Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

My Brother Has Celiacs, Too.

MySuicidalTurtle

Recommended Posts

MySuicidalTurtle Enthusiast
MySuicidalTurtle
Posted

So, my brother, Matthew, started getting ill like I used to be a few weeks ago. Of course when he went to our doctor she said go on a gluten-free diet and we will do tests. The call cam today and he has it. It's a bit weird but it's good to know what's wrong. I told him he should check this place out so I think he will register and all that jazz.

Kristina

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Guest jhmom
Guest jhmom
Posted

Kristina:

Awww man, I hate to hear that! At least you know he likes some of the gluten-free food, eh?

burdee Enthusiast
burdee
Posted

Hey Kristina: Now you have to share ALL your gluten-free homebaked cookies with your brother. :o Maybe the gluten-free diet will help his ADHD symptoms. That's very logical that your brother would have celiac disease, since it's a hereditary disease. Do either of your parents have symptoms? Wouldn't it be ironic, if your dad who won't touch your gluten-free homemade cookies, tested positive for celiac disease. :lol: I can't wait to tell my husband (who's had lifelong ADHD and insists he can eat ANYTHING) about your brother's diagnosis. Fortunately, my husband loves ENER-G Foods gluten-free breads and cookies. I sure would like to get him on a gluten-free diet to help his ADHD symptoms. ;)

BURDEE

celiac3270 Collaborator
celiac3270
Posted

How's he taking it? Anyway, welcome to the board, Matthew!.........hope the diet helps with his symptoms.

MySuicidalTurtle Enthusiast
MySuicidalTurtle
Posted
  • Author

I don't wanna share!

Yea, we'll see how the diet works for him.

He'll probably post here since he eats different food than me and I don't know about them.

GEF Explorer
GEF
Posted

Not that anyone would want someone to be celiac, but it's good that he's found out so early.

Even though you might eat different things... you might be of great support for each other throughout life.

Gretchen

Kathy-W Newbie
Kathy-W
Posted

Hi all. My name is Kathleen. I love this site and the forums that I have read so far. My twin sister has celiac disease really bad and is on a glutan free diet and has been on one for several years. This is weird, but I have SLE (Systemic Lupus Erythmetosis). Anyway for years I have had this horrible blistery itchy nasty rash on the palms of my hands and fingers and on the bottems of my feet and between my toes and on my toes. I have serious bathroom problems for example terrible bouts of diarrhea and gas etc. It is really bad for sure. She lives in Florida and I live in Georgia and she came up for a visit. She talked with me about my problems that I am having and the several trips to the doctor that sees me for my Lupus. She told me that I should be tested immediately for glutan intolerance since we are twins and I most likely have celiac disease. Well it turns out that I do definitely have it and have to go on a gluten-free diet. I am very new and this is really hard. She had been trying to tell me for several years and I unfortunately would not listen until it became very severe. When I told her the news she said see I have been telling your for years that you may have celiac disease and you would not listen to me. I guess I was in a terrible state of denial, because man I love cookies, cakes, breads etc. Thanks for letting me share. I am going to check out the recipes in this site and buy me a bread making machine. Feel free to email me if you like.

Kathleen W.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


burdee Enthusiast
burdee
Posted

Kathleen: There are MANY gluten free bakeries/retailers which produce a WIDE variety of great gluten free breads, muffins, bagels, cookies, cakes, pastas, etc. So you don't have to bake your own bread, unless you really enjoy that. I personally like Food for Life breads and almost anything from Ener-G Foods which is my local Seattle-based gluten-free bakery retailer. I'm not that familiar with this website, but I believe they list gluten free retailers somewhere here. If you try a gluten-free bread or cooky and don't like it, try another variety or brand. There are enough different brands and varieties to suit all kinds of gluten free tastes, that you are certain to find something if you keep looking. Ener-G Foods sells a bread sampler package with 2 slice packages of many of the breads they make. Perhaps other companies do something similar. Good luck with gluten sleuthing. ;)

BURDEE

  • 3 years later...
prettyXmuchXrad Newbie
prettyXmuchXrad
Posted

My little brother got diagnosed a few months before I did. It's nice to have somebody close that understands!

Daughter-of-TheLight Apprentice
Daughter-of-TheLight
Posted

My little bro has it too... And he eats my chocolate dounuts... <_< kinda annoying... He's not on here. Or I would be hiding from shame.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Churley
      - Churley replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      10

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Have you tried Pure Encapsulations supplements? This is a brand my doctor recommends for me. I have no issues with this brand.
    2. asaT
      - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

      plant sources of calcium, such as spinach, have calcium bound to oxalates, which is not good. best source of calcium is unfortunately dairy, do you tolerate dairy? fermented dairy like kefir is good and or a little hard cheese. i do eat dairy, i can only take so much dietary restriction and gluten is hard enough! but i guess some people do have bad reactions...
    3. asaT
      - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

      i take b12, folate, b2, b6, glycine, Nac, zinc, vk2 mk4, magnesium, coq10, pqq, tmg, creatine, omega 3, molybdnem (sp) and just started vit d. quite a list i know. I have high homocysteine (last checked it was 19, but is always high and i finally decided to do something about it) and very low vitamin d, 10. have been opposed to this supp in the past...
    4. nanny marley
      - nanny marley replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      20

      Insomnia help

      Great advise there I agree with the aniexty part, and the aura migraine has I suffer both, I've also read some great books that have helped I'm going too look the one you mentioned up too thankyou for that, I find a camomile tea just a small one and a gentle wind down before bed has helped me too, I suffer from restless leg syndrome and nerve pain hence I...
    5. David Blake
      - David Blake commented on Scott Adams's article in Product Labeling Regulations
      1

      FDA Moves to Improve Gluten Labeling—What It Means for People With Celiac Disease

      My question I have proposed to the FDA through their website is why Prescription and OTC drug manufacturers are not required to list what binding ingredients were used to bine the drug? They list this on Capsules which are made of cellulose but not on pills? As it stands I or my pharmacist must contact the manufacturer to find out and my list is long from...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,345
    • Most Online (within 30 mins)
      7,748
    Scottweath
    Newest Member
    Scottweath
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Churley
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Churley · Posted

      Have you tried Pure Encapsulations supplements? This is a brand my doctor recommends for me. I have no issues with this brand.
    • asaT
      Supplements for those Diagnosed with Celiac Disease

      By asaT · Posted

      plant sources of calcium, such as spinach, have calcium bound to oxalates, which is not good. best source of calcium is unfortunately dairy, do you tolerate dairy? fermented dairy like kefir is good and or a little hard cheese. i do eat dairy, i can only take so much dietary restriction and gluten is hard enough! but i guess some people do have bad reactions to it, so different for everyone.  
    • asaT
      Supplements for those Diagnosed with Celiac Disease

      By asaT · Posted

      i take b12, folate, b2, b6, glycine, Nac, zinc, vk2 mk4, magnesium, coq10, pqq, tmg, creatine, omega 3, molybdnem (sp) and just started vit d. quite a list i know.  I have high homocysteine (last checked it was 19, but is always high and i finally decided to do something about it) and very low vitamin d, 10. have been opposed to this supp in the past, but going to try it at 5k units a day. having a pth test on friday, which is suspect will be high. my homocysteine has come down to around 9 with 3 weeks of these supplements and expect it to go down further. i also started on estrogen/progesterone. I have osteoporosis too, so that is why the hormones.  anyway, i think all celiacs should have homocysteine checked and treated if needed (easy enough with b vit, tmg). homocysteine very bad thing to be high for a whole host of reasons. all the bad ones, heart attack , stroke, alzi, cancer..... one of the most annoying things about celiacs (and there are so many!) is the weight gain. i guess i stayed thin all those years being undiagnosed because i was under absorbing everything including calories. going gluten-free and the weight gain has been terrible, 30#, but i'm sure a lot more went into that (hip replacement - and years of hip pain leading to inactivity when i was previously very active, probably all related to celiacs, menopause) yada yada. i seemed to lose appetite control, like there was low glp, or leptin or whatever all those hormones are that tell you that you are full and to stop eating. my appetite is immense and i'm never full. i guess decades or more ( i think i have had celiacs since at least my teens - was hospitalized for abdominal pain and diarrhea for which spastic colon was eventually diagnosed and had many episodes of diarrhea/abdominal pain through my 20's. but that symptom seemed to go away and i related it to dairy much more so than gluten. Also my growth was stunted, i'm the only shorty in my family. anyway, decades of malabsorption and maldigestion led to constant hunger, at least thats my theory. then when i started absorbing normally, wham!! FAT!!!    
    • nanny marley
      Insomnia help

      By nanny marley · Posted

      Great advise there I agree with the aniexty part, and the aura migraine has I suffer both, I've also read some great books that have helped I'm going too look the one you mentioned up too thankyou for that, I find a camomile tea just a small one and a gentle wind down before bed has helped me too, I suffer from restless leg syndrome and nerve pain hence I don't always sleep well at the best of times , racing mind catches up I have decorated my whole house in one night in my mind before 🤣 diet changes mindset really help , although I have to say it never just disappears, I find once I came to terms with who I am I managed a lot better  , a misconception is for many to change , that means to heal but that's not always the case , understanding and finding your coping mechanisms are vital tools , it's more productive to find that because there is no failure then no pressure to become something else , it's ok to be sad it's ok to not sleep , it's ok to worry , just try to see it has a journey not a task 🤗
    • nanny marley
      nothing has changed

      By nanny marley · Posted

      I agree there I've tryed this myself to prove I can't eat gluten or lactose and it sets me back for about a month till I have to go back to being very strict to settle again 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.