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New To Celiac......

daltons

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daltons Rookie
daltons
Posted

We just found out earlier this week that my step son has Celiac Disease. We are FULL of questions and I'm hoping that some of you more experienced out there will be able to help us. We are still learning, but is there anywhere online we can go to find a list of brand name products that are gluten free. I don't necessarily mean the products you can find in the gluten free section of the health food store, I mean normal every day products....some of the less obvious ones. We need all the help we can get. My step son is 4 1/2 and he pretty much can't eat anything that he loves anymore. It is going to be a hard transition, as I'm sure you've all experienced. Any advice?

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Lisa Mentor
Lisa
Posted

Yes, we have a wonderful member of this board, who has done a great deal of research on behalf of the new people comming on board. She has created a "newbie survival kit". It will be a gold mind for new celicas.

Please do a search for member's name: "nini", click below her name and you can down load a wealth of information.

flagbabyds Collaborator
flagbabyds
Posted

Many companies have a list of their online products for that company. I know that fritolay has a list and you can also look in the site index (on the left side of the board) they have a list of safe and forbidden ingredients

Nini's survival kit is also very good and I would look into it and talking to Nini.

happygirl Collaborator
happygirl
Posted

Welcome to the board! We are happy you have found this site...is it by far the best resource out there.

Are you looking for specific products ... that might be easier to get you started. Ingredients change at any point, so its hard to put out "lists" per se. Reading ingredient labels will be the best thing you can learn to do, because then you can look at anything and 98% of the time, know if its safe or not.

Check out the book in my signature...it is a wonderful resource. I wish I had it when I was first diagnosed. You can find it on amazon. I refer to it often! He is an expert in the Celiac field.

Good luck, and let us know what we can do! It is a steep learning curve, I won't deny that! But, once you figure it out, then you get a new routine. And we will be here to help!

Laura

daltons Rookie
daltons
Posted
  • Author

Wow, thank you guys for being so helpful! The resources on Nini's website are awesome, I couldn't ask for a better starting point. My step son spends so much time with other members of his family, and they will probably all need to have as much information as possible. You've all been so helpful, thank you so much.

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    • trents
      Is "Shield" skincare products gluten-free?

      By trents · Posted

      @LynnM, when you say, "today, his numbers were high", what numbers do you refer to? Are you speaking of celiac antibody scores? Can you be more specific and can you post the test names, the numbers and the reference ranges for the tests? So, I am understanding you to say that topical exposure to gluten doesn't cause him GI reactions but ingestion of gluten does but at the same time you are attributing the "high numbers" to the topical exposure?
    • Ginger38
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      By Ginger38 · Posted

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    • LynnM
      Is "Shield" skincare products gluten-free?

      By LynnM · Posted

      Thank you Scott. My son doesn't have a reaction topically, only when ingested. Interestingly though, the doc told us the face cream getting gluten into his bloodstream doesn't do the damage akin to when gluten is ingested. He had no reaction when using the face cream, it only presented in blood-work. I'm hopeful from all the comments today and will wait for the GI doc to reply. If he is cleared to use it, I will encourage SHIELD to get a gluten-free certification 
    • Scott Adams
      Is "Shield" skincare products gluten-free?

      By Scott Adams · Posted

      It’s great that you’re taking the time to research products carefully for your son with celiac disease—especially since accidental gluten exposure through skincare can be a real concern for sensitive individuals. Based on the ingredient lists you’ve shared, none of the products appear to contain obvious sources of gluten like wheat, barley, or rye derivatives. Ingredients like glycerin and tocopherols (not listed here but often a concern) can sometimes be derived from wheat, but many manufacturers use plant-based or synthetic sources. SHIELD’s transparency and willingness to share their full ingredient list is a good sign, and their note about not intentionally adding gluten is reassuring. Still, because ingredient sourcing can vary and sensitivities differ from person to person, it’s wise that you’ve reached out to your GI specialist to be sure these products are safe for your son’s specific needs. In the meantime, if you do try any of the products, consider patch-testing them first and watching closely for any signs of skin irritation or reactions. PS - Most people with celiac disease won't react to skin products that may contain gluten, but I still recommend finding gluten-free products.
    • LynnM
      Is "Shield" skincare products gluten-free?

      By LynnM · Posted

      Greetings Trents and Scott. This is the first time I'm posting here so I apologize in advance if I'm not replying properly. My 13 YO was diagnosed at age 5 and once gluten was removed from his diet, he grew 3" in a year, skin became much better and dark circles around his eyes disappeared. Today his numbers were very high and our new dietician discovered his face cream (Clinique dramatically different lotion) contained gluten. My fault for not checking.    His acne really has only just started and he's using OCT gluten-free products but the SHIELD is nothing short of miraculous for my 16 YO son and the 13 YO is eager to start. I will await his dietician's reply or google each ingredient.    I don't want to put him on that Rx as it's not that bad and isn't painful either. Just a boy starting 8th grade and doesn't want bad acne.    When I hear back I will circle back. 
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