pretty sure a good amount of us here have disagreed with doctors before, LOL.

Mydnyt Newbie

So just for another question on blood work...

Seems your blood tests are a little more detailed than mine was.

It tested for anti-IgA, which when I went searching on the net had similar results to that stated below - would this be the transglutaminase Ab???

I had a reading off the scale at 190, but inconclusive/negative biopsy.

Although keeping to the diet pretty well, and have a new, amazingly supportive partner, I am still trying to get a handle on all this and what everything means.

What are the other tests for? still gluten, or something else?

QUOTE

Gliadin Ab (IgG) = 64

Gliadin Ab (IgA) = 34

Transglutaminase Ab (IgA) = 5

Under 20, Neg. Over 20, weak positive. Over 30, positive.

Reticulin Ab (IgA) = Negative

Cheers, Peta

GEF Explorer
have a new, amazingly supportive partner

Peta,

I know how important that is... that's wonderful.

Was it the Iga that you tested in that was 190 or another test?

There are many different blood tests that they use in the celiac profile. Some have less/more specificity & sensitivity than the others, but pretty much if you tested positive on any, it's an indication that your body is having a response to gluten (protein found in wheat, barley, rye, oats). Some of the tests, like the Ttg are specific to intestinal damage... which will most likely be negative in someone who's gluten intolerance hasn't caused intestinal damage yet. Celiac is diagnosed when that damage appears. Many go gluten-free before that happens, though.

Gretchen


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Mydnyt Newbie

Thanks for that Gretchen

Yes, he's been great!! Putting up with the "I can't eat that", and the mood that followed a caterers erm... mistake!?

Yep. Has got me a little confused though. I'm not quite sure what it was testing. All it had on the result sheet was anti-IgA - 190. When I got home I did a search on the web, and found something that said over 30 was high indication of positive for celiac disease. Seems over there you're testing is more detailed?!

Glad my doc has a view of avoiding problems, and suggested gluten-free for 6 wks. The GI said don't do it unless definite celiac disease.

As for waiting till you get to the point where you've got intestinal damage if you can avoid it... you gotta be kidding me. not if you know how to avoid it

Peta

Racheleona Apprentice

wow, reading others blood results that have been posted on here, makes me think do I really have celiac disease? My results were IgG 20, IgA negative, and Ttg negative. My doctor considered that number of 20 to be enough for me to be gluten intolerant...now I'm questioning. I guess it is better to trial it with the diet and go by how I feel!

Rachel

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

    2. - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

    3. - nanny marley replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      20

      Insomnia help

    4. - David Blake commented on Scott Adams's article in Product Labeling Regulations
      1

      FDA Moves to Improve Gluten Labeling—What It Means for People With Celiac Disease

    5. - nanny marley replied to wellthatsfun's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      nothing has changed

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,344
    • Most Online (within 30 mins)
      7,748

    Scottweath
    Newest Member
    Scottweath
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • asaT
      plant sources of calcium, such as spinach, have calcium bound to oxalates, which is not good. best source of calcium is unfortunately dairy, do you tolerate dairy? fermented dairy like kefir is good and or a little hard cheese. i do eat dairy, i can only take so much dietary restriction and gluten is hard enough! but i guess some people do have bad reactions to it, so different for everyone.  
    • asaT
      i take b12, folate, b2, b6, glycine, Nac, zinc, vk2 mk4, magnesium, coq10, pqq, tmg, creatine, omega 3, molybdnem (sp) and just started vit d. quite a list i know.  I have high homocysteine (last checked it was 19, but is always high and i finally decided to do something about it) and very low vitamin d, 10. have been opposed to this supp in the past, but going to try it at 5k units a day. having a pth test on friday, which is suspect will be high. my homocysteine has come down to around 9 with 3 weeks of these supplements and expect it to go down further. i also started on estrogen/progesterone. I have osteoporosis too, so that is why the hormones.  anyway, i think all celiacs should have homocysteine checked and treated if needed (easy enough with b vit, tmg). homocysteine very bad thing to be high for a whole host of reasons. all the bad ones, heart attack , stroke, alzi, cancer..... one of the most annoying things about celiacs (and there are so many!) is the weight gain. i guess i stayed thin all those years being undiagnosed because i was under absorbing everything including calories. going gluten-free and the weight gain has been terrible, 30#, but i'm sure a lot more went into that (hip replacement - and years of hip pain leading to inactivity when i was previously very active, probably all related to celiacs, menopause) yada yada. i seemed to lose appetite control, like there was low glp, or leptin or whatever all those hormones are that tell you that you are full and to stop eating. my appetite is immense and i'm never full. i guess decades or more ( i think i have had celiacs since at least my teens - was hospitalized for abdominal pain and diarrhea for which spastic colon was eventually diagnosed and had many episodes of diarrhea/abdominal pain through my 20's. but that symptom seemed to go away and i related it to dairy much more so than gluten. Also my growth was stunted, i'm the only shorty in my family. anyway, decades of malabsorption and maldigestion led to constant hunger, at least thats my theory. then when i started absorbing normally, wham!! FAT!!!    
    • nanny marley
      Great advise there I agree with the aniexty part, and the aura migraine has I suffer both, I've also read some great books that have helped I'm going too look the one you mentioned up too thankyou for that, I find a camomile tea just a small one and a gentle wind down before bed has helped me too, I suffer from restless leg syndrome and nerve pain hence I don't always sleep well at the best of times , racing mind catches up I have decorated my whole house in one night in my mind before 🤣 diet changes mindset really help , although I have to say it never just disappears, I find once I came to terms with who I am I managed a lot better  , a misconception is for many to change , that means to heal but that's not always the case , understanding and finding your coping mechanisms are vital tools , it's more productive to find that because there is no failure then no pressure to become something else , it's ok to be sad it's ok to not sleep , it's ok to worry , just try to see it has a journey not a task 🤗
    • nanny marley
      I agree there I've tryed this myself to prove I can't eat gluten or lactose and it sets me back for about a month till I have to go back to being very strict to settle again 
    • trents
      You may also need to supplement with B12 as this vitamin is also involved in iron assimilation and is often deficient in long-term undiagnosed celiac disease.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.