It Could Be Lactose!

[Katie618]

I was reading someone's post about not feeling better (DH and celiac disease) after sticking to the diet....

I was diagnosed in May with celiac disease and DH in Aug. I was still feeling really awful and still looked really awful- the DH wouldnt stop breaking out and i still felt bloated... i was given a cortisone shot to help with the itching. My sister started too look up info on what can be causing me to still feel sick. She found that milk is loaded with iodine and salt!! (two things that are DHers enemies!!) I cut out drinking regular milk, started drinking soy... cut out most dairy products that use milk (yogut, cheese) and saw a huge difference within a couple of weeks!!!

Secondary lactose is common with celiacs... i stopped feeling bloated, my skin cleared up, and i actually feel better (Finally!!!!!) i ocassionally eat cheese and chocolate, and i will see the effects the next day (sometimes it seems worth it, but probably not). However, i read that you should consume as much dairy as your body can tolerate- if it is totally cut out then your body will stop producing lactase (enzyme that breaks down lactose). after the villi have healed, a celiac should be able to have dairy again... and after all my gluten deposits are out, i will hopefully have no DH effects after eating dairy.

Hope this helps to other who are having similar problems... it's worth a try!!

[SarahTorg]

  Katie618 said:

I was reading someone's post about not feeling better (DH and celiac disease) after sticking to the diet....

I was diagnosed in May with celiac disease and DH in Aug. I was still feeling really awful and still looked really awful- the DH wouldnt stop breaking out and i still felt bloated... i was given a cortisone shot to help with the itching. My sister started too look up info on what can be causing me to still feel sick. She found that milk is loaded with iodine and salt!! (two things that are DHers enemies!!) I cut out drinking regular milk, started drinking soy... cut out most dairy products that use milk (yogut, cheese) and saw a huge difference within a couple of weeks!!!

Secondary lactose is common with celiacs... i stopped feeling bloated, my skin cleared up, and i actually feel better (Finally!!!!!) i ocassionally eat cheese and chocolate, and i will see the effects the next day (sometimes it seems worth it, but probably not). However, i read that you should consume as much dairy as your body can tolerate- if it is totally cut out then your body will stop producing lactase (enzyme that breaks down lactose). after the villi have healed, a celiac should be able to have dairy again... and after all my gluten deposits are out, i will hopefully have no DH effects after eating dairy.

Hope this helps to other who are having similar problems... it's worth a try!!

OH interesting!!!!!!!!!!!!!!!!!!!!!!!!

Could this be WHY I break out so horribly around my period???

Lately I've been eating truckloads of chocolate AND CHEESE!

My rash is so bad lately.

[almostnrn]

Very interesting info! I haven't been able to drink milk in a long time and looking back it was most likely one of my first symptoms of celiac! I generally avoid most milk products but I do still eat chesse sometimes or use milk to cook with. I will have to watch that and track any small DH outbreaks I"m getting!

[rez]

It could also be from the casein in the milk. That's the protein and many Celiacs' bodies can't differentiate between gluten and casein. They're both proteins and very moleculary similiar.