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My Brother Has Celiacs, Too.

MySuicidalTurtle

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MySuicidalTurtle Enthusiast
MySuicidalTurtle
Posted

So, my brother, Matthew, started getting ill like I used to be a few weeks ago. Of course when he went to our doctor she said go on a gluten-free diet and we will do tests. The call cam today and he has it. It's a bit weird but it's good to know what's wrong. I told him he should check this place out so I think he will register and all that jazz.

Kristina

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Guest jhmom
Guest jhmom
Posted

Kristina:

Awww man, I hate to hear that! At least you know he likes some of the gluten-free food, eh?

burdee Enthusiast
burdee
Posted

Hey Kristina: Now you have to share ALL your gluten-free homebaked cookies with your brother. :o Maybe the gluten-free diet will help his ADHD symptoms. That's very logical that your brother would have celiac disease, since it's a hereditary disease. Do either of your parents have symptoms? Wouldn't it be ironic, if your dad who won't touch your gluten-free homemade cookies, tested positive for celiac disease. :lol: I can't wait to tell my husband (who's had lifelong ADHD and insists he can eat ANYTHING) about your brother's diagnosis. Fortunately, my husband loves ENER-G Foods gluten-free breads and cookies. I sure would like to get him on a gluten-free diet to help his ADHD symptoms. ;)

BURDEE

celiac3270 Collaborator
celiac3270
Posted

How's he taking it? Anyway, welcome to the board, Matthew!.........hope the diet helps with his symptoms.

MySuicidalTurtle Enthusiast
MySuicidalTurtle
Posted
  • Author

I don't wanna share!

Yea, we'll see how the diet works for him.

He'll probably post here since he eats different food than me and I don't know about them.

GEF Explorer
GEF
Posted

Not that anyone would want someone to be celiac, but it's good that he's found out so early.

Even though you might eat different things... you might be of great support for each other throughout life.

Gretchen

Kathy-W Newbie
Kathy-W
Posted

Hi all. My name is Kathleen. I love this site and the forums that I have read so far. My twin sister has celiac disease really bad and is on a glutan free diet and has been on one for several years. This is weird, but I have SLE (Systemic Lupus Erythmetosis). Anyway for years I have had this horrible blistery itchy nasty rash on the palms of my hands and fingers and on the bottems of my feet and between my toes and on my toes. I have serious bathroom problems for example terrible bouts of diarrhea and gas etc. It is really bad for sure. She lives in Florida and I live in Georgia and she came up for a visit. She talked with me about my problems that I am having and the several trips to the doctor that sees me for my Lupus. She told me that I should be tested immediately for glutan intolerance since we are twins and I most likely have celiac disease. Well it turns out that I do definitely have it and have to go on a gluten-free diet. I am very new and this is really hard. She had been trying to tell me for several years and I unfortunately would not listen until it became very severe. When I told her the news she said see I have been telling your for years that you may have celiac disease and you would not listen to me. I guess I was in a terrible state of denial, because man I love cookies, cakes, breads etc. Thanks for letting me share. I am going to check out the recipes in this site and buy me a bread making machine. Feel free to email me if you like.

Kathleen W.

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burdee Enthusiast
burdee
Posted

Kathleen: There are MANY gluten free bakeries/retailers which produce a WIDE variety of great gluten free breads, muffins, bagels, cookies, cakes, pastas, etc. So you don't have to bake your own bread, unless you really enjoy that. I personally like Food for Life breads and almost anything from Ener-G Foods which is my local Seattle-based gluten-free bakery retailer. I'm not that familiar with this website, but I believe they list gluten free retailers somewhere here. If you try a gluten-free bread or cooky and don't like it, try another variety or brand. There are enough different brands and varieties to suit all kinds of gluten free tastes, that you are certain to find something if you keep looking. Ener-G Foods sells a bread sampler package with 2 slice packages of many of the breads they make. Perhaps other companies do something similar. Good luck with gluten sleuthing. ;)

BURDEE

  • 3 years later...
prettyXmuchXrad Newbie
prettyXmuchXrad
Posted

My little brother got diagnosed a few months before I did. It's nice to have somebody close that understands!

Daughter-of-TheLight Apprentice
Daughter-of-TheLight
Posted

My little bro has it too... And he eats my chocolate dounuts... <_< kinda annoying... He's not on here. Or I would be hiding from shame.

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      New (possible) celiac diagnosis

      By trents · Posted

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    • Judy M
      New (possible) celiac diagnosis

      By Judy M · Posted

      My husband has had lactose intolerance for his entire life (he's 68 yo).  So, he's used to gastro issues. But for the past year he's been experiencing bouts of diarrhea that last for hours.  He finally went to his gastroenterologist ... several blood tests ruled out other maladies, but his celiac results are suspect.  He is scheduled for an endoscopy and colonoscopy in 2 weeks.  He was told to eat "gluten free" until the tests!!!  I, and he know nothing about this "diet" much less how to navigate his in daily life!! The more I read, the more my head is spinning.  So I guess I have 2 questions.  First, I read on this website that prior to testing, eat gluten so as not to compromise the testing!  Is that true? His primary care doctor told him to eat gluten free prior to testing!  I'm so confused.  Second, I read that celiac disease is genetic or caused by other ways such as surgery.  No family history but Gall bladder removal 7 years ago, maybe?  But how in God's name does something like this crop up and now is so awful he can't go a day without worrying.  He still works in Manhattan and considers himself lucky if he gets there without incident!  Advice from those who know would be appreciated!!!!!!!!!!!!
    • Scott Adams
      Patiently Waiting to See Results

      By Scott Adams · Posted

      You've done an excellent job of meticulously tracking the rash's unpredictable behavior, from its symmetrical spread and stubborn scabbing to the potential triggers you've identified, like the asthma medication and dietary changes. It's particularly telling that the rash seems to flare with wheat consumption, even though your initial blood test was negative—as you've noted, being off wheat before a test can sometimes lead to a false negative, and your description of the other symptoms—joint pain, brain fog, stomach issues—is very compelling. The symmetry of the rash is a crucial detail that often points toward an internal cause, such as an autoimmune response or a systemic reaction, rather than just an external irritant like a plant or mites. I hope your doctor tomorrow takes the time to listen carefully to all of this evidence you've gathered and works with you to find some real answers and effective relief. Don't be discouraged if the rash fluctuates; your detailed history is the most valuable tool you have for getting an accurate diagnosis.
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      Gluten free beer ?

      By Scott Adams · Posted

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      Patiently Waiting to See Results

      By trents · Posted

      Welcome to the forum, @catsrlife! Celiac disease can be diagnosed without committing to a full-blown "gluten challenge" if you get a skin biopsy done during an active outbreak of dermatitis herpetiformis, assuming that is what is causing the rash. There is no other known cause for dermatitis herpetiformis so it is definitive for celiac disease. You would need to find a dermatologist who is familiar with doing the biopsy correctly, however. The samples need to be taken next to the pustules, not on them . . . a mistake many dermatologists make when biopsying for dermatitis herpetiformis. 
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