Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I've Been Asked To Write An Article


Nantzie

Recommended Posts

Nantzie Collaborator

There's a message board/online magazine that I've been a part of for a few years now. The "Scott" ;) of the board has asked me to write an article for the magazine about celiac and my experience with it. This was the message board I was posting at when I was so sick, could barely walk, freaking out and thinking that this was how my life was going to be.

I was so depressed not long before I found out about gluten that I stopped posting there because even I didn't want to hear myself talk anymore. Not that my friends there weren't supportive, but all they could do is give me online hugs and encouragement. Eventually I just crawled into a hole and stopped posting. Once I found out about gluten and this forum, my interest switched here. But I never forgot about my friends there. It's not a huge forum, but there are several hundred, so I'm sure there are at least a few people there who have celiac and aren't aware of it.

I emailed the "Scott" and let her know what I had been up to and how my life had changed so dramatically and that I was planning on coming back to the board. I just wanted to warn her in advance that I'd probably be talking about celiac quite a bit so she would know what was going on and wouldn't think I was some sort of troll, or that this was a health kick that I was bugging everyone about. She remembered me and was blown away by how much gluten had had such a negative effect on my health.

So now, she has invited me to write an article. I've been mulling over what I want to write and how I want to present this.

With our glutenfreeforum.com membership of close to 12 thousand now, I'm sure there are other writers here. Any advice on writing an article that is not only personal, but medical/technical/scientific? I want this not only to be something that the readership of this online magazine would benefit from, but something that would be forward-able to their friends and family.

Thanks for any advice.

Nancy


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guest nini

when I write my articles I keep it personal... some people go at it from a journalistic approach and write about someone other than themself, but I prefer the personal stories, the success stories and helpful tips... Remember that most people who will read what you are writing probably have no clue what gluten or Celiac is so you will want to make sure you do include a technical blurb in parenthesis that quickly and succinctly explains what you are talking about. If you reference any other web sites or magazines or medical journals be sure to credit the author.

I'm not a professional writer by any means, but I've been writing articles on gluten-free living for about two years now for the local health food store co op's bi monthly newsletter. You can see the newsletters online at www.lifegrocery.com

gabby Enthusiast

Hi,

I'm a writer. It sounds like they want you to write an article about your personal experience with celiac disease. Unless you are a celiac disease researcher or you are a doctor, your readers will not expect too much medical information. Just add one or two sentences that says celiac disease is an auto-immune disorder that is much misunderstood, etc (then just add a hyperlink to a website that people can go to for more information). What people want to know is your experience.

An article can take many forms. One that is really easy to write and is interesting to read is the question and answer format. Here, you can say something like: here are the questions I usually get about celiac disease. Then pick 5 or 6 questions you usually get and answer them.

For example:

1. What is celiac disease?

2. What can you eat?

3. When will it go away?

4. etc.

Then, you can add in the 5 or 6 things that you want everyone to know about people who have celiac disease:

for example: eatiing out is difficult..and explain why. Going to parties is hard....explain why. Yes, that one bite of a donut is enough to sicken you. No, you don't want to answer personal questions about your bowels at a dinner.

Then end by telling people again that this is your personal opinion, honestly told, and that you hope it has helped to bring some tiny bit of understanding out there.

These are just my ideas. Of course, write whatever you are comfortable with.

Good luck!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,175
    • Most Online (within 30 mins)
      7,748

    Chels22
    Newest Member
    Chels22
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Heatherisle
      Daughter has started gluten free diet this week as per gastroenterologists suggestion. However says she feels more tired and like she’s been hit by a train. I suggested it could be the change to gluten free or just stress from the endoscopy last week catching up with her. Just wondering if feeling more tired is a normal reaction at this stage. I suppose it’s possible some gluten might have been present without realising. Have tried to reassure her it’s not going to resolve symptoms overnight
    • DAR girl
      Looking for help sourcing gluten-free products that do not contain potato or corn derived ingredients. I have other autoimmune conditions (Psoriatic Arthritis and Sjogrens) so I’m looking for prepared foods as I have fatigue and cannot devote a lot of time to baking my own treats. 
    • Scott Adams
      I am so sorry you're going through this. It's completely understandable to feel frustrated, stressed, and disregarded after such a long and difficult health journey. It's exhausting to constantly advocate for yourself, especially when you're dealing with so many symptoms and positive diagnoses like SIBO, while still feeling unwell. The fact that you have been diligently following the diet without relief is a clear sign that something else is going on, and your doctors should be investigating other causes or complications, not dismissing your very real suffering. 
    • Oldturdle
      It is just so sad that health care in the United States has come to this.  Health insurance should be available to everyone, not just the healthy or the rich.  My heart goes out to you.  I would not hesitate to have the test and pay for it myself.  My big concern would be how you could keep the results truly private.  I am sure that ultimately, you could not.  A.I. is getting more and more pervasive, and all data is available somewhere.  I don't know if you could give a fake name, or pay for your test with cash.  I certainly would not disclose any positive results on a private insurance application.  As I understand it, for an official diagnosis, an MD needs to review your labs and make the call.  If you end up in the ER, or some other situation, just request a gluten free diet, and say it is because you feel better when you don't eat gluten.      Hang in there, though.  Medicare is not that far away for you, and it will remove a lot of stress from your health care concerns.  You will even be able to "come out of the closet" about being Celiac!
    • plumbago
      Yes, I've posted a few times about two companies: Request a Test and Ulta Labs. Also, pretty much we can all request any test we want (with the possible exception of the N protein Covid test and I'm sure a couple of others) with Lab Corp (or Pixel by Lab Corp) and Quest. I much prefer Lab Corp for their professionalism, ease of service and having it together administratively, at least in DC. And just so you know, Request a Test uses Lab Corp and Quest anyway, while Ulta Labs uses only Quest. Ulta Labs is cheaper than Request a Test, but I am tired of dealing with Quest, so I don't use them so much.
×
×
  • Create New...