Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Anxiety, Stress, And Ultra Sensitivity


Guest ~wAvE WeT sAnD~

Recommended Posts

Guest ~wAvE WeT sAnD~

Hey everyone!!!

I'd really appreciate your support on this one, because I'm confused. Big time.

Sometimes, I get major mood swings...I know there's a thread on it somewhere, but I don't remember where it is or if anyone posted a message similar to this one.

It seems as if celiac disease has "thinned my skin" (opposed to the saying, "having thick skin.") I have been worrying about or forgetting things a lot lately. I keep having fears that everyone thinks I'm a different person, when I know that's not the case. I keep missing cross country practices because I keep forgetting the times for practice. I swear someone told me when had to run at 7:00--why were my teammates running at 4:00, then?

Oh, Lord. Am I getting cross contamination?

I love you all. It's comforting to know I'm not alone.

Does caffeine increase stress/anxiety in Celiacs? I had coffee shortly before dinner, and after that my heart began pounding, thus starting my anxiety. Am I imagining things? :(


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guest ~wAvE WeT sAnD~

Well, I read the thread...and I've been getting 125% of B6 and B12. Huh. I'm going to check on the cross contamination bit...hmph. Thanks again!!!!

celiac3270 Collaborator

I don't think the caffeine helps with stress........okay, that's putting it mildly.....caffeine is bad for stress or anxiety......you might want to stay away from that a bit....or at least limit it............about the other stuff.......I don't know what's with forgetting or imagining things. Someone here...I think it was Jessica (angel_jd1) made a thread awhile ago about being forgetful.....I didn't really read it, so I don't know if it had....sort of imagining things in it, but if you found that one, it might help with forgetfulness..................

Guest ~wAvE WeT sAnD~

celiac3270,

I guess I'll try to limit my caffeine intake...but there have been incidents (two) without caffeine that I've been extremely worried about. Today, the episode was identical to the ones I had before my diagnosis...

I don't know.

Thanks for replying,

GEF Explorer

Jill,

I'm almost 29 (I know it's hard to tell from my pic :lol: ) and if I don't get enough sleep, I cry like a baby... I have these super-sensitive moments that just can't be explained (it's not hormonal either). Usually Eric (my fiance) sends me to bed to get some rest when that happens. If I can say anything, it's directly related to the amount of sleep I get, because I seem to need a ton. I will set my alarm clock and a few seconds later have to check to make sure I did it right.. Hahahahaha! What I'm saying is you're not alone... I forget appointment times too. I really wish I could offer you advice, but if anything it's just best to know what your limits are and say "no" when you can't do what other's want from you. I think it's just that our bodies need a little more grace at times... they work pretty hard.

Gretchen

j9n Contributor

I had to fight with my doctor and insurance company to get me an appointment with a dietian. I had to wait 2 weeks for the appointment. That day I forgot all about it. I called crying, I could not believe I missed the one appointment I though I might finally get some help. She was nice and forgiving and rescheduled it for me.

oh, and I have never been able to tolerate too much caffeine. Makes me VERY jittery and nervous. I wonder if our bodies are still in a state of shock or on the defensive. Working hard to heal takes alot of energy, just like when you get the flu and your body is working so hard to fight the infection.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,668
    • Most Online (within 30 mins)
      7,748

    CDR40
    Newest Member
    CDR40
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Rejoicephd
      That and my nutritionist also said that drinking cider is one of the worst drink choices for me, given that I have candida overgrowth.  She said the combination of the alcohol and sugar would be very likely to worsen my candida problem.  She suggested that if I drink, I go for clear vodka, either neat or with a splash of cranberry.   So in summary, I am giving ciders a rest.  Whether it's a gluten risk or sugars and yeast overgrowth, its just not worth it.
    • Inkie
      Thank you for the information ill will definitely bring it into practice .
    • Scott Adams
      While plain, pure tea leaves (black, green, or white) are naturally gluten-free, the issue often lies not with the tea itself but with other ingredients or processing. Many flavored teas use barley malt or other gluten-containing grains as a flavoring agent, which would be clearly listed on the ingredient label. Cross-contamination is another possibility, either in the facility where the tea is processed or, surprisingly, from the tea bag material itself—some tea bags are sealed with a wheat-based glue. Furthermore, it's important to consider that your reaction could be to other substances in tea, such as high levels of tannins, which can be hard on the stomach, or to natural histamines or other compounds that can cause a non-celiac immune response. The best way to investigate is to carefully read labels for hidden ingredients, try switching to a certified gluten-free tea brand that uses whole leaf or pyramid-style bags, and see if the reaction persists.
    • Scott Adams
      This is a challenging and confusing situation. The combination of a positive EMA—which is a highly specific marker rarely yielding false positives—alongside strongly elevated TTG on two separate occasions, years apart, is profoundly suggestive of celiac disease, even in the absence of biopsy damage. This pattern strongly aligns with what is known as "potential celiac disease," where the immune system is clearly activated, but intestinal damage has not yet become visible under the microscope. Your concern about the long-term risk of continued gluten consumption is valid, especially given your family's experience with the consequences of delayed diagnosis. Since your daughter is now at an age where her buy-in is essential for a gluten-free lifestyle, obtaining a definitive answer is crucial for her long-term adherence and health. Given that she is asymptomatic yet serologically positive, a third biopsy now, after a proper 12-week challenge, offers the best chance to capture any microscopic damage that may have developed, providing the concrete evidence needed to justify the dietary change. This isn't about wanting her to have celiac; it's about wanting to prevent the insidious damage that can occur while waiting for symptoms to appear, and ultimately giving her the unambiguous "why" she needs to accept and commit to the necessary treatment. This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests for celiac disease might be false-negative, and other types of tests need to be done to make an accurate diagnosis. The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate.    
    • Scott Adams
      Welcome to the community! Generally, for a gluten challenge before celiac disease blood tests, Tylenol (acetaminophen) is considered safe and should not interfere with your antibody results. The medications you typically need to avoid are those like ibuprofen (Advil, Motrin) or naproxen (Aleve) that can cause intestinal irritation, which could potentially complicate the interpretation of an endoscopy if you were to have one. However, it is absolutely crucial that you confirm this with either your gastroenterologist or your surgeon before your procedure. They know the specifics of your case and can give you the definitive green light, ensuring your surgery is comfortable and your celiac testing remains accurate. Best of luck with your surgery tomorrow
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.