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Any Way To Help Feel Better After Being Glutened?

mom-to-claire

By mom-to-claire
in Coping with Celiac Disease

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mom-to-claire Apprentice
mom-to-claire
Posted

My daughter is 11 months old and has just started a gluten free diet. She was a miserable child until we discovered this. She was clingy, needy, fussy..just plain miserable. She is a different child now BUT I think she might have accidentally been glutened (because I'm not a crumb fanatic and I know I should be). I'm not sure if she was glutened but she certainly has not been herself for the last 2 days. Is there anything I can do for her to help her feel better. Obviously she is too young to tell me how she feels but it seems that just being with me (in my arms) helps her. That would be fine if I didn't have a 2.5 year old as well.

Does it just take time for whatever she is feeling to go away? Will it take longer and longer to get back to normal after being glutened the longer she is gluten free? I'm so overwhelmed and scared and freaked out about raising a child who can't have gluten.

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GlutenWrangler Contributor
GlutenWrangler
Posted

Getting glutened is never good, but it is something that will happen for the rest of your daughter's life. When I get glutened, I don't really deviate from my normal schedule. There's not much you can really do, but it is good to drink plenty of good water. It just needs time to work its way out. Each time a celiac gets glutened, their immune system goes on overdrive. It needs time to settle back down to normal. Since your daughter is so young, she will heal much faster in comparison to an adult. Getting glutened really won't set back her healing process. It is really important to pay attention to every crumb. Continued consumption of even small amounts of gluten will slow down her healing. Also, has your son been tested? Celiac disease is a genetic condition, so it is a good idea to get all family members tested. But overall, you shouldn't be too concerned about the accidental gluten. She should improve within a few days. Good luck with everything.

-Brian

Guest AutumnE
Guest AutumnE
Posted

I drank red bull and lots of propel water before my problem with corn. But I dont think it would be a good recommendation for her since she is only 11 months old. Plenty of water as the previous poster suggested would be good.

Does she have diarrhea or diaper rash from it? When my daughter or I get accidentally glutened I put bag balm on her and it seems to help keep rashes at bay. Also soft foods always feel better with an upset stomach. I eat chicken broth with tinkyada pasta and mashed potatoes. It helps soothe my stomach by it not being hard to digest.

We tried only my daughter and I going gluten free and it was just too hard to keep everything spotlessly clean and I get a reaction from the smallest amount so I figured my daughter does too. So we went gluten free and I started cooking gluten free pantry bread *sandwich bread* and everybody has adjusted. I just cook more frequently. At first I felt like I was depriving my husband but realized it really wasnt good for anybody and he liked the homemade foods better with no preservatives.

As the previous poster suggested on how its genetic. I thought I was the only one but my daughter, sister, mom, dad, nephew and my niece all has it. Me and my nephew are the only ones with very obvious symptoms though. It has made family functions alot easier when everybody follows the diet.

Sweetfudge Community Regular
Sweetfudge
Posted

yes, drink lots of liquids. i like to curl up with a hot bean bag on my stomach area, or soak in a warm bath. don't eat any "intense" foods. just easy to digest stuff like rice and chicken.

  • 2 weeks later...
Rob. Newbie
Rob.
Posted

when i get glutened i get a serve depression, which is usually cured by consuming a massive dose of olive oil! not sure why, or if it helps in the long run but it does the trick!

acousticmom Explorer
acousticmom
Posted

You might check with her doctor to see if there's anything that can help with the pain when she does get glutened. I know several prescription meds have been mentioned in past discussions; I don't know if any of them would be appropriate for an 11-month old, but her doctor might have suggestions if her pain is very bad. It's awfully hard to watch your kid in pain when there's not much you can do to help it go away.

My son (13) sometimes finds a heating pad comforting as well.

Carol

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    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

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      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
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    • Scott Adams
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Scott Adams · Posted

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By trents · Posted

      Contact them.
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